Want to help with Parkinson's research an... - Cure Parkinson's

Cure Parkinson's

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Want to help with Parkinson's research and have your DNA tested?

AnneW profile image
13 Replies

I received an e-mail from the Michael J. Fox Foundation about the "Fox Trials" which are clinical studies to find a cure or treatments for PD. The e-mail had a link to a research facility that is looking to do a DNA analysis on 10,000 participants, and they still need over 3,000 diagnosed PD patients. The participation is beyond easy. They will mail you a free kit, where you swab your mouth and mail it back in. 6-8 weeks later, you will receive your DNA analysis. There is no fee to participate.

I just ordered my kit. I'll do everything that I can to find a cure to this stupid Parkinson's Disease!!!!

If you want to check this out, here is the link:

23andme.com/pd/ (tells about the research)

23andme.com/pd/codereq/ (to order the kit)

One day I hope there is a cure for Parkinson's so all of us can get out there and enjoy life to its fullest.

~ Anne

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AnneW profile image
AnneW
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13 Replies
compucure profile image
compucure

Just to add - the kit is free for Parkies' people. Tony

I did it and found it kind of hard to understand.

in reply to

I meant the results were difficult to understand.

CheriH profile image
CheriH

I ordered the kit. I hope I did it correctly. We'll see. I agree with DiCan, it was hard to understand.

Gloria-John profile image
Gloria-John

we just got the kit yesterday. Haven't had time to read about it yet. But will this coming week.

Court profile image
Court

Just got my kit back from 23andMe yesterday but also have not had time to read it. Will do so and return it as soon as I can.

I am sure the gene research will prove interesting and only hope it doesn't throw up anything I would rather not know. But if it helps with research, it will be worth it.

DeParkiePoet profile image
DeParkiePoet

Did mine 4 weeks ago, still waiting for results, but I am encouraging all my friends, PWPs et al, to do it...easy to do by the way,...

tlongmire profile image
tlongmire

I did it about a year ago. I agree, the results are hard to understand and I am still getting periodic updates. But if it helps I'm for it and I don't really care if I understand it or not. My bad??? :-)

LizaJane profile image
LizaJane

I did a DNA test, it doesn't run in my genes. I feel it's environmental but that is my thought..not proven.

PatV profile image
PatV

What kind of results and what do you know about your family tree tht you didn't? I sent for it but NYS law prohibits me from mailing from New York State :(

gran5- profile image
gran5-

I sent them my saliva. At this point I figure why not? My knowledge of the world of research: lots of waiting, often incomprehensible, but! when they hit, wow. Maybe we will all be in the same protocol And have a party.

hilarypeta profile image
hilarypeta

Can you join in from the uk?

AmyLindy profile image
AmyLindy

What's the latest on 23&ME testing w MJFF - are they taking anymore 'eligible' participants? I'm writing them today however, these posts are 7 years' old!

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