Photophobia

[tallyho]

Hi there. I was first dx with ocular Myasthenia and now they think because of the eye spasms it may well be Dystonia. I was negative for all OMG tests including blood tests.

I am finding if I go into bright sunlight my eyes close and I can’t re open them for a while even if I then go to a darker place. Does anyone else get this? Also if I have both eyes open and then cover one eye but not shut it the other uncovered eye closes without me closing it. When I remove my hand both eyes are semi closed.

No neurologist or opthalmologist I have seen has seen this happen before.

[Hidden]

I definitely have a problem with bright light,flashing lights, even the sun coming through the trees in Fall. My left eye closes after an Episode and out of nowhere other times briefly.

[BlanketTime1]

my eyes don't completely close. when I walk into sunlight, my eyes slit involuntarily and I have to cover them before they open all the way (which I never realised until I read your post). it comes with a lot of discomfort, floaters, and flashing lights. I don't have any suggestions other than avoiding as much as possible (which I do) and sunglasses.