Making Perkie Smoothies with fruit, mostly berries, some banana, little honey and almond milk:
NO DAIRY
That includes these powders
1. CoQ10: Some studies suggest that Coenzyme Q10 (CoQ10) might help improve mitochondrial function and reduce oxidative stress, which could be beneficial for Parkinson's patients.
2. NAC (N-Acetyl Cysteine): NAC has antioxidant properties and may help reduce oxidative stress and inflammation, which are thought to contribute to Parkinson's disease.
3. Creatine: Creatine is known for its role in energy production and muscle function. Some research suggests it might help improve motor function and slow disease progression in Parkinson's patients
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PHILCAM
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Yes - a personal project since my wife has been diagnosed with atypical PD
I have been following forums and using AI software
I see alot of people here asking others what their experience is - getting feedback from others in the same community helps me verify what the heck I am doing - am I on the right track here - generally speaking?
So here is another thing we do in the morning before breakfast
We have a B vitamin regime - which I learned from AI and PD forums
The MD response can be even worse, as in being in denial of the adverse effects of too much levodopa: healthunlocked.com/cure-par...
Also they are not likely to ever recommend a non prescription disease modifying substance, because these have not passed large expensive randomized controlled Phase 3 trials. It only makes financial sense to run these for high-dollar prescription meds.
Google search footnotes their AI results with links to source material, which I regard as mandatory. Compendium of AI foibles here: healthunlocked.com/cure-par...
I am looking for expertise and community experience to validate possible treatments
I highly interested in starting organic mucuna bean powder but still studying user's experience and advise from experts (if there are any out there) - I am looking for information now -
We are fortunate to have a GP who is very interested in PD - he also uses alternative non prescription supplements along with prescription meds. It was him who worked with me and then our Neuro to get PWP off pramipexole and entacapone. They are out there but very thin on the ground - we hope he never retires - lol
As a side note, do know that if you blend fruit, you will lose most of the fiber (which we so desperately need), and it makes your blood sugar levels go up way quicker than normal because the fiber is not able to slow down the intake of sugar. It's better to blend things with vegetables rather than fruits, as they contain less sugar.
Thanks for the veggie tip - trying to get something that she likes to transport the supplement - she always liked smoothies - blue berries for anti-oxidants and banana for fiber
The brain is mostly made fron fat and the brain can run on glucose or ketones, but you don't want too much sugar in the blood because it stops the cells from using ketones. youtube.com/shorts/ezf7Qx_J...
Why not a mix of both? The vege would cut back the need for too much sugar. My PWP is a sugar freak and loves his dairy and meat - doing well on all of it - just keeps his meds away from food intake.
I make my husband a smoothie almost every day. I start with crushed ice coconut milk, flaxseed, frozen fruit Ceylon cinnamon scoop of greens avocado sometimes sauerkraut a good protein powder and then I add all his supplements which include omega-3‘s vitamin B one B12 NAL and a few more that I can’t think off the top of my head. He’s 11 years into his diagnosis and doing pretty darn good.
i’m not sure your point? I put one scoop of greens in it. These greens come from Dr Livingood’s products. I don’t put fresh vegetables in it. He gets plenty of vegetables with his meals.
I said that it wasn't all about Veg. Note what he says near the end about eating things as they come out of the ground and not processing the in any way.
All the (full fat) dairy you want and NO SUGAR. (That includes honey and banana. Though I happen to think a few berries are OK.)
IMO it is a good way to disguise supplements!
Coffee is also, since it's naturally a little bitter and easily hides powders that are a little bitter themselves. Most supplements can tolerate heat for a little bit, though I try not drink it scalding hot. I add a tablespoon of unsweetened cacao powder plus monkfruit plus bocasweet to taste...plus a lot of heavy cream.
well, it depends on what you consider more likely to be the cause of Parkinson's disease.
The last hypothesis is that it is a disease linked to a lysosomal disorder that favors the accumulation of ASynuclein. In this case the information and its relative importance varies a lot and in my opinion neither 1, nor 2 nor 3 will have any effect, but I am not an expert.
The relative importance between the information cannot be evaluated by an AI or a survey but only by competent people who know the situation from which the information itself derives, not by me for sure..
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