Pediatric ADPKD

[NeluPapa]

My son, 8 years old, has ADPKD. The right kidney is worse than left kidney, with many large cysts, one of them is 3,5/2,5 cm. His test labs: left kidney 8.5 x 4.3 x 4.17 cm, right kidney 9.8 x 5.5 x 5 cm, GFR 114 ml/min/1.73 m2 (left kidney 68 ml/min, right kidney 46 ml/min ). I do not know how bad his kidneys are and please, share with me the lab tests of your children. I read about therapy with pravastatin and I want to try it for my son. Did anyone use this therapy? I am a desperate parent and I want to do everything for my son, soon as possible until is not too late for him. Thank you very much and I hope someone will answer me !

[MAS_Nurse]

Hi NeulaPapa and thank you for tour post. Pravastatin belongs to a group of medicines called statins. It is used to lower cholesterol. Pravastatin can be taken by adults and children over 8 years old. You will find a lot of information about pravastatin on the following websites--

Parents of children with kidney Disease

National Kidney Foundation

Please scroll down to the bottom of Health Unlocked page and click onto A--Z communities and type in Paediatric Kidney Disease. This must be very difficult for you. You will receive support from other parents and can share your experiences on the forum.

Pravastatin--a medicine used to lower cholesterol

nhs.uk/medicines.pravastatin/

welcome to infoKID-

https:::://infokid.org.uk/

Paediatric Guidelines-The Renal Association

renal.orgBAPN clinical

Please discuss this treatment with your child's consultant who will discuss with you if this treatment is suitable. Are there any other members who could help NeluPapa, please?

Thank you and best wishes.

[NeluPapa in reply to MAS_Nurse]

Thank you very much!