My creatinine Is 2.32 currently. Rest al... - Early CKD Support

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My creatinine Is 2.32 currently. Rest all in limits.. iam on a low purine, low potassium diet.. what are the chances that it will increase

Chooselife_ani profile image
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Wanted to know if my creatinine level will ever dcrease if I continuosly follow a low purine diet and low potassium diet till I survive

Stats : age -32 ,male diagonized with ckd stage 3 around March 2021, usg showed prolonged kidney disorder.. so not sure when it started actually

Creatinine is 2.32 mg/dl in August '21 .. increased from 2.2 mg/dl in June end

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Chooselife_ani
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RickHow profile image
RickHow

Sorry to hear your news. Based upon the limited information you provided, and the fact that none of us are doctors, your question is an impossible one to answer. You obviously are being treated by doctors and your question is best put to them. That said, I certainly can understand you searching for opinions. But you could be at such a creatinine level for many reasons. But since you also report the diet you are on, it is a reasonable guess you have probably been diagnosed as having CKD, for quite a while (likely months or years). OR you have some other medical problems that are causing low kidney function. So, if the "usual" CKD is the cause the likelihood of progression is certainly there. It progresses, plain and simple. The progression can be slowed with diet, etc. In some cases people will report some improvements. But only the VERY RARE cases does it return to "normal" . How fast the progression? It is widely varied. It depends on cause, what is done to slow it, a persons age and other medical conditions, etc.

But based upon such limited information (just your level an diet) and nothing about age, how long you've had CKD, other medical conditions, medications, etc., etc., no one hear can answer your important question. Pose your question to our doctors.

Jonquiljo profile image
Jonquiljo

I noticed that you are from India. Does your country use the “USA scale (mg/dl) — or the (more common) scientific scale — mm/L, or some other scale? You need to post the units of your creatinine measurements as many countries use different units to present them.

So .. 2.32 mg/dl would be high in the USA (definitely higher than stage 3), or is it 2.3 mm/L — or something like that? Also your age is important. If you are in your 30’s —stage 3 is more concerning than your 50’s or 60’s.

Someone your other thread posted that you have 6-7 years to dialysis. That makes no sense if you are stage 3. Unless your creatinine has changed rapidly in a short time, stage 3 could be the way you live the rest of your life. No problem.

Please fill in the blanks to get better responses. Right now, what many people are saying makes no sense to me. Good luck.

PS - and get married. No matter what your situation is - your personal life is independent of heath!

Chooselife_ani profile image
Chooselife_ani in reply toJonquiljo

Updated the info.. any further inputs would u like to add

RickHow profile image
RickHow in reply toChooselife_ani

First of all you will find that your Creatinine level from one blood test to another will change just as you described. In your case one time it was 2.2 then went to 2.3. This is a usual change. Next time you might be 2.1. Hydration, diet before the blood test, time you took any medications, any walking or exercise taken the day before the test, etc. etc. It is what happens over time that counts. If it starts to show increase consistently after 3 or 4 blood tests in a row, then it likely is getting worse. But from one test to the next don't panic about one increase of .1. You are stage 3b. I have been stage 3b since 2017. One time I will hit stage 3a, Next blood test I'm back to 3b with egfr similar to yours. It just changes.

I assume you have had all the scans, tests, etc., to see if there is anything within the urinary tract or one of the kidneys that is causing this versus true kidney disease or malfunction. Tests for blockages, tumors, infections,

PLEASE DO NOT fall victim to such things as you have 6 years until dialysis, etc., etc., etc.

We are each different. For example I'm in my fourth year of stage 3 (like you), so I'm just 2 years away from dialysis?? Hogwash. We are each different. And you can find so many different statistics about what "typically" happens, each of which contradicts the other. So, should we sit an figure if we are in this category or what happens, or in another category of what happens, etc., etc. ? No, we need to get on with it and follow the typically recommended diet, follow what our doctors advise. Ask your doctor about the "new drug" Farxiga. It has been shown to measurably reduce the progression of CKD. The figures are approximately if the patient has Diabetes along with CKD it slowed progression by 36. If the patient does NOT have Diabetes along with CKD it slowed progression by 50%%. You should definitely look into this with your doctor.

Again we are all different as proved by this drug. It worked great for 50%. But you could also look at that and say for 50% it did not work, or not work as well. So again, don't waste time guessing the future, but follow your doctors advice for the here and now.

Here are some crazy stats (accurate or not) to show you just what a guessing game it is about our conditions. Just to show you how no one has the perfect answer nor projection:

When diagnosed and managed early, stage 3 CKD has a longer life expectancy than more advanced stages of kidney disease. Estimates can vary based on age and lifestyle. One such estimate says that the average life expectancy is 24 years in men who are 40, and 28 in women of the same age group. (from WebMD)

or

Is Stage 3 CKD a death sentence?

Having kidney failure is not a death sentence. People with kidney failure live active lives and continue to do the things they love.Aug 25, 2020 (from kidney.org)

or

How long does it take for stage 3 CKD to progress to Stage 4?

Stage 3B patients had higher risks of adverse renal and cardiovascular outcomes than stage 3A patients. Conclusions: About half of the patients with stage 3 CKD progressed to stage 4 or 5, as assessed by eGFR, over 10 years. (from pubmed).

At the same time I have stage 3, I also have stage 4 terminal cancer (kidney cancer that spread to the bones after kidney removal). It has been four years now. In 2017 one doctor told me the cancer will never come back. Another doctor told me I had 12 to 18 months. And while I certainly know I won't live anywhere near a typical life span I choose to live as normally as possible. NOT to sit each day worrying about when the end will come and thereby waste countless hours and countless days when I can just live the days I am given. Do I think and worry about it at times? Or course. But all I can do about it is follow correct diet and medications and treatments, and the rest of the time laugh, love, consume each moment as normally as possible. Please do the same.

RickHow profile image
RickHow in reply toJonquiljo

Did I miss something?? Who said anything about if he was married or not.

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