First of all - gotta say it -you guys keep me going! When I was first diagnosed I was DESPERATE - went into complete decline and slowly slowly I am emerging from it all.
I'm tons better than I was 2 years ago - better than I was a year ago - you all know how it is - ups and downs but its things like this forum that have helped save me- given me information to work with and encouragement and community- might not seem to contribute much but Ive been absorbing it all.
As a creative person - I've been looking for a way to talk about Parkinsons and I want to make that media piece I needed when I was diagnosed - its going to be computer based- online and contain information for the newly diagnosed as well as those who just want to know about the alternative treatments and thoughts on Parkinsons etc out there.
Ive been shortlisted for a travel grant to go to USA and India to research different approaches. Any ideas who/where/what I should visit? My dream list would include Dr Laurie Michley, Sarah King of PT Invigorate, the Brooklyn Rock Steady Boxing, Robert Rogers, Dr Mark Hyman or other functional medicine practicioner (any ideas?) any people who have sucessfully reversed their symptons.
In India I want to research Ayevedic treatments for Parkinsons - including an integrated treatment- yoga- meditation approach - anyone have contacts or suggestions for India?
Any of you guys in USA that would like to be interviewed?
I'd really appreciate your feedback - I'm very excited and know I can make something really good
Annie
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Annieartist
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i was recently diagnosed with parkinsons after dealing with fibromyalgia/chronic fatigue for 15 years. already exhausted. now i feel like i'm going in circles. would love to receive anything you write. the best advise i've received is from this group. i'm seeing my pd. nurse tomorrow. taking a list of questions that i've gotten from reading about meds to try and other options. will be interesting to see what she says. i have so many meds i'm on for so many illnesses that hate to add more meds but will do what need to do to survive. ps- i live in portland, or. if ever need a place to stay you are welcome to stay with us.
If you find the MO is helpful for your FM, then you might consider this homeopathic form of magnesium sulfate because forum members who have tried it say it is about as effective as MO, but much more pleasant on the skin! It is a foam that is not supposed to leave an oily feel that MO can impart. It is more expensive than the MO link above, but some feel the skin comfort makes it worth it.
Regarding Chronic Fatigue, Dr. Costantini found that B-1 could be helpful for multiple diseases that have fatigue as a major symptom and could possibly relieve some of the fatigue. This aside from the benefit he found for PD and B-1. The following study discusses B-1 and FM.
I’ve met Bianca Molle. She claims Qigong healed her. In my early posts I included a link to an NIH Study of a man who reversed his PD with meditation. (Here’s the link or if you click on my name you can find it). ncbi.nlm.nih.gov/m/pubmed/2...
I’ve had great success in reversing my symptoms, non motor symptoms reversed with B1, and motor symptoms alleviated with Dr Joe Dispenza meditation. Balance is now normal, gait disturbance is minor, tremor is mild with improvement. As Bianca Molle said, tremor is the most difficult and last system to reverse.
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Anyone has tried HIFU High Frequency Ultrasound for tremors? What is the approx. cost in USA? How do we get hold of a movement specialist?
Caffeine and Nicotine
what should I do?
Dat scan....
Respiratory aspects of neurological disease FREEMichael I Polkeya, Rebecca A Lyalla, John Moxhama, P Nigel Leighb
