I doubt anyone else experiences this but I thought I'd put it out there for some feedback.My symptoms always are much worse at home than any other place I go. It's a very odd observation but it's true and i cannot find out why that is! Being at home requires much more c/l than any other place.i go.
One may ask if i have a narrow floor plan containing many walls, narrow hallways etc.? No, i actually have a fairly open floor plan.
The only possible cause I can think of would be em rf waves.
I came across this article,/study but am lost as to what their conclusion was.
"Monitoring gait at home with radio waves in Parkinson's disease: A marker of severity, progression, and medication response"
. So i bought an rf detector ($300) and found no levels to be concerned of,; the readings were surprisingly low considering i live within approximately
1/4 mile from a cell tower.
Any suggestions on figuring this weird phenomenon will be great and I appreciate!
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Horse and carriage, perhaps? A bumpy train or automobile ride?
The 19th Century French neurologist, Charcot, famously observed that his patients were less symptomatic when they visited him at his office than when he visited them at their home.
He put it down to the vibrations experienced during the journey....and modern science indicates he was probably right about that.
The expectancy / anticipation of some socially rewarding time and experience gave them something to do, as well as the placebo reward of or anticipation of some sort of approval. Something instead of nothing or the dreary repeat, four walls syndrome, etc. also the anticipation of a story to tell upon arriving home. So things like secondary reinforcement and placebo effect.
"Relaxing" isn't all it's cracked up to be. Seriously. Too easy to fall into dwelling and ruminating, leading to turning down and hypersensitivity and distraction, until secondary reinforcement of the symptoms becomes more important as an engagement to fill the emptiness, and then you get into a bad cycle or self reinforcing cycle or, yes baby an expert might say, a "rut" (impressive technical term there), which is the opposite of placebo.
We are already sensitive enough to our symptoms without looking for them even more. Also what was that first law of thermodynamics or physics or something, and object in motion is likely to stay in motion? The car motor hates starting up, that's where most of the wear happens, especially from a cold dead start. Or your internal combustion engine, so much more fuel is burned on starting from a dead stop then if you were able to keep the vehicle moving without the stop.
Something like that. I'm constantly stir crazy, that's another way of thinking about it. I knew a guy who said he liked to do s&m at home, I asked him why, he said "Beats sitting around. " Plus "On a dark and stormy night, who wants to go out?"
Is there anything that perhaps is causing you stress at home? I know that when I feel stressed my tremor is definitely worse. At those times I try to do Yoga Nidra, a form of meditation which definitely helps.
Oh brother! "Is there anything that perhaps is causing you stress at home?" Sorry I just couldn't pass that up. You just gave out a straight-man lead-in to a Henny Youngman or Rodney Dangerfield joke.
I'm sorry but I'm not catching what you're putting down Holmes. Haha!I love Rodney Dangefield and know many of his jokes, but I don't get the reference.
Yea... At the stage my only hope is that crexont( richard, thank you so much for that as this is the first, i've heard of it!) is strong enough and able to take on my high dose of c/l and all of the wonderful side effects that it brings.(sarcasm? Pssh..nah..lol)or VYALEV pump asI'm in the meditation ian breathing both has sailed off unfortunately. Although I did try the wim Hoff morning breathing routine for a month? And unfortunately, it caused my tremors to surface earlier than normal. And I only know that, because when I stopped doing it. Which then I found myself taking additional medicine just so I could do the breathing treatments. So I quit and on day 3 my tremors arrived approx 30 min later.And just a disclaimer, I am not hating on or attempting to deter anyone away from Hoff and his guided breathing; It just wasn't for me.
radon? "According to current research, there is a potential link between radon exposure and increased risk of developing Parkinson's disease, suggesting that high radon levels could potentially contribute to worsening Parkinson's symptoms, although more research is needed to definitively establish a causal relationship; studies have shown elevated levels of radon decay products in the brains of Parkinson's patients compared to those without the disease. "
I also feel the symptoms of PD more when I'm at home, but that's because I'm more focused on my body. If I'm out and doing something else, my mind is distracted by external stimuli and doesn't care about internal ones. If I dance at home with good music, the symptoms disappear for a while even in OFF time. Movement and distraction help.
That makes sense! I do find myself having less intense symptoms, weather that be a tremor or dyskinesia When i'm round people.. mist of the time. It's like my mind is so scared to expose symptoms that my body takes over and calms down. And then the moment I walk into my house my mind and body release what they've held back and they are in overdrive! Tour There is not an amount of medicine that could help me only time(usually 1-3 hours)Thank you for your input Michelagvolpe!
Good morning. Just following up on some of these comments....and a similar association. My lovely friend who happens to have PD loves to travel. And she finds when she does her symptoms are much less. She does alot of walking and sightseeing and is very active. ...and happy. We have come to the conclusion that, for her, her dopamine levels get knocked out of the park.
I'm like your friend. When I travel, I also do a lot of walking and sightseeing, and there have been many times that I don't feel the need for Sinemet at all.
wow you hit a sore spot in my household !My husband has Parkinson’s and has had it for 10 years and I always question. Why is it as soon as we get home his symptoms worsen. He says he could feel it on the way home that his symptoms were getting worse and as soon as he steps out of the car and into the house, the shuffling is way worse !
I'm still trying to get my head around 3, 4, 5G or whatever, and the effects of WiFi and other man made radiation, including microwave and mobile phones etc.... but one message that I've received loud and clear from listening to Dr Dietrich Klinghardt's talks on available studies, is that it's vital for us to be turning WiFi off at night, and as much as possible the rest of the time, due to its inflammatory effects (through mast cell activation), how it decreases dopamine, affects the microbiome and detoxification enzymes as well as activating the autonomic nervous system. (I don't have PD but do have mast cell issues). Not wishing to be negative, but if your readings seem to low to be true, maybe you are getting false negative readings.
I actually have the opposite problem. When I go out socially my symptoms are worse. I think it’s because I get worried and anxious and then my symptoms are worse. I’ll trade you LOL
you could also be sensitive or allergic to things in your home such as cleaning materials, bedding, carpeting and an array of other things in your home. Try to find an NAET practitioner in your area.
I'm no scientist, but this happens to me as well. I feel that when you leave the house you are much more stimulated. Any movement is better than no movement when it comes to Parkinson's. When I travel abroad, before I leave, my Parkinson's can be quite bad, but as I travel around and I'm busy every day, my Parkinson's symptoms subside quite a bit. When I get home to my four walls and it's very repetitive they start to creep back in. This is what I have noticed with my Parkinson's.
I've noticed that my symptoms improve when I am engaged in an activity that involves movement. At home, I move less then when I am out and about, so perhaps movement helps symptoms. How might that work? One way might be by improving digestion, allowing more medication to be absorbed.
I can relate to that! I don't have any suggestions for you but just want to say that you are not alone. In my case, when I am home, I tend to hyper-focus on how my body feels. But when I'm out and about—socializing or engaging in activities like hiking—there's so much going on around me that my attention shifts away from myself to focus on everything else. Thats what I think.
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