hello

Hi, I had a massive stroke in 1977, I still can't use my right arm and my right leg is very week. They told my mum I won't last longer than 3 months. But as you can see I am still going. I have 2 beautiful children & 1 grandson with another one on the way.

I am strong most of the time, but some days I get annoyed and frustrated. But I guess that's normal.

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  • yes a would say thats norma; i only ha dma stroke nov 15 and i feel so flustrated as most dont understand how hard every day things can be i hate mornings as that is when i am at ma worse find it so hard to get washed and dressed

  • exactly the same here Dobiedogz. I think acceptance is the most difficult to achieve . I want to be my old self and I wonder sometimes if others think I'm swinging the lead.

    I think we just have to get on with it!

    love Annlyyn

  • thank you for your reply Shezhan, yes ,like you I try to count my blessings but some days I am very annoyed with myself. I have tried to analyse my mental problem and I think that no matter how hard my husband tries he isn't as organised and tidy as I was, and I am unable to do most things by myself. I hope that now I know what the problem is I will not be as critical.Some positive moves I have made:

    I sold my house and built an extension 'granny flat' at my daughters so she can help with my care and I help out with the three children

    2 I bought a "work station for food preparation with spikes to hold veg. etc and a clamp to hold bread in place.

    3 I bought a slow cooker so I don't have to lift casseroles into the oven.

    4. I found a brilliant young home help who comes twice a week and is very tidy. I pay for it with my PIP

    4. I grow plants and bulbs in pots in the garden using an old patio table as a potting bench . The colours and flowers give me joyalthough I can't do ordinary gardening.

    5. I am writing a novel based on an actual incident in Stockport that I read about in an old newspaper.

    so I am hoping for success from my cruel stroke.

    love Annlynn

  • annlynne where did you get #2 and can you describe what it does in more detail please. I've recently been to a chiropractor and although he won't touch my neck he has don "gentle" things to my back that has allowed my left side to become more flexible. You might want to give it a try...

  • yes , thanks, I might just do that. I had treatment from a chiropractor in my early 30s when I had prolapsed discs. He was very helpful.But I might leave it until I next see the orthopaedic surgeon, there was talk when I had a bone aspiration that they might have to do remedial work on my hip. It was a 'bipolar' repair. (ie because my 'socket' was healthy, the ball was replaced with a metal ball. A metal stem ,attached to the ball,was 'fitted' in my femur.It has never really been right but the pain and disability has increased until now I can hardly get out of bed. Poor me lol x I am trying hard not to think that . thanks so much for replying. My second stroke was minor, but it nearly scared my husband to death. My first stroke was in my central ganglia and lower right lobe, there was a large pulmomary embolism which the medics said would be broken up with my medication. My second stroke was a seizure which they later classified as a minor stroke. I am now trying not to even think about my stroke. maybe it will all go away.

  • Please tell me about #2 in your previous post, what it is and how it works, thanks

  • Hi. I had my Stroke in 1998 (SHA) at the age off 32. Yes staying strong is the best policy. Yes getting annoyed & frustrated is very common. I don't think about my previous life & only focus on my future. This is the best thing to do "believe me"

    Steve.

  • Very normal

    I had a haemorrhage// stroke over 10 years ago I can't use my left arm at all and have a week left leg

    And I feel the same

    Did you have your children before or after your stroke? X

  • Hi pretty things. I had my two children in my twenties. Andy when I was 25 and Heather ay 28. I thank God for them and their love and support. I am also blessed with 5 grandchildren, so my life should be happy. I just get so frustrated at my disability. It helps to know there are others out there who understand. xx

    PS. do you have chilfren? sorry to ask that as a PS xx

  • hello yes I had my first daughter about four months ago! its hard doing everything with one arm, and poor balance! Did you have any of these issues? X x

  • Like most of the replies you have received everyone seems to be in the same position. I had mine in 2014 and lost the use of my left side. In 2015 i fell broke my hip and found out 6 weeks later at an x-ray i had dislocated my shoulder. Since then i still have trouble with my left side but keep trying and have even tried to go swimming (must look funny in the water) but never mind. Have started to do a little craft with help but managed to go back to my favouriate thing knitting but only small things for chariety - prem hats, blankets for the hospital along with help from people in the group. I still get frustrated when doing these things but it stops me from feeling sorry for myself. So just keep trying even if it is at a slow place and a different way than you used to do.

  • Sounds like you are doing amazingly My stroke was in 2006 and I get fed up when my child wriggles and makes it hard to fasten her into her pram seat with one arm! Or when I come according something that I cant do for the first time! Its normal x x

  • I am trying to fasten buttons on my blouse, to make it a little easier my husband fastens the buttons but leaves the top one or 2 so i can get it over my head and spend the next minutes trying to fasten the remaining ones but as they are small it takes me a while. It a matter of keep trying no matter how frustrated you get. Keep up the good work and remember you are not alone there are others in a similar situation doing just the same

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