I just found out I'm CKD3B. Had kidney cancer in 2012 and after my kidney was removed, my GFR was 53, but the doctors NEVER told me i was in any danger of kidney failure ! Now my GFR is 43 & creatinine level is 1.76. I can't stand this nausea all the time, it's horrible !
Would live to know why my doctors NEVER told me i was in CKD 3B even though they had the blood work results !
Looking for any help & advice. Thank you
Hi CKD3b
I'm the same.... & I feel like it came out of nowhere, too
I have both my kidneys... 1 only functions 9%
GFR is 35 & creatinine is 1.54 (as of today).
So we're pretty close. Sorry to hear of your cancer in 2012. I was feeling nauseous but it seems to be from my pills... labetalol was increased to 800 mg/day & makes me very nauseous if not taken with a lot of food.
Other than that, I'm almost symptom free. I do have hypertension which has been very chalk for the dr to control. Dr says just eat healthy & exercise. I need to lose about 20 lbs. that's not easy for me. 🙈
Have you tried the ginger candies for nausea? I've heard they help.
Hi Rosemary201 I have a good thing to share with you... Im at early stage RF and probably due to stress causing transient hypertension... I was medical student before, due to my health concern I apply to change course to engineering... Im happy that I chosen to change my course..
Going back, my blood pressure is 130/70 on average sometime it shoot more higher... Probably I have anxiety due to stress during med school...
I recently found research paper that water fasting is good for hypertensive patients... It can bring down average 37/ 17 points after 10 days of fasting and the reading would maintain as long as u not going back to Ur old diets.. now i am at 2nd day of fasting, and my blood pressure is 116/79 average... I am targeting to below 100/ 70 average... ( You can download research paper done by doctors by googling " water fasting and hypertension ncbi"
Secondly, I found an article publish just recently stated that gfr can be improved... but it is only, possible in hypertensive nephropathy patients ( as it was done in hypertensive pts) if you have "mean arterial pressure"<92 mmg and low proteinuria... ( Google " gfr improve and hypertension ncbi)
I am very grateful that I was medical student before as I can understand all body physiology and do best to myself and you guys
Last but not least, im a Muslim,if you not an atheist, pray to your GOD so that He will give you fast recovery 😀😀😀😋😋
If you have questions, feel free to ask me 😀😋😋
Warms regards,
Milo
- your friend-
Hi Milo,
Nice to have you on here. The article regarding water fasting was really interesting. I wonder why this treatment is not being used more, and I'm wondering how it would work fir someone who is already at optimal weight. Almost two weeks of no food seems like it would throw you into starvation mode and therefore inflict more problems on your organs and kidneys. Any thoughts on that?
I've also heard beet juicing and hibiscus tea can help. I tried drinking hibiscus tea, but no such luck for me. They ended up putting Mr on lisinopril. It seems to be making me dizzy in the morning. I was reduced from 10 mg as my bp dropped too low, to 5mg and now I've been dropped to 2.5 mg as I'm still getting dizzy. Bp originally was a averaging around 140/95. Now I'm averaging 95/65. May have to cut it back to 1.25 mg. If I don't get rid of these dizzy spells.
Regarding water fasting, actually it's must be under supervision by doctors...
If you are scare, maybe you can do modified water fasting which you might consider juice in your diet... Like homemade soy milk, or beet juice... beet juice is good since it dilates your blood vessels... ( Due to nitric oxide effects)
As long as you are not dehydrated your kidney will just fine...
Regarding lisinopril, it's Ace inhibitor, which block ace enzyme...
Ace enzyme is important for blood pressure increment. This by blocking that, 1) no water retention ( water retention cause hpt), 2) no blood constriction.
The study shown that ace inhibitors drug help in protecting kidney and heart... But sometime in some patients , vice versa.. so blood check up need to be done 1/2 weeks after med..
It's good that you manage to cut down the med dosage...
Btw, you can try to learn correct breathing technique, you can watch it on YouTube...
Some people they tend to breathe with their chest... The correct way is to breathe thru you belly...
May I know your cause of CKD?
Thank you. I have IGA Nephropathy.
I have recently taken up yoga and am learning better breathing techniques. I will check out YouTube for more instructions. I know I breathe incorrectly now. Thanks for reminding me!
Sorry I forgot to mention about HIITs workout... I recently bumped into a website written by cardiologist (if I not mistaken) telling about his patients who has hypertension... He has hpt and on medication.. but just recently his BP reading is just astounding. Then when the cardiologist ask the patient, patient being honest that he has been practicing HIITs workout...
But before you going to do it, please consult your doctor first...
Thank you, Milo 😊
I go see my kidney doc on Sept 27 so I'll see what he says and why all of the sudden this all hit me.
The cancer in 2012 was bad enough, I don't need to go through anything else life threatening, at least right now.
Hi
When I was at stage 3, I had nausea too... my nurse told me to drink plenty of water....she said it helps the kidneys to work better as they have low function.. ....and stops the feeling of sickness....
It worked for me...
Hoping this helps, Margaret
Thing is, I can't drink hardly at all because of my bloating. I have gastropareassis and let me tell you, IT SUCKS ! I get soooo thirsty, but have a hard time swallowing one big gulp ! My stomach feels like it's going to explode. I'm going to have to get that operation to fix it, I didn't want to, but I can't take this anymore.
Sorry you are going through this. I am at 16% eGFR and up until a couple of months ago I had frequent bouts of nausea especially in the morning when I wake up so I feel your pain! I have been able to get mine pretty much under control with diet changes. As Margaret suggests, drink plenty of water assuming you not getting water logged which at your stage I doubt will be a problem. I know it is counter intuitive as it is an acid but I find a small spoon full of apple cider vinegar in a cup of warm water helps reduce my nausea. If you can’t stand the taste add a bit of lemon juice or honey. I found that reducing meat intake has really helped me. I seem to be fine with chicken but if I have red meat, oddly even fish and certainly cheese then the next day I feel rough. Also have you been given the opportunity to speak with a renal dietician? You may want to ask your nephrologist if you can see one. They should be able to review your blood results and based on your various parameters they would be able to recommend what foods to have and those to avoid. I hope things get better for you.
Hi CKD3B,
Sorry you are feeling crappy. Unfortunately many of us were never told originally that we had CKD. I think part of the reason is that many things can cause a drop in GFR like infections for instance, so they don't always rush into a diagnosis. Generally on blood work results in the US you would just see a result of >60 in which case they consider that Normal although 60-90 is considered stage 2 so not sure why they consider it normal.
I'm assuming the CKD is a result of the kidney cancer, but now that the cancer has been removed, will the kidney that is left continue to decline or can they get it to stabalize?
Rabbit01 has great advice in seeing a renal dietician. Getting my diet under control has helped most of my symptoms.
I hope you feel better soon. Keep us posted if you find a solution.
Hi, regarding renal cancer (mostly renal cell carcinoma) will cause drop in gfr since it causing damage and inflammation to the kidney cell such podocytes and etc..
First of all, you guys must understand that, there are acute inflammation and chronic inflammation...
Acute inflammation is sudden in onset and duration last days or weeks... After inflammation subside, the cells, mostly regain their function and replace the damage cell with new cell.. but if the cause not been removed, example for months or even years, the cell will undergo to chronic inflammation..
In chronic inflammation, the damage cell been there for months and years... The cell that damaged, mostly been replaced by connective tissues ( fibroblast/ called fibrosis, also known as scar)
So the fibrosis cannot function as the old cell since it only support the structure of the tissues.
Btw, kidneys function will deteriorate every year/ ageing if you not consume well diet etc. The drops depend on our lifestyle, meat,alcohol and etc consumption and disease that we having...
But there is a study shown that( can google it in ncbi) that adequate water consumption can slow the progression of kidney failure...
Even there is a study, gfr can be improved each year in some patients but the exact reason behind this still unknown. Probably due to pts have a good diet?
Try vegan diet, because meat protein can cause harm effects to the kidneys
Meat>chicken>fish>protein from vegetables.
Thank you for that explanation Milo.
So, in my case, with a IGA Nephropathy, my nephrologist believes my many food intolerances have continued worsening my kidneys, therefore, I am careful to keep them under control though it is difficult as I have so many. I can eat certain foods in small portions, but if I eat too much or eat too many of the foods in a certain time frame then I have a flare up. So, that would be considered an acute inflamation? Then if I do this too often leaving my body in a state of constant inflamation it would lead to chronic inflamation?
My holistic doctor has me cutting out most foods with Omega 6 as it causes inflamation such as all vegetable oils. I am only supposed to use olive, small amounts of coconut due to its other healing properties, small amounts of palm oil and macadamia oil and occasional grass fed butter. Otherwise I take 2tbs twice a day of flax oil. She did not want me to cut out meat except red meat. I can occassionally have grass fed beef. But said I need the meat for the amino acids.
My GFR bounces around from stage 3 to stage 2 every few months. Can't seem to stabalize it.
I am very sorry with your condition... IgA nephropathy is been thought an autoimmune disease.
There are 5 type of hypersensitivity, and your condition is type 3 hypersensitivity.
And sorry to say that , there is no cure, but the only thing you can do is avoid triggers that make it flares up...
It's same as, asthma, allergy, rheumatoid arthritis, SLE.... But they are in different type of hypersensitivity..
Do you still remember, water fasting previously? I have read claims that its good to reset our immunity... But, it's not a research paper... If you are interested, you can google it ( water fasting and immunity) I'm not sure there is paper research been publish..hehe
I just read it once since it's not my first interest. Huhu..
Usually Doctor will prescribe corticosteroids to reduce inflammation.
Sorry if you don't mind, can you give me your email or ws so that I can share with you the articles?
Thanks so much for the information! I just sent you a private message. You can send the article there. I appreciate you taking the time to share your knowledge!
I here you..
My daughters doctor never explained that kidneys are suppose to be functioning at 90% or higher..found out by a psw worker..
so when I see him tomorrow he will hear what I have to say...
Apparently she is stage 3..
Peed off right now
Seriously questioning my doctor, need your advice!
C T scan
Back at the hospital 
fatigue and kidney failure
