Parkinson's "Flare-Ups" or B1 Overdose

[dancer741]

Although I've read that Parkinson's doesn't have flare-ups, medical professionals seem to think we do have bad days and good ones. I tend to have times (many days together) when I hardly notice any tremors, which are my most obvious symptoms, and other times when my hand starts flopping around, and I worry that I've gotten to that point where things get worse very quickly. Is this typical for Parkinson's? I know we're all different, but I haven't seen or heard anything like this.

If anyone else experiences that, and you're on the B1 therapy, how do you tell the difference between the "normal" ups and downs and a B1 overdose. The overdose doesn't sound like a life-threatening emergency, and I wonder if it's different than my "flare-ups". I'd really like to try the B1. but I'd like to know about this first. My neurologist PA told me not to do the B1 without testing too low (big surprise) so I don't think I'll get a helpful response from her. Anybody out there who can help?

[park_bear]

My symptoms do fluctuate for any number of reasons, including stress and the amount of time I am able to devote to exercise. I've been on the same amount of high dose thiamine for years. Most medical doctors will only recommend treatments that have passed large expensive randomized controlled phase 3 studies. In most cases prescription medications are the only treatments that have passed such trials. For more information on high dose thiamine see:

b1parkinsons.org/

healthunlocked.com/cure-par...

healthunlocked.com/cure-par....

facebook.com/groups/parkins...

My indications of too much B1 were quite different from Parkinson symptoms so there was no confusing the two.

[alaynedellow]

I agree with Park Bear. I have better days and think that is just fluctuations in normal body.

The OD with B1 is totally different and I know it's a diference. My main OD symptom is internal fluttering which I don't get on bad days with PD.

There is lots to research here on and I don't regret finding it for one minute. It has been most helpful.

[Dap1948]

if you’re thinking of trying the B1 therapy may I suggest you join our Facebook group where questions will be answered and support will be given.

facebook.com/share/g/15aewf...

[dancer741 in reply to Dap1948]

Hi, Daphne. I actually thought that's where I was posting.

[Dap1948 in reply to dancer741]

This post is on health unlocked, which is a Parkinson’s forum. If you click the link, you can join/post on the specific Facebook group for B1.

[pearlette]

I felt instinctively that I would be sensitive to B1. So I started with 100mg. Went upto 400mg but actually felt jittery on that.About 100mg three times a week is good for me .

Energy

Better sleep

No night trips to the bathroom

My off dystonia and on dyskinesia are not affected.

Still worth it for me