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Dystonia Society
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Do i have dystonia?

Dystonia, correct diagnosis?

At around 13 I started to have my „nervous tic“: impulse driven head and neck movements. The impulses were soon felt all over: abdomen, legs, feet. Eyes very sensitive to light and jagged sights. Would this fit the typical dystonia characteristic? Some pain caused by movements but not so strong as to affect daily life

2 Replies

Have you seen a neurologist who specialises in movement disorders? You will need to get a referral from your GP.


Hi Trinnie, no, not yet since Til now I wasn’t aware my condition had a name. I am in touch with the German dystonia society and am trying to get more info and contacts...tks for your interest



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