Vyalev / Produodopa update

[blazyb]

Firstly I have to come clean with an error -It has meant I have ranked on the first page of google - see picture - for the wrong product Such a pro.

It has been so long (relatively) since I have written about the Pump. It is crazy to think that up to a few weeks ago, this was the most important Parkinson's topic in the world to me.

fightingparkinsonss.com/202...

[Farooqji]

When were you diagnosed? On the basis of which test or symptom you are sure that it's PSP

[blazyb in reply to Farooqji]

Originally 2020

It is not certain as I write but likely or appears to be

Two main indicators

1. Vertical eye palsy

2. Shocking balance - I can’t stand still for the pull test before falling nautrally

[Farooqji in reply to blazyb]

Hope it's not PSP. One of the main symptoms mentioned in the literature is lack of tremors and tendency of falling backwards. Until all the cardinal signs appear, we should rule out PSP

[blazyb in reply to Farooqji]

My fallling is straight backwards and I lack tremors

[Juliegrace]

My balance problems are caused by my meds (c/l). I am more stable when in my “off” state although it has improved significantly since DBS surgery. Is it possible that the meds are causing your instability? Just a thought.

[blazyb in reply to Juliegrace]

Anything is possible and who knows but without the meds I am worse

[Juliegrace in reply to blazyb]

I am the same. Despite the issues, on meds is better than no meds.

[Koalas007]

Hi

I’m Margarida 50 years and had Parkinson 15 years. Since 2019 I’m doing apomorphine infusion 24/7. Now next May I’m gonna start with Vyalev I hope will be able

[cjCardio53 in reply to Koalas007]

Hi, were you doing the apomorphine ONAPAGO pump? If so, did u like it?

[Discogs_discogs in reply to Koalas007]

Did the apomorphine pump stop working over time?