Pianist with Parkinson’s?: Does anyone here... - Cure Parkinson's

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Pianist with Parkinson’s?

Bif1986 profile image
18 Replies

Does anyone here have information, even anecdotal, about a pianist with Parkinson’s? Thanks!

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Bif1986 profile image
Bif1986
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18 Replies
Xenos profile image
Xenos

Hi Bif,

I remember a professional pianist and his wife hoping resuming piano after DBS surgery. I do not know what happened.

enjoysalud profile image
enjoysalud

Dudley Moore was a well known pianist/composer and became an actor. He was first diagnosed with PD, but later found to have PSP, subsequently died.

bjmettler profile image
bjmettler

I am amateur pianist with Parkinson's. Before C/L, I had pretty much given up trying to hit the right keys or keep a beat. Since taking C/L, I have been able to play right where I left off a few years ago. Music calms the soul!!

Dap1948 profile image
Dap1948

I am a classically trained pianist -PhD, MA, GNSM, ARCM. I was dx with PD eight years ago. I don't play professionallly now, but do still play for an hour a day. I can't play fast trills anymore but can demonstrate to my pupils and still gain much satisfaction and lift my soul. I don't shake when I play! Why are you asking the question?

Bif1986 profile image
Bif1986 in reply toDap1948

I play professionally as well. In addition to my PD diagnosis, I’ve been diagnosed with ulnar neuropathy and my hand surgeon wants to perform a nerve release. I’m uncertain which symptoms are from which condition however.

Dap1948 profile image
Dap1948 in reply toBif1986

I've looked up ulner neuropathy and see your problem as there is a definite overlap. I would be cautious about going for surgery. Have you seen a psyotherapist for a second opinion?

Bif1986 profile image
Bif1986 in reply toDap1948

Thanks for your comments, I really appreciate it. I’ve had months of therapy that haven’t really helped. I’m going to a second movement disorder specialist on Wednesday for a second opinion. My diagnosis is recent and I’m only 32. I have not taken anything for the PD yet so that’s probably the first thing I’ll try.

Kia17 profile image
Kia17 in reply toBif1986

Big1986

Was your diagnosis based on DatScan or your symptoms?

Bif1986 profile image
Bif1986 in reply toKia17

DaTscan

Kia17 profile image
Kia17 in reply toBif1986

What are your main symptoms? Any family history of PD or other neurodegenerative diseases?

Bif1986 profile image
Bif1986 in reply toKia17

Rigidly and tremor in left arm and hand. Digestive issues.

Dap1948 profile image
Dap1948 in reply toBif1986

Yes, try PD meds first. They could remove your rigidity and tremor.

Kia17 profile image
Kia17

Any balance problem?/ drooling?/slowness of movements?/ smelling issue?/ pain?/ pins and needles?/

Bif1986 profile image
Bif1986 in reply toKia17

Pain only when playing piano for many hours. It’s localized pain under my left shoulder blade.

Kia17 profile image
Kia17 in reply toBif1986

How significant is your DatScan? Can easily see the reduced uptake of radioactive tracer in right side of the Substantia Nigra (SN)?

Bif1986 profile image
Bif1986 in reply toKia17

It’s a period as opposed to a comma. Very full and colorful but still not the same as the other side.

Bif1986 profile image
Bif1986 in reply toKia17

I do show dopamine loss consistent with that side of my body.

Kia17 profile image
Kia17

Get a second even third opinion from a Movement Disorders consultant.Reading DatScan sometimes is hard. Please keep us informed.

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