Produadopa/Vyalev Pump - My 45 day report... - Cure Parkinson's

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Produadopa/Vyalev Pump - My 45 day report card

blazyb profile image
15 Replies

Produadopa/Vyalev Pump - My 45 day report card - it is a pretty good result with some dark moments. fightingparkinsonss.com/202...

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blazyb profile image
blazyb
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15 Replies
eschneid profile image
eschneid

B..,.......,Great post as usual. In the pump process as I write. Would love to be in the WhatsApp group.

blazyb profile image
blazyb in reply toeschneid

sending you a link

Trixiedee profile image
Trixiedee in reply toblazyb

Can you send me a link too please? I have an appointment in February to start the process of getting the pump.

Farooqji profile image
Farooqji in reply toeschneid

Count me in as well

realk profile image
realk

Thank for posting this...I am considering the pump as well so your information is for me very valuable..I am just wondering, how can you exercise some yoga poses?..it' s important part of my daily routine and I cannot imagine how to exercise with cannula in my stomach especially core exercises , twists etc..

blazyb profile image
blazyb in reply torealk

Surprisingly it is ok. I have a pair of shorts with zip pockets and it fits In that when I need it for certain exercises. It seems to work for me

realk profile image
realk in reply toblazyb

So u say u can do any exercise or side bands,back bands ,twists without any harm?

Trixiedee profile image
Trixiedee

l’m in India on holiday from the UK and I’m wondering whether this would be possible with the pump as I understand that medication needs to be refrigerated. How do you manage to travel?

blazyb profile image
blazyb in reply toTrixiedee

I have travelled once and I understand the drugs can be 28 days without refrigeration - see picture

Photo of Produadopa/Vyalev vial box
DogsWoode profile image
DogsWoode

So helpful!

SanMateoPD profile image
SanMateoPD

Love this, keep it coming. I'm getting the pump soon, and would love to be in the whatsapp group, also. Thanks.

rebtar profile image
rebtar

My MDS (US, so no experience yet), said the cannula can be inserted in other locations, not just the abdomen. Is shd wrong?

pearlette profile image
pearlette in reply torebtar

In principle there should be many other locations. But many would need help to insert needle at certain sites.

rebtar profile image
rebtar in reply topearlette

Got it

Erniediaz1018 profile image
Erniediaz1018

youtu.be/mXDAPi38wuY?si=0hD...

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