Produadopa/Vyalev is great but not full proof

[blazyb]

🙁🙏🇬🇧fightingparkinsonss.com/202... - a very hard to write blog post about a really not pleasant few hours but one which I feel people need to understand to know what PD is actually like. I am also keen to see how a-typical I actually am

[Bolt_Upright]

Maybe your pump is defective? I am sure you will check that out. Good luck.

[blazyb in reply to Bolt_Upright]

Thank you will check into it

[Bolt_Upright in reply to blazyb]

Also (and I do think the pump may have a problem), if this happens again maybe you can have some CL with you just in case? I have heard if you mix it in water it will act faster. Maybe that can be your emergency plan.

[Farooqji]

YOU MEAN FOOL PROOF

[Juliegrace]

I think you should post the entire blog entry here on HU so that it will reach more people and others who are on (or no longer on) the pump can respond.

[blazyb in reply to Juliegrace]

Hi. I don’t want to be a troublemaker and it is not my intention but after spending lots of time trying to post to here and Facebook and LinkedIn etc it gets too much so I thought I would put it on one blog site and send links. I know it is a pain but seems to me the best way given the time it takes and maintenance of it. I may be wrong. I am not looking for any objective other than awareness and fulfilling y own addiction and therapy of writing

[Juliegrace in reply to blazyb]

I’m not sure why you think you’re a troublemaker. I think you could just copy and paste the whole post and far more people would read it here. I think there are probably some people who think they will get back to reading your blog at some point, but never do and I think there are many who aren’t interested in clicking through that would read it if it was here. Especially the most recent post on vyalev and the issues you have had. And it’s much easier to respond here.

[Skydome]

What was the reason why you didn’t hit the pump’s Boost button at the very beginning of your Off episode?

Thank you for the new post, and Happy New Year!

[blazyb in reply to Skydome]

A question I am not sure I have a good answer to. Probably should have done

[Edge999]

sounds like the shawarma to me. Can you associate your bad episodes to things you ate?

[jeeves19]

Good post. I’d do as suggested above and take some immediate release CL with you?

[blazyb in reply to jeeves19]

Very good idea

[tacato]

Thank you (again) for sharing, I really appreciate your time and effort with this.

Can you speak a bit more about the sleep issue? You mention it twice in this entry. I assume you mean that there is a correlation between sleep deprivation and the occurrence of a "shut down" event asyou describe in this entry. Is that correct? Insomnia is a nut I have been unable to crack as well, and I am pondering whether to give Vayalev a shot.

Also, I trust that you still have not had any incidence of hallucinations or psychosis that are highlighted by the manufacturer in the product's label?

[blazyb in reply to tacato]

Hi. Yes sleep is a big issue for me - I am genuinely not plugging my blog for personal reasons but I wrote about sleep specifically as it is such an issue.

I have not seen my sleep improve yet and it is in that respect different to my other main symptoms of freezing, balance and shuffling which have all improved massively.

Happy to discuss further

No hallucinations or psychosis to date

fightingparkinsonss.com/202...

[tacato in reply to blazyb]

thanks so much. I look forward next update. Keep plugging away!

[Pats68]

is there a copay assistance program..?