EGFR varies a lot from one day to the next - Early CKD Support

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EGFR varies a lot from one day to the next

RickHow profile image
4 Replies

Just to relate a recent experience regarding egfr. The purpose is to hopefully reduced a lot of the worry and/or panic many post about when there is a sudden change in their egfr.

I am a person with one kidney. A person with one kidney MAY maintain what is classified as a normal egfr. BUT in most cases there will be an increase in Creatinine level which results in a lower egfr. It is quite normal for a person with one kidney to have a Creatinine level of 1.8 mg/dl (159 umol/l). In my case over the past two, three years since kidney removal my Creatinine level has been about 1.7 quite consistently. I get tested every 3 weeks as I am receiving cancer treatment for kidney cancer that has spread to the bone (that is why kidney was removed it was cancerous).

My past three tests (over 9 or 10 week period went up to 1.8 and remained there). As we age (I am close to 72) kidney function normally declines so this was not surprising, but none of us likes to see the number increase and worry about why.

My last visit to the cancer doctor my Creatinine was again 1.8 (159) resulting in an egfr of 40. This was at 8:30 am on that day. The very next morning, at about the same time of day my kidney doctor did a renal blood test (which includes Creatinine and egfr) and it was 1.5 with egfr of 49. So in 24 hours I went from egfr of 40 to 49. after many weeks of being consistently egfr of 39, 40.

I fully anticipate going back to the 1.8 level. But the point is if you get a sudden higher Creatinine level, thus lower egfr, don't panic, try not to worry. It can vary significantly as was my experience in just 24 hours. Simply give yourself time, get retested, and monitor you level on average over time. It is not an exact science. You can get a test which is suddenly above or below your typical but then on the next test return to what is your true norm.

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RickHow
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4 Replies
orangecity41 profile image
orangecity41

Thanks for sharing. Many of us have eGFR that varies.

PopcornLover1971 profile image
PopcornLover1971

Thank you for being a voice of reason. I struggle with this

Type1diabetes profile image
Type1diabetes

Thank you so much for this. I just got my results back today, and I went from 40 to 31, I have been stressed and crying all day.

RickHow profile image
RickHow in reply to Type1diabetes

Yes sometimes the stress of it all can be overwhelming. You had a big drop of egfr. At this point all you can do is wait and see what the next blood test shows you. Now you don't have to wait a long time to get tested. Especially as it is bothering you so. If it were me I'd wait 5 to 7 days and ask for another test. Your doctor can order it. He doesn't need to run a complete test but can just run what is called a renal panel and see about your kidney.

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