hello : Hello all, hope you stare all... - Early CKD Support

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Terry2016 profile image
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Hello all, hope you stare all doing okay.

i’m just really struggling since I had my transport in 2013. I’ve put on so much weight. I’ve completely changed from what I used to be. I feel anxious and nervous all the time all I wanna do is burst into tears all the time and have to use everything I have not too. I won’t let myself, it’s just pointless. I haven’t been out since January this year, I can’t bring myself to either.

I’ve tried to get help, but that don’t work as all they just want to put my antidepressants up to a higher dosage. I feel pathetic and useless, and that’s because I am. Prospect nothing in the horizon all seems very pointless.

Sorry to go on and be so glum, but feels a bit better to get off my chest

Terry.

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Terry2016 profile image
Terry2016
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katieoxo60 profile image
katieoxo60

Hi Terry, no one is useless we all have something to give . Even if only our time. True Extra weight can make you feel lethargic . What sort of things did you normally do before 2013 I have become quite astay at home since the pandemic, but try to do other things like online forums, telephone chat lines for Arthritis Action . Research forums and I am a dab hand at helping others sort out their problems with customer services. I have a couple of pen pals I write to and my sister takes me out around once a month for lunch she does a120 mile round trip to do that. I do orders for friends on line who do not have a computer , and it takes around two hours to do my on line fortnightly grocery shop and another two hours to put it away once it arrives. Reading is a nice leisurly pastime to keep you up to date on current affairs, do you like jigsaw, painting etc. Ladies often knit or sew. Arrange a tea party for the neighbours in your own home, or group get together for others with your illness. Or form a personal group on line. Now that should give you something to think about for a few days other than when the next pill is due. My daughter goes for a bar of choc , what ever makes you happy given time things can be changed. You can allways contact me on message page. Take care , don't despair, one day at a time , tommorrow never comes but each day is different you have the power to change your weight and your life slowly , theirs no miracle round the corner. But the saying is a change is as good as a rest and I am sure change will help you. Theres a song too called Always look on the bright side and its words are so true

Bassetmommer profile image
Bassetmommer

HI Terry, You received the gift of life. Something not everyone gets a chance to get. You are not tethered to a chair with needles sticking in you.

I have heard weight gain in one very common side effect because of the meds you have to take. It is part of the deal. You want to keep that kidney. Have they offered diet advice. I hate the word diet. Is it possible, that in time, the weight will come off if they do something else with the medications. I am not a doctor, but I have heard they have some different drugs now that do not include steroids, which is the weight maker. Your depression might also be related to the cocktail of medications you are on. Maybe it is time for a drug review.

Can you maybe look at your body now, not with despair, but with joy that it is whole and carrying a special gift.

I would suggest maybe talking with a professional mental health doctor. Depression is no joke and you do not need to feel guilty about having concerns and anxiety. But it is hard to go it alone without sharing it with someone. Staying inside and not going out is a very big sign you need support.

I am person of size and have been my whole life. I had to learn early on that my body is a vessel that carries many things including a large heart and so it is large size. Don't let physical stop you from enjoying the life someone gave you.

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