Anyone had good experience with Carnivore Diet?

[CV119]

Just ran into this video of a lady with agressive PD who was able to improve her symptoms to a great extent. Anyone here tried this diet and would mind sharing their experience?

Link below

youtube.com/watch?v=Ty5l5ZF...(Not working as expected?)

[JayPwP]

Video not working

[CV119 in reply to JayPwP]

Thanks for the headsup. Let's try it again. youtu.be/Ty5l5ZF10qY?si=VDk...(Not working as expected?)

[JayPwP in reply to CV119]

Working now

[DEAT]

If we believe this lady (and no reason not to) this is a life changing turn around in her health.

The more I read the more overwhelming are the choices.

More medication - less medication -

keto diet - carnivore diet - fasting - intermittent fasting - exercise - fast walking - supplements - dairy - gloves - light therapy - blah blah blah.

Save me lol

[michelagvolpe in reply to DEAT]

everybody is different: for someone keto diet works, for some others not, but light therapy works... and so on....

Parkinson' symptoms are different in everyone. We have to work to find our best therapy.

[PDinAZ2024 in reply to DEAT]

There actually is a reason to be a bit skeptical since the video is also a commercial for the interviewer's business. Sorry but I tend to be a bit cynical when there's money involved. That said, I've heard others who have PD also tout the carnivore diet. I've not heard a reputable doctor / neurologist recommend it though. They all emphasize the MIND / Mediterranean diet.

[TheGimba in reply to PDinAZ2024]

It's important to be skeptical. I'm always interested in remedies that don't cost anything....Fasting works with our budget LOL

[BeedieBird]

Interesting

[Payparky]

I have been on the Carnivore diet over 4 months now. Diagnosed in 2018, I followed a no sugar, low inflammatory diet for 6 years , keto for 6 months then switched to Carnivore. I had DBS surgery in 1/2023. I have begun to see changes in the last few months. Pain from neuropathy in my legs and restless leg syndrome have gone away. I am able to fall asleep at night. My finger and toenails have gone from chipped and easily broken to solid and hard. My body has begun slimming down. My brain is less foggy. I don’t get cold as easily. My mood is improved. My energy is more sustained. Everyone’s body is unique. My system has been sensitive to sugar and refined carbs all my life. I think I would most certainly have been an alcoholic if I ever started drinking. I don’t smoke or drink.

[CV119 in reply to Payparky]

Truly appreciate your input. Can you share your experience with DBS? I know it's been around but has it been seamless? Does the device that is implanted have a limited life? We're reading about it, but at first glance seems quite intrusive

[Zardoz in reply to Payparky]

Meat, especially organ meat is high in purines. Have you had any problems with gout?

[Payparky in reply to Zardoz]

I don’t eat sugar and have no problem with gout . No swelling of limb and neuropathy is gone.

[Payparky]

Boston Scientifics is the brand I had implanted. The battery lasts 20 years. I charge the battery weekly. The surgery is intrusive in the fact that it’s brain surgery but after healing it is not noticeable to others. I have a small bulge on my left front chest area where the battery is placed. I can trace the leads from there up my neck to the side of my head where they end at the two pins on top. None of this is visible to others. There’s no discomfort after the healing is complete. I did notice a few tingling effects in my skull while nerves were healing from the surgery. The most uncomfortable time for me was between surgery and the first programming. My tremors and rigidity had been debilitating but since programming I basically had my life back again. Drove my car for the first time in 5 years.

[CV119 in reply to Payparky]

Thank you a bunch for your detailed experience description. Did you have issues with off-time or freezing prior to the DBS? If so, did DBS helped?

[Payparky in reply to CV119]

I had off time but no freezing before surgery. After surgery I quit taking Amantadine entirely (which I had been on for 3 years) and started taking extended release C/L. That eliminated dry mouth, low blood pressure and the “marbled veins” look on my arms and legs. I also wanted to reduce the anti-cholergenic effect by reducing this medication. My off time now is minimal. I think the ER C/L helps. I take one every 5-6 hours. Less needed evenings and while sleeping.

[38yroldmale]

Been on for 5 months. My worst symptom anxiety and depression almost completely resolved. I think very soon. I’ll be able to come off c/l (didn’t work all that great for me) I’ve been ramping up my nicotine to replace it. Nicotine works better for me. I will be eating this way the rest of my life.

[india245 in reply to 38yroldmale]

How much nicotine are you using, and how much do you think you might go up to?

I am slowly increasing my dose, but it makes me feel nauseous every time I do, so I have to take things slowly.

[38yroldmale in reply to india245]

I like to use gum because you can sorta control the release by chewing. I keep it under my lip and chew every couple of minutes.

[CV119 in reply to 38yroldmale]

Thank you so much for sharing your story. Do you know of a good youtube channel or any online place you follow for recipes? So on carnivore there is no carbs allowed from what i read, so not even fruit?

[38yroldmale in reply to CV119]

I dunno about recipes. I eat mainly beef that I have got from a local rancher. What’s weird is that it taste good when I’m hungry and then when I have enough it doesn’t taste as good. Look up Dr Berry and Dr Chaffee. They are some genuine fellas that make a ton of sense. Make sure u eating plenty of fat, especially animal fat. Good luck.

[queenlt in reply to CV119]

You are allowed: Beef, butter, bacon and eggs.

I lost 25 pounds in 2 months and felt great but the limiting menu was not sustainable for me and I moved to keto (which is also hard). From there I went gluten-free and fixed my belly with homemade fermented dairy (yogurt) and pre/probiotics and try to maintain the keto diet. I've only regained 5 pounds in 2 years. 74yo FWP

[parknew in reply to 38yroldmale]

Do you have any thoughts on how long it took for things to improve initially?

for example 7 days 21 days 30 days or has it been a gradual nonstop Improvement in many symptoms the longer you go?

in regards to Keto or carnivore

[38yroldmale in reply to parknew]

After the adjustment period, it started very slowly and seems to be still working. I can more easily ignore symptoms. I can get back to life. I take less meds and feel better.

My PD is highly mental. Everyone I know including myself that has Parkinson’s are overthinkers, ruminators etc. This helps more with the mental aspect which in turn leads to improved physical symptoms.

[TheGimba in reply to 38yroldmale]

Hey, so glad you're still on here. How much nicotine are you using now? Are you full on carnivore? Hubby is chewing 4mg. when needed but I think he needs to take it more regularly. He's walking for a couple of hours a day and has a keto diet which is great but I can see his decline with less gum over the holiday. Mentioned to neurologist and GP. GP described in detail why nicotine works. Unfortunately he didn't feel the need to mention this 12 years ago when the side effects of traditional meds almost destroyed our family. Neuro said that they haven't done any studies with nicotine. I guess they're busy...

[38yroldmale in reply to TheGimba]

Yep, still here. I am still narrowing my nicotine dose down. Got carried away a couple of days back and got sick. Less is more for me.

[Edge999]

Been on it 4 months (less than 20g carbs) . All non motor symptoms 75% better. Tremors a slight improvement. Everything moving in the right direction. The closer I am to 0 carb the better. Im never going back.

[CV119 in reply to Edge999]

Thank you kindly for sharing your story. Did you have freezing/off-time before? Did the carnivore diet help?

[parknew in reply to Edge999]

Do you have any thoughts on how long it took for things to improve initially?

for example 7 days 21 days 30 days or has it been a gradual nonstop Improvement in many symptoms the longer you go?

in regards to Keto or carnivore

[Edge999]

i didnt have freezing. im currently not on meds, came off them a month ago.

Its been very subtly slowly improving for everything but mainly non motor symptoms seem to improve fastest. Motor symptoms seem to be the most resistant to change but i think it is very very slowly improving too. I think stress, sports, socialising also all make a slight difference but for me the main culprit is food specifically carbs and sugar. Only more time will tell but i feel better which is positive!!!!