I wonder what overheads are being referred to and what the impact on research might be
I wonder what Trumps cuts to Medical Rese... - Cure Parkinson's
I wonder what Trumps cuts to Medical Research overheads means
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CuriousMe12
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wired.com/story/life-saving...
I already used my last free article read for wired.
"The Damage to Federal Medical Research Is Already Done
Clinical trials may have to be scrapped, research applications will be pushed back, and unpaid researchers will quickly leave the sector—even if the Trump administration’s funding pause is only temporary.
For much of living memory, the United States has been a global leader of scientific research and innovation. From the polio vaccine, to decoding the first human chromosome, to the first heart bypass surgery, American research has originated a seemingly endless list of health care advances that are taken for granted.
But when the Trump administration issued a memorandum Monday that paused all federal grants and loans—with the aim of ensuring that funding recipients are complying with the president’s raft of recent executive orders—US academia ground to a halt. Since then, the freeze has been partially rescinded for some sectors, but it largely remains in place for universities and research institutions across the country, with no certainty of what comes next.
“This has immediate impact on people’s lives,” says J9 Austin, professor of psychiatry and medical genetics at the University of British Columbia. “And it’s terrifying.”
The funding freeze requires agencies to submit reviews of their funded programs to the Office of Management and Budget by February 10. The freeze follows separate orders issued last week to US health agencies—including to the National Institutes of Health, which leads the country’s medical research—to pause all communications until February 1 and stop almost all travel indefinitely.
The confusion is consummate. If the funding freeze continues through February, and even beyond, how will graduate students be paid? Should grant applications—years long in the writing—still be submitted by the triannual grant submission deadline on February 5? What does this mean for clinical trials if participants and lab techs can’t be paid? Will all that research have to be scrapped thanks to incomplete data?
Even if Trump fully reverses the freeze on research funding, the damage, multiple sources say, has been done. Although for now the funding freeze is temporary, the administration has shown how it might wield the levers of government. The implication is that withdrawing funding could be done more permanently, and could be done to individual institutions, individual organizations, both private and public. This won’t just set a precedent for the large East Coast or West Coast universities, but those located in both red and blue states alike."
Worrying times. Im not in the US but I guess that previously moves like this would have been discussed in congress and planned in phases but now the president decrees and it happens. So there's more confusion and supposition as to intention and effect, all round.
Research can likely continue in other countries but with funding cuts everywhere including the FDA and the FDA's past policies of only approving things that have been trialed in the US it is doubtful that these remedial items will be becoming available in the US in the near future and that is taking into consideration that it generally takes years for research to become available at all so here you have legislation that was passed to try to improve the time line for the release of new treatments and now you have a major kibosh on any of that
I think you will soon see the intended purpose for the freeze. The amount of misuse of funds, the flaws with the research, the Peter pays Paul that goes on within the government. I think you will see many new innovations and better healing modalities coming. It’s definitely past time to clean up our government in the US. Be patient and trust that God has this.
I think you are dreaming.
I agree with you! TOO much waste, abuse, corruption, insanity. Eventually we will hopefully be able to use this vast amount of monies towards much more research and lowering drug costs.
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If God had this, we wouldn't have a criminal in the White House. He's not cleaning up the government. He's making it worse. Freezing funding for research is inexcusable and wrong.
The man Dr. Prasad, doing this podcast is a doctor, a professor, a researcher, he has formally worked at these agencies. He is not pro-Trump, but he doesn't have Trump derangement syndrome.
These are all the benefits of decreasing (not eliminating) the amount given to NIH.
youtu.be/h1divkNhZlU?si=C6e...
Interesting, though he's made a lot of assumptions on the intent like bureaucracy money saved will be reinvested into more studies. Also that existing/ future studies won't be affected. Hopefully studies will continue with no detriment. We shall see.
I did like that his assumptions were based on his actually working in those environments, so had a working knowledge of what those bureaucrats and universities are like. At least he has that going for him.
"Canadian Parkinson's research is expected to continue and is actively being pursued through initiatives like the Canadian Open Parkinson Network (C-OPN), with a focus on improving patient outcomes, accelerating discoveries, and ultimately finding a cure for the disease by facilitating collaboration between researchers and patients across the country; this is supported by funding from Parkinson Canada and other organizations dedicated to Parkinson's research.
Key points about Canadian Parkinson's research:
C-OPN:
This network aims to pool data from different research centers to enable large-scale analysis and accelerate breakthroughs in Parkinson's research.
Funding:
Parkinson Canada provides funding for research projects, supporting promising young researchers in the field.
Collaboration:
The Canadian Parkinson's research community is collaborating with international organizations like the Michael J. Fox Foundation to further advance research.
Focus on quality of life:
Research aims to not only understand the causes and progression of Parkinson's but also improve the quality of life for patients. "
Go, Canada! Just be cautious on your southern border... 🟠
But, will this continue when Canada becomes the 51st state?🙂
The elephant in room is what are the efficacious PD drugs and remedies coming out of these organisations anyway? C/Levodopa? A few agonists thereof?
Personally I find MP powder better anyway. For me Dr Mitschly's meta-analysis work and the late Dr Wright's broccoli seed tea, TCM etc have more credibility and fewer contraindications.
Not sure its an unmentioned elephant. Alternative approaches are often discussed on here. I'm all for investigating alternative natural remedies. Especially in the absence, bar dbs, of any significant effective pharmaceutical development since cl in 1960s. However I'd still like to see medical science come up with something.
I could understand a review of study selections, process and accountability of outputs and how to speed up progress of studies. But just an unexplained direct pause/cut in funding leaves you wondering.
some have found benefits with focused ultrasound or DBS although I agree that the things you mention here are helpful and there can be benefit from autologous stem cell infusions
"Research overhead or indirect costs include expenses necessary to support research, which may not be attributable to a specific research project. Overhead costs provide general support for the university research environment. Examples include utilities costs, insurance, and research administration support services"
chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/queensu.ca/financialservice...
Listening to the words spoken by the administration and not the words of a left wing news organization, which it was discovered along with other outlets like Politico was receiving American tax dollars and has had it´s grand taken away, i understand this is a pause for auditing, wait and see.
Politico was receiving payments for subscriptions. If it comes out of Musk's mouth, it's wrong.
I’ll go there - Politico was fleecing the American taxpayer !!!! As was USAID!!!
Feigned outrage at MUSK is a typical leftist tactic. Where’s your outrage about the money that was actually being wasted on frivolous DEI and WOKE antics, and instead could have been used on real quality PD research?
Get used to it people - America is no longer the world’s “sugar daddy”. Petition your own government to spend “your” tax money and not mine on useless liberal programs.
To assume that all of these research facilities and researchers themselves are just gonna vanish into thin air because of this is ludicrous. The quality researchers that are really committed to their work will stay. Those that aren’t leave.
Mark my words - LEGITIMATE US BASED medical research and treatments will be even better and more well funded once this blood-letting is complete.
Couldn’t agree more with Zscaleplanet! Well said!
The assertion that “blood-letting” in both its literal and metaphorical forms has no consequences, overlooks the reality that undermining research funding can be detrimental to innovation and progress. Quality research requires stability and support, not arbitrary cuts to resources. Let’s focus on constructive solutions rather than getting lost in polarizing rhetoric. True progress for us global citizens comes from collaboration and understanding, not from tearing each other down.
Exactly. There seems to be a lot of assumptions from some folk that these actions are done to improve research. I've not seen/heard any evidence that this is an objective.
For me, it's not "polarizing rhetoric", it's personal. As a United States citizen, I am sick and tired of my own government (not to mention other countries and organizations) stealing my hard earned tax dollars and applying them to programs and charities (and in some cases terrorist entities) that I am morally and ethically opposed to. And I am not a lone voice in this matter, as our recent election demonstrates this.
And where is the outrage regarding the frivoulous spending that could have been applied to bonafide and legitimate medical research on Parkinsons for instance?
The collaboration and understanding you assert should be directed towards us, the American taxpayer by saying "Yes, I understand your justified anger at having your money stolen from you for such a long period, and in the spirit of collaboration, I will offer my own funds to support future research." Of which you may already be doing for all I know, and if so, then Thank You!
What is being exposed with the graft and corruption that is coming to the surface should anger not only Americans, but the global community as well. There was good money that could have been put to much better use than what it was, and at multiple levels. Might be wise to look into ones own country and see what wasteful spending is taking place there, rather than attempting to tamp down the justified anger that exists.
It is too early in this process to assume what research will and will not be affected, but does anyone really think quality research will just go away? Really? America always leads the way, and I am sure that once this graft and corruption is done being exposed, we'll pick up the pieces and once again lead the way with more than just medical research.
W O W!! The truth hurts. . .you said it all--wish I could add more. At lease I didn't donate to USAIDS during CFC, actually I didn't donate to any of these corrupted agencies.
Einstein and infinity. I'm not sure about the universe either. But leaving an orange toddler narcissist in charge of health care and drug development is going to inflict substantial damage. Hopefully drug development will shift to Europe and China progressively and leave the USA to its own stupidity. But its going to adversely impact the development of parkinsons drugs and other therapies in the short term. This is a UK forum and I suggest participants from the USA get used to the idea that the USA and it's government are not welcome in Europe and the UK
Stop believing the lies that two billionaires who pay NO TAXES, have felony charges and failed businesses are telling you about money and fraud...
every day now I hear from my friends in research about the chaos this is causing. Nobody in grant-funded spaces doubts there is waste but targeting things like women’s research and across the board funding costs without the input of subject matter experts, is crazy. They could have started anywhere, but they started with this? With SCIENCE? Then immediately followed by creation of an “Office of Faith” enjoy the new season of The Righteous Gemstones
They are doing what they said they would do. Which likely will include cuts to Medicare. The expected coverage for vyalev pump and perhaps DBS may become WAY too expensive for most of us. They want to return to allowing insurance companies to exclude or raise rates for "preexisting conditions", that includes us, my friends.
They have demonstrated a disregard for life by eliminating (or planning to eliminate or reduce) programs for the most vulnerable.
Their strategy is to overwhelm us with fear so we can't react. They even call it "shock and awe". Don't give up or give in...counter by taking care of yourself, and each other, your friends and family, your communities. This applies to all of us, whether we support them or not. The chaos and cuts and freezes and incompetence will impact all of us.
I'm trying to not consume network news, just a bit of news here and there, from independent sources. And spending time calming my nervous system with the tools i have.
IT IS BEST FOR EVERYONE TO AVOID POLITICAL POSTS AND REMARKS!!!!!!!!!! This is strictly a site where PD patients and care givers exchange views and ways to slow even reverse PD. Leave the POLITICAL COMMENTS to politicians! This is also addressed to the Administrator of this site. Thank you!
Unfortunately, everyone WAS discussing the impact and ramifications of the cuts to PD and or science studies. It would be difficult to NOT discuss this subject up front without involving politics. It is important to all of us to know what is going on. Not discussing it would be a failure of cognitive dissonance .
I would recommend that you joined a political forum rather than this site. The question about discussing politics on this site has been brought up several times. It is the administrator's responsibility not to post such discussions. In addition, not everyone here lives in the US, and the subject I would suspect is rather boring to non-US PwP.
For people who put the world at number 1 and not a particular nation, this is certainly not boring, on the contrary. I understand your concerns about political discussions and how they may not resonate with everyone. However, when we focus on people with Parkinson's, the decision of the U.S. to withdraw from the WHO has significant implications for global PD healthcare collaboration. Engaging in these discussions is essential for fostering a supportive and informed community..🌍🌏🌎
Well, if you want WHO to dictate to the world the kind of vaccines and frequency, I don't! People elect governments not the WHO round table where gates gets a seat . . . That is the reason the moderator of this site has to take this post down. Again, everything is irrelevant to what the majority of this forum wants to discuss.
I'd ordinarily agree about no politics.But occasionally science, health and politics meeet. When the political leader of the western world is taking massive unilateral actions that potentially affects work to find cures (Inc for the pd Community) then surely those political actions are relevant to open discussion of health impact. And many of these studies are internationally connected. However, it's the actions that should be discussed without the wider political posturing.
I’m not the least bit concerned
ChrisCPTPartner
Hello all,
We have been receiving reports on the political content of this post, but as the discussion has been primarily focused around the potential impact of cuts to funding on research, we see no reason to remove or edit any responses so far.
Please make sure to keep any discussions civil and respectful.
Thanks,
Chris
I did contact the moderator of this forum. Thanks, although I strongly disagree with your reply.
Thanks Chris for a sensible response.
Yes I agree with accountability and alle of that. I'm just hoping the US does resume funding in research,
They've discovered quite a lot recentlyE.g.
academic.oup.com/nsr/articl...
To tell the truth, I have nothing against the Chinese people who have a long tradition of humanistic civilization, which will allow humanity not to self-extinguish by means of the H-bomb created by governments that behave like crazy.
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