Appears that sleep solves many problems a... - Cure Parkinson's

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Appears that sleep solves many problems and should be our first line of attack against PD

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29 Replies

Breathing, yoga and healthy boundaries: why the Army is taking a new training approach

usatoday.com/story/news/nat...

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pdpatient
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29 Replies
park_bear profile image
park_bear

I find that a chamomile capsule helps me to have uninterrupted sleep. Duration of sleep is the same but quality is better.

pdpatient profile image
pdpatient in reply topark_bear

Do you think chamomile tea would have the same effect?

park_bear profile image
park_bear in reply topdpatient

Probably, yes.

Boscoejean profile image
Boscoejean in reply topark_bear

do you have any opinion on the possible benefits of l-theanine in sleep?

park_bear profile image
park_bear in reply toBoscoejean

Don't know. Have not tried it.

Boscoejean profile image
Boscoejean in reply topark_bear

ok

Bracondale profile image
Bracondale in reply toBoscoejean

I find it very helpful! And find green tea or match, which also contain theanine really good during the day...energised (some caffeine) but zen (theanine).

rleedc profile image
rleedc in reply toBoscoejean

I have used l-Theanine, glycine and apigenin which has helped with.

Grumpy77 profile image
Grumpy77 in reply topark_bear

Hi PB, when you mentioned duration, do you have 8 hours uninterrupted sleep? Do you consider waking up to pee an interruption?

pdpatient profile image
pdpatient in reply toGrumpy77

I get 8 hours of sleep but I get up to pee twice a night. I don't consider getting up to pee is an interruption because I am fortunate enough to get back to sleep right after. I am going to try chamomile tea and see if it makes a difference.

I do keep my phone with me, so I sometimes tend to get distracted and end up screwing up my sleep. The article striking for me because if even soldiers require good sleep to perform at their best, we need to sleep as well. Gives me more incentive.

Grumpy77 profile image
Grumpy77 in reply topdpatient

Wait, since you get 8 straight hrs of sleep, what difference are you looking for? Is this about the quality of sleep like sleeping more deeply?

pdpatient profile image
pdpatient in reply toGrumpy77

Sleeping more deeply. I take Gocovri which needs 8 hours of sleep but if I wake up to pee, I take one look at my phone and I go down the phone addiction rathole.

Once upon a time, I would take Seroquel and would be flat out 8 to 10 hours and if I did wake up during the night, I would be too drowsy and go right back to sleep. Hoping that chamomile can do something similar.

park_bear profile image
park_bear in reply toGrumpy77

I get 5 to 6 hours of sleep. Likewise, I do not count getting up to pee as an interruption as long as I get right back to sleep. I make up for the lack of sleep with Qigong meditation and that seems to work.

Grumpy77 profile image
Grumpy77 in reply topark_bear

What do you think about segmented sleep? I thought I was doing well with sleep until my smart watch told me I was doing very very poorly and says I'm likely to be in a very poor mental health condition, bcos ever since I got it, the most sleep I've got at night is 4hrs 46mins. No matter how much I try, the most I get is 4 hrs+. But if I combine my daytime nap time with night time sleep, it could add up to 6 hrs+... AI and google tell me that segmented sleep disrupts my circadian rhythm and my GP says I should starve myself of the afternoon nap to force the night sleep to be longer. Good point and advice but the algorithm and my GP fail to take into account the travails, battles and struggles a PwP like me fights with fatigue on a daily basis- it means its difficult to stop myself from napping off in the daytime (it happens occasionally, but making it regular is impossible)

park_bear profile image
park_bear in reply toGrumpy77

That is exactly it - all the well-intentioned advice is not cognizant of the challenges. It sounds like your nighttime sleep is like mine - there comes a time when I'm awake and done sleeping. Awake and done, does not matter if it is 3:00 a.m. It's actually okay with me because this is when my mobility is at its best. I take care of whatever there is to be done and then settle down to meditation.

I have not been needing daytime naps recently, but there have been times when daytime naps have been a must. At such times it is either take a nap or battle exhaustion.

Hele60 profile image
Hele60 in reply topark_bear

What chamomile capsule do you take please?

jocelyng profile image
jocelyng in reply toHele60

My question, too! I always avoided the tea because i definitely have trouble falling back to sleep if i wake up for any reason.

park_bear profile image
park_bear in reply tojocelyng

amazon.com/gp/product/B09QP...

Esperanto profile image
Esperanto

The challenge with PD is that insomnia is one of its symptoms for most of us, making it difficult also for me to improve sleep from less than 3 hours to 4 hours, even with the help of supplements. The good news is that, from my own experience, I've noticed that as my overall PD status gradually improves, my sleep quality also enhances automatically. There is clearly a reciprocal relationship at play here.

Sleep promotes dopamine production to some extent, which helps alleviate symptoms and leads to better sleep. I've managed to achieve about 6 hours of sleep per night, including a reasonable amount of deep and REM sleep—thank you, Apple Watch!

Indeed, the more sleep I get, the better I can manage my PD. Stress avoidance is my top priority, but improving my sleep comes in a close second, even ahead of nutrition, exercise, and other lifestyle adjustments.

jocelyng profile image
jocelyng in reply toEsperanto

The question I have is how you improve your sleep.

Esperanto profile image
Esperanto in reply tojocelyng

I recognize that everyone has their own approach, but alongside typical PD lifestyle improvements in moderation, I engage in as many outdoor activities as possible, even in winter. We live partly in the city but rent a garden plot in a community garden, where I'm typing this message in the winter sunshine.

I refrain from eating for four hours before bedtime, including snacks, and I enjoy a herbal sleep tea from my own garden not too late in the evening. An hour before going to bed, I shift into sleep mode with 0.5 mg of melatonin and a magnesium complex, followed by a light Qi Gong exercise and three minutes of coherence breathing. After that, I spend half an hour of inspiring reading (book!) in dim light. Voilà! 😴

Edge999 profile image
Edge999

going ketovore increased my sleep alot. Went from 6hrs to up to 9hrs a night. Still broken but mainly from 5am onwards . Will try adding camomile tea

LAJ12345 profile image
LAJ12345

but not too much sleep…

Farooqji profile image
Farooqji

Inability to roll over in the bed , rigidity and slowness are factors that badly affect the sleep

Bracondale profile image
Bracondale

(Not got PD do have mast cell issues) Definitely found that if I don't overdo things in the daytime and do 25 mins yoga nidra mid/late afternoon ie keep 'stress', and therefore cortisol, as low as possible, then ADH (anti-diuretic hormone) would seem to increase and I can get through the night without needing to wee. I also try to be very mindful of fluid intake a few hours before bed.

rebtar profile image
rebtar

Same, if i overdo, sleep can be badly affected. But i also have had the experience that if im really engaged like doing things for/with grandchildren over the holidays i also sleep better. Its too easy after a "good" night to expend all that good energy and overdo (including thinking too much), resulting in poor sleep. The trick seems to be, finding that balance...

barrie1757 profile image
barrie1757

Goah, I have to agree. For me sleeping in till 9am makes a huge difference. We may beed that extra sleep! Feeling much more energized!!!!

coffeewithcream profile image
coffeewithcream

Before going to bed I usually massage my hands focusing on areas shown in this reflexology video

youtu.be/SSUFQv7QY4Q

I do believe this helps me sleep.

coffeewithcream profile image
coffeewithcream in reply tocoffeewithcream

That was the wrong video. Hopefully this is the correct one.

youtu.be/ZJs3kkmrxh8

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