If you make use of the promotion, I beg of you to please leave a positive review in Amazon to increase the visibility of the book.
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Parkinson's Disease (PD) is more than just a medical condition—it's a rapidly growing global crisis. Since 1990, the number of diagnosed cases has surged by 118%, with deaths rising by 150%. By 2040, over 20 million people worldwide are projected to be living with PD. Despite these alarming statistics, many PD patients feel that the available treatments, particularly levodopa, fall short of providing lasting relief and hope.
In A Protest Against Parkinson's, the author—himself a PD patient—delivers an unfiltered, deeply personal account of living with this challenging condition. He explores the frustrations many patients experience with levodopa, the so-called "gold standard" treatment, which often provides only a temporary respite from symptoms and comes with significant side effects. The book also sheds light on the unintended consequences of levodopa's early success, which diverted research away from finding a true cure for decades.
However, this book is not just about highlighting the limitations of current treatments. The author also offers hope. Drawing from personal experience and the latest research, he discusses alternative approaches that may slow, halt, or even reverse the progression of the disease. He shares how carefully selected supplements, lifestyle changes, and exercise have helped him reduce symptoms and delay the need for levodopa. Importantly, he argues that these methods can be used in conjunction with levodopa to enhance its benefits and improve quality of life.
A Protest Against Parkinson's is more than a medical guide—it's a rallying cry for those living with Parkinson's to take control of their health, explore new possibilities, and find hope in the face of adversity. The author also addresses common myths about PD, offers a brutally honest description of the disease, and shares the anger and determination felt by many patients, especially younger ones, who are demanding more from the medical community.
For anyone affected by Parkinson's—patients, caregivers, and medical professionals alike—this book is a must-read. It's a powerful testament to the resilience of the human spirit and a call to action for better treatments and, ultimately, a cure.
Written by
Lucas_s
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What you wrote here is not reality: "While dopamine agonists come with their own set of problems, they may be less serious than those caused by levodopa"
In your extremely short discussion of dopamine agonists you failed to mention dopamine agonist withdrawal syndrome ("DAWS"). Some people desperately need to get off of a dopamine agonist because of devastating impulse control disorder yet are unable to do so:
"Dopamine agonists ... may have serious side effects, such as orthostatic hypotension, hallucinations, and impulse control disorders (including pathological gambling, compulsive eating, compulsive shopping/buying, and hypersexuality). The most effective way to alleviate these side effects is to taper or discontinue dopamine agonist therapy. A subset of patients who taper a dopamine agonist, however, develop dopamine agonist withdrawal syndrome (DAWS), which has been defined as a severe, stereotyped cluster of physical and psychological symptoms that correlate with dopamine agonist withdrawal in a dose-dependent manner, cause clinically significant distress or social/occupational dysfunction, are refractory to levodopa and other dopaminergic medications, and cannot be accounted for by other clinical factors. The symptoms of DAWS include anxiety, panic attacks, dysphoria, depression, agitation, irritability, suicidal ideation, fatigue, orthostatic hypotension, nausea, vomiting, diaphoresis, generalized pain, and drug cravings. The severity and prognosis of DAWS is highly variable. While some patients have transient symptoms and make a full recovery, others have a protracted withdrawal syndrome lasting for months to years, and therefore may be unwilling or unable to discontinue DA therapy. Impulse control disorders appear to be a major risk factor for DAWS, and are present in virtually all affected patients. Thus, patients who are unable to discontinue dopamine agonist therapy may experience chronic impulse control disorders. "
Some seniors have lost everything - their homes, marriages, and their retirements, due to impulse control disorder. 50% of dopamine agonist users get impulse control disorder after 5 years of use. If you think DAWS is a rare event, think again. This was posted on this site just a couple of days ago:
"I was prescribed rotigotine (patch) 4mg/24hr, 4.5 months ago. I am starting to feel a little too amped up from it, including episodes of insomnia. Last week I tried to reduce it by trimming about 25% off one side. Two hours later I began to feel extremely anxious, panicked and put the trimmed off part back on, and haven't tried anything like that since...Parkinson's itself is hard enough to deal with, I don't think I have what it takes to deal with stoping this agonist right now."
Only four and a half months of use and unable to taper the dosage. Knowing this would you want to start a dopamine agonist if you did not absolutely have to?
Ideally you would withdraw your book from publication and revise it to include a complete description of the downside of dopamine agonists, as you have done with levodopa. I have no expectation you will do this. As it stands, I am very sorry but I'm going to have to give this a one-star review on Amazon.
I am very sorry to hear. I spent a year writing the book and it incredibly hard to cover all angles. I promise to include better coverage of this in v2 and I hope you will reconsider your rating. I am sure that in any book on PD not all topics will be equally well covered, after all
I do have empathy for your situation. I also have empathy for people who get into dopamine agonists without being fully informed and find themselves trapped in a living nightmare. Parkinson's itself is bad enough. I cannot stand by idly when people are discouraged from using levodopa and encouraged to try dopamine agonists instead without being given all the facts.
The agonists could cause a person with parkinson's to lose their money, their marriage, their home. At the very least there needs to be a caveat inserted when writing or talking about agonists
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