Produadopa and Vyalev patient experience

[blazyb]

For the last four weeks I have been blogging about my experience on moving to Produadopa/Vyalev as known in different countries.

In that time I have met a number of people going through or about to go through the treatment and we have started talking.

It helps to share (not for all). We decided to start a WhatsApp group to share experiences (absolutely not a place to go to for medical professional advice and all other related caveats including asking people to respect the rights of relevant privacy rules). We will see how it goes.

I spoke to the ceo of one of the main PD ngo charities and she mentioned it would be e great to share knowledge as the treatment moves forward and works for some and not so well for others.

I have absolutely NO financial or commercial objective or interest and I prefer the background but at this time I am just a patient who wants to help himself and others.

j am happy to give the details of the WhatsApp group to join but please send me a chat message and I will send an invite. You can of course pass it to people who may benefit but absolutely NO marketing, research or related companies - this is for patients only.

if it doesn’t add value or help we will stop it but I really think it can help people.

If you disagree please let me know why. I am not in the medical profession and am talking a big step forward.

my blog for anyone interested -

we,

fightingparkinsonss.com/

[Josiedub]

i am on the waitinglist for it. Approximately in May it will vbe. Please how can i enter that appgroup. I am dutch and I live in Amsterdam

[blazyb in reply to Josiedub]

I sent you the details on a chat message

[RonB1]

Is the Vyalev device helping you?

[blazyb in reply to RonB1]

For me it is a game changer but it is just my view

[1953bullard]

I’m interested. Getting it once Medicare approves