DBS tomorrow morning. 😵‍💫

[gingerj]

Its like waiting for the executioner. Fingers crossed I'll come through it ok and start the new year with improving symptoms. Im told it'll be a four hour operation and that I could be home next day.

Wish me luck.

[Nuthatcher]

🙏Saying a prayer for you

[gingerj in reply to Nuthatcher]

Thanks

[eschneid]

ginger

You will be fine. You are active and the surgeons can do this procedure with eyes closed, but they hopefully won't!! I am almost where you are at, so if you are up for it when feeling good, keep us posted. You Got This!!

[Charaf1959 in reply to eschneid]

Bonne chance

[gingerj in reply to eschneid]

Well i had my eyes shut. Im guessing they didn't 🫣 because its now done. Thanks for your positivity. It helped greatly.

[marcet]

for a better new life, all the best

[gingerj in reply to marcet]

Hopefully. Thanks

[Boscoejean]

hope this proves helpful

[gingerj in reply to Boscoejean]

Thanks

[Juliegrace]

Wishing you the best of luck and hope for a good outcome. I had wonderful nurses during my one night in the hospital and my husband stayed with me.

[gingerj in reply to Juliegrace]

Yeah it does help with everyone being positive

[Janlavelle]

DBS was a game changer for me! Excited for you 🙏

[gingerj in reply to Janlavelle]

Thanks. Hopefully iĺl see similar improvements

[Payparky]

I’m very happy for you to take this step. It was two years ago this week that I went through it. My older brother had resisted the surgery until he saw the difference in me. He’s now thrilled with his new lease on life! The success rates are beyond great you don’t need to fear. The tough part to prepare yourself for is waiting for the first programming session.

[BPW1 in reply to Payparky]

Good luck!!

[gingerj in reply to BPW1]

Thamks

[rebtar in reply to Payparky]

What happens during tbe waiting? You still take meds as usual, right?

[Payparky in reply to rebtar]

Yes you take your meds but you aren’t improved by the DBS device until you have the programming procedure. I had debilitating tremors and rigidity before surgery and adding in recovery from brain surgery it was difficult to sleep or function until I got programmed. But I was able to drive for the first time in 5 years after that. My handwriting capability returned and has actually continued to improve overtime. I was able to dress and shower etc! I’m playing piano again.

[Psalmody in reply to Payparky]

wonderful to hear !!

[gingerj in reply to rebtar]

Yeah meds as usual. Im told you come in off meds kn switch on day.

[gingerj in reply to Payparky]

Thanks.

[gingerj in reply to Payparky]

I'm looking forward to switch on now I'm through the surgery. Thanks

[Estherroy]

best wishes for a speedy recovery

[mach262]

Good luck! A good friend has just had it done and is happily rejuvenated!

[Zella23]

All the very best wishes to you for a successful operation and quick recovery. Well done for making the decision to go for it. Looking forward to hearing about the improvements to your life!

[huffers]

Wishing you all the best & look forward to following your progress. Where are you having your op? I have just been accepted for DBS in Newcastle. Be kind to yourself & hope 2025 is better for you.

[jeffmayer]

Another way of looking at it is your not going to be worse than you now so anything is an improve as I know life is a daily battle wwjith. This shitee conditionAll the best

[YoungPD-48]

Be positive, you will be alright😊

[Gumm]

Good luck ginger keep us posted

[LagLag37]

I just had surgery 13 days ago and there’s nothing to worry about. See my post DBS 12-17-24. You will be surprised. 🙏😊🥊

[eschneid in reply to LagLag37]

LL and anyone else.............

How was the neuropsychological testing and was it really 4 hours? Not looking forward to more torture after I just did another no meds night for an On/Off eval...........Thanks.

[LagLag37 in reply to eschneid]

The test was approximately 4 hrs. Most of it was not hard, you had to take your time and go thru it thoroughly. They will tell you some stories and you have to give them back information as you can remember. That was the hardest part for me. It’s important to stay calm, otherwise you’ll get too anxious. I think they aren’t real picky. You’ll be fine. I thought I had blown it but they said I did fine. I did all that worrying for nothing. 🙏😊🥊

[eschneid in reply to LagLag37]

LL.........Thanks so much, I'm always thinking ahead and worrying- many times for nothing. Will take your advice and not sweat it. Continue learning your new toy and feel better and better.

[gingerj in reply to LagLag37]

When i had mine it was really hot. The tests were done in a small room with no windows. I thought id failed too as i couldn't recall much and guessed most of it. I did get a low score but was told that this was within expectations. Must be low expectations.

[eschneid in reply to gingerj]

Thanks ginger........... glad things are finally going your way. I remember reading about dbs back aways and some felt improvement just from the electrodes, before turning on. Anyone getting lucky there?

[gingerj in reply to eschneid]

Not me. I still feel the tell tale signs of wearing off at the same times. Just hope that switch on works wonders.

[00Mark]

Good luck! This seems to be a successful procedure in most cases.

[gingerj in reply to 00Mark]

Thanks. Think that mine was a success

[Gallowglass]

prayers fir you. please keep us informed. All data pics feelings etc appreciated. I’m having it in Feb!

Crossed fingers

[hmm777]

Best of luck!

[gingerj in reply to hmm777]

Thanks

[DogsWoode]

You report in, Mr. Postman. We're all thinking of you.

[gingerj in reply to DogsWoode]

Thanks. Im through the surgery. Back to delivery soon enough. After powering it up and tuning it, starting in 6 weeks

[DogsWoode in reply to gingerj]

How are you feeling Ginger? How was it for You?

[gingerj in reply to DogsWoode]

Im not too bad. My head doesn't hurt it's just numb to touch. Weird. Looking forward to going home. Might not be tomorrow now I'm waiting for the final scan to check everything is ok.

[Husbandsupporter]

If you trust your surgeon, and will relax and let the medical team do their job, you’ll be okay. My husband the surgery the end of November and started yesterday with the “system” being turned on a very low setting for 3 weeks until he sees the Neurologist and start the process of tweaking the settings/ medications.

Watch your walking when you get released from the hospital. You will have been lying flat for 24+ hours— use assistance for the first week until your walking and balance are regained. But hope and belief this is the best thing— then attitude will be your cheerleader!

God bless

[gingerj in reply to Husbandsupporter]

You were right. Trust the medical team. They were all very confident and reassuring. Now on the other side i dont know what i was worried about.

[tandolino]

Praying that this will be great answer for you. Parkinson’s. Wish you all the best.

[gingerj in reply to tandolino]

Thanks. I hope so

[Lulover]

Prayers and positive thoughts being sent your way for a successful procedure and a wonderful new year!

I hope to be scheduled soon!

[gingerj in reply to Lulover]

Thanks. I hope your procedure goes as well as mine

[Canddy]

Good Luck!!

[gingerj in reply to Canddy]

Thanks

[Biscuit61]

good luck ginger wishing you all the best and looking forward to hearing how you get on

[gingerj in reply to Biscuit61]

Thanks. Not sure where in uk you are and how your husband is doing, but when DBS is offered take it. As far s the surgery goes it isn't as bad as it sounds. I imagine that the surgeons are all so experienced.

[peminc]

Be calm and carry on.and have faith in the team. You will be fine

[gingerj in reply to peminc]

You were right. And so far so good.

[rebtar]

Wishing you the best possible result! You are brave, it's normal to have some fear before such a big step!

[gingerj in reply to rebtar]

I suppose so. Didn't sleep much, but once i stepped through the hospital door. I was calm and positive . It was out of my hands.

[dvoranel]

May this be a miracle of new vibrant life and living for you. Sending love and good luck.

[gingerj in reply to dvoranel]

Hopefully. Thanks

[JLAS]

Lot success.

[gingerj in reply to JLAS]

Thanks

[kaypeeoh]

I was Dx'd with Pd four years ago. But I never believed I was sick and it took a long time before I was willing to take medication. Now I Rytary two or three times daily, mainly because the neuro and my wife's constant nagging. So I haven't been keeping up with the latest news.

If I understand this, a pump literally shoots l-dopa into a vein? The patient isn't involved? He doesn't push the plunger in? It happens mechanically? Not that I'm interested in what sounds like MAJOR surgery. Have I got this right?

TIA,

kevin

[gingerj in reply to kaypeeoh]

Not quite. DBS is where the neurosurgeon put electrodes into a certain part of you brain. And eventually a stimulation signal is applied.

[gingerj in reply to kaypeeoh]

Not quite. DBS is where the neurosurgeon put electrodes into a certain part of you brain. And eventually a stimulation signal is applied.

[InspectorPD]

Good luck . Thinking of you ..

[gingerj in reply to InspectorPD]

Thanks

[Amcarve]

Best of luck!!!

[gingerj in reply to Amcarve]

Thanks

[Erniediaz1018]

wish you all the best

[gingerj in reply to Erniediaz1018]

Thanks

[Lovevirk]

Dear,wishing you good luck and Happy New Year. You will b fine I m sure. God b with you!

[Lovevirk]

You will b fine dear. Have faith in team of meds and above all God Almighty.

Wishing you good luck and Happy New Year

[gingerj in reply to Lovevirk]

Thanks. The medics were all very confident and reassuring. Hope you have a great new year too

[gobills]

Prayers for you

[gingerj in reply to gobills]

Thanks.

[BG86]

go with the flow - calm; no panicking allowed….

[gingerj in reply to BG86]

I did just that. Once in the door of the hospital i was carried along o the conveyor of supportive people.

[MBAnderson]

best 2 U

[gingerj in reply to MBAnderson]

Thanks

[Waxbeans]

Wishing you well with good results!

[gingerj in reply to Waxbeans]

Many thanks

[gingerj]

Thanks for all the best wishes. Unbelievable support. The procedure went well. More like 6 hours followed by 3 hours asleep in recovery before being moved to a ward. My whole head feels numb but I've not needed any pain medication. Everyone st Salford Royal hospital from surgeons to cleaning staff have been helpful and supportive. Looking forward to going home tomorrow 🤞

Not sure what's under the dressing 🤔

[DogsWoode in reply to gingerj]

Ginger, you've given me your answer here! Yay! A good experience thus far. Feeling cared for and supported. How long before home? Are they giving you your meds while in there?

[DogsWoode in reply to gingerj]

Ginger, you've given me your answer here! Yay! A good experience thus far. Feeling cared for and supported. How long before home? Are they giving you your meds while in there?

[gingerj in reply to DogsWoode]

Hopefully home today. Day 3. Maybe tomorrow. Yeah i brought my meds with me to make sure. They give them to me as per the schedule i provided.

[LagLag37]

Good job! You made it!! 😊

[gingerj in reply to LagLag37]

Yeah I guess the worst part is done. Thanks

[eschneid in reply to LagLag37]

LL....... is eating food still competition for levadopa absorption or will electric charge when turned on change things, thanks.

[LagLag37 in reply to eschneid]

Don’t quote me but I believe it’s not as big a deal as it was before the surgery but you still take medicine so that doesn’t make much sense. That’s a good question for your programmer.

[Juliegrace in reply to eschneid]

I believe it is the same.

[gingerj in reply to eschneid]

My understanding is that DBS won't change anything to do with absorption of medication . The only difference might be some reduction in the amount of medication that i need to take. Hopefully.

[pdpatient]

gingerj I wish you the very best 💪👍

[gingerj in reply to pdpatient]

Thanks. I appreciate it.

[Bambin]

my DBS was the best thing to happen to me in 5 years!

[gingerj in reply to Bambin]

I hope to agree with you. Thanks

[JayPwP]

How are you now?

[gingerj in reply to JayPwP]

Im still in the hospital. Waiting to be discharged. For that they intend to scan my head to check everything is still where it should be. Hopefully today.

[JayPwP in reply to gingerj]

Don't worry... Everything is exactly where it's supposed to be 🙏🙏🙏

and this is the 100th reply...

Everything is great!!!

[DaveE66]

Prayers and thoughts with you for a successful surgery and recovery tomorrow. I’m 58 and am seriously considering this to help me with this stupid disease.

How long have you had it?

Best regards,

Dave. E

[gingerj in reply to DaveE66]

Thanks Dave. I was diagnosed in 2016 so over 8 years now and I agree it is a stupid disease. 😑