Voice recovery: youtu.be/JwQcXC3v-JU?si=X5l... - Cure Parkinson's

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Voice recovery

jeeves19 profile image
45 Replies

youtu.be/JwQcXC3v-JU?si=X5l...

something very odd happened to me yesterday. I got so tired of the itchy eyes, nose and roof of mouth that I took several anti-histamines during the day. Not only did these symptoms improve but my voice appeared to have returned. Bass of Spades was consoling a couple of days ago as I probably wouldn’t be able to sing properly again. Fear not Bass. Here’s me murdering an Elvis B side. Enjoy 😂 or laugh at my gallant effort!

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jeeves19 profile image
jeeves19
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45 Replies
opera1968 profile image
opera1968

It's all there: good voice, good intonation, good rhythm. I am following your story with admiration. Good luck with DBS.

jeeves19 profile image
jeeves19 in reply toopera1968

Thanks. I’m not really a singer, just a guitarist who can knock one out now and again. But I appreciate your compliment.

bassofspades profile image
bassofspades

As we say in southern USA, YEEEEHAWWW!

bassofspades profile image
bassofspades

Dude! You look amazing!

jeeves19 profile image
jeeves19 in reply tobassofspades

Stop it Bass!

Daisies22 profile image
Daisies22 in reply tojeeves19

And you sound amazing!Very impressed with your quick recovery!

All the best! 🍀

Marcomando profile image
Marcomando

yay! Way to go Adam 👏

Gymsack profile image
Gymsack

AHHHH recovering nicely I see and it appears the operation was a great success.

It was a long chapter in your story but you made it .

A story of hope and determination and community.

be happy

Jim

jeeves19 profile image
jeeves19 in reply toGymsack

Thanks Jim. Although switch on isn’t actually until Friday. But you’re most kind. Beneath the warmth and congratulations, I reiterate the point: anti-histamine has restored a voice that hat was ‘dying’ due to what i presumed was PD. Maybe it could help others?

Gymsack profile image
Gymsack in reply tojeeves19

My first Neurologist told me that before L/C both alcohol and antihistamines were used to treat PD. The effect of both wore off more quickly as it was used and became less effective. He said I could have a couple drinks a day if I wanted but he recomended I have just one and save the effect so that I could use it when most needed, like dancing with my daughter at her wedding. I use a nasal spray twice in both nostrils before bed and breath freely all night plus it is known to cause drowsiness .

Gallowglass profile image
Gallowglass in reply toGymsack

What kind of nasal spray?

Ripraniya profile image
Ripraniya in reply tojeeves19

Iam very happy that you have got back your voice Jeeves. Well done. Keep going

jeeves19 profile image
jeeves19 in reply toRipraniya

Thanks Ripraniya. Might be just temporary but we’ll see.

BigTexan profile image
BigTexan

That is great your voice is coming back! Nice job on the Elvis song

jeeves19 profile image
jeeves19 in reply toBigTexan

Hi Big T. Indeed. Leo’s 2 staples have never and will never be surpassed. Beautiful creations.

Farooqji profile image
Farooqji

I bet you would have been more successful as a singer as compared to teacher

jeeves19 profile image
jeeves19 in reply toFarooqji

Ha! I wish friend 😊👍

JJAJJ profile image
JJAJJ

wow amazing, well done, loved that x

jeeves19 profile image
jeeves19 in reply toJJAJJ

Cheers!

Zella23 profile image
Zella23

Brilliant! Loved it, excellent finding the antihistamines helped. Nothing wrong with your voice! Good luck for the switch on!

My husband still swears alcohol helps him! Well we both did the Wordle in 2 today something must be helping! No change in Meds but a boys trip to the pub last night! 😁

ForViolet profile image
ForViolet in reply toZella23

Thanks. I hadn't heard of the alcohol possibility.

RonB1 profile image
RonB1

From one guitar player to another - keep on rockin' !

Thanks for the advice on anti-histamines.

jeeves19 profile image
jeeves19 in reply toRonB1

Thanks Ron

134A profile image
134A

Great sound! Keep it up!

jeeves19 profile image
jeeves19 in reply to134A

Many thanks 🙏

Good for you! Keep on singing, keep on using your voice, maintain your breathing, your volume, your pitch variation. Rotate songs, but keep on singing!!

jeeves19 profile image
jeeves19 in reply to

Cherry SLP

MacJacMaconGA profile image
MacJacMaconGA

I'm very interested... which ones and how much? My mom has Pisa syndrome with her Parkinsons, and I think it is related to some of the medications causing an imbalance with dopamine and acetylcholine. I think there is too much acetylcholine which causes the muscles to stay contracted. Maybe the same would be true for the voice muscles. I also gave her an antihistamine (Benadryl 50 mg at night for a few days) because Benadryl is anticholinergic. The Benadryl has caused her to be too tired during the day, but it did seem to help with her tight muscles, and she was sitting up straighter. I would love to know more about what you are doing.

LeharLover62 profile image
LeharLover62 in reply toMacJacMaconGA

That’s great news! But please do be careful about Benedryl use if there is any risk or sign of cognitive impairment.

PalmSprings profile image
PalmSprings

Awesome! You sound great!

jeeves19 profile image
jeeves19 in reply toPalmSprings

Thanks very much 😊

LAJ12345 profile image
LAJ12345

love it😀

jeeves19 profile image
jeeves19 in reply toLAJ12345

Appreciate it. 😊

Mac-10 profile image
Mac-10

That’s bloody impressive Adam! You also look more than good enough to be up there doing gigs now. If I didn’t already know and someone told me you’d just had DBS, I honestly doubt I would believe them. Re my own pending op, I’ll ready admit that I’m sort of vicariously adjusting to it through you. Of course I know we’re all different and it would be foolish of me to try to draw close equivalents, especially as we know it doesn’t work out for everyone. But then, research papers and cold stats aside, what have we realistically got to go on other than the actual experience and testimony of others we identify with? The way you’re pulling through (and sharing) your DBS journey to date is a massive assist to me, and I imagine others in-line for it. Thanks again Adam.

PS. rooting for you Friday although I guess important to realise it’s just the start of the programming stage?

jeeves19 profile image
jeeves19 in reply toMac-10

Well much of this is a window in time eh Malcolm. I mean what you’re seeing is me on full meds that are working for 1.5 hours? So yesterday a friend came to see me and we went for a walk. I was reasonably ON when I left the house. I took 2 Madopar just in case. Arrived at the park and started to feel like shi*. Of course I’m thinking ‘well what’s happened to those Madopars?’ I limped along feeling increasingly weak, looking vulnerable and possibly a bit ridiculous. ‘Dave, I can only apologise. The drugs work for most of the time but (and I have to say this through gritted teeth whilst imagining I’m holding onto some annoying child’s collar but whose head is going to get slapped the moment we’re alone 😂), sometimes they just don’t. Even on a totally empty stomach. I can’t explain it’.

So it’s not all a super success in my life. Last night at dinner I fed myself with my better hand but was trembling as I placed each fork into my mouth (and did I get a vibe of teenage daughter looking/feeling disgusted at her dad who just wished he was normal?).

But looking forward to tomorrow Malcolm. Just hope that I don’t come back with a weakened voice and/or imbalance. Time will tell.

Adios

Ghmac profile image
Ghmac

Chair dancing here!!!!

ForViolet profile image
ForViolet

Thank you for this! It's wonderful to see your happy report. Glad I came by!

My husband has prostatitis and stopped taking antihistamines but I've sent him what you said. Maybe he can get some help with his voice by taking a low dose at times.

It did make him tired when he used to take antihistamines at bedtime. But if it helps with voice, and it makes sense that it would, then that's so important. Thanks again

Violet

Kwisatz profile image
Kwisatz

Please describe what kind and how much antihistamine you used? Thousands have already asked!

jeeves19 profile image
jeeves19 in reply toKwisatz

Piriton (chlorphenamine maleate), 4mg x2 daily

Kwisatz profile image
Kwisatz in reply tojeeves19

Thanks!

gingerj profile image
gingerj

Good luck tomorrow. Hope everything goes well for you.

jeeves19 profile image
jeeves19 in reply togingerj

Thanks Bro

eschneid profile image
eschneid

Been in & out on HU last few months, but here now to wish you great success at every step of the process. Feel Great....if you sing again, I request a Beatle tune🎵

MBAnderson profile image
MBAnderson

jeeves,

Have you an update out an update on your DBS recently? How U doing?

jeeves19 profile image
jeeves19

Hi Marc. Physically big improvement but still suffering a bit vocally. First proper tune up on 6th November. I seem to have developed an allergy recently! Although my GP laughed at me when I suggested so, I can’t help thinking that this allergy started right after implantation. A long shot but it’s a drag! 🤔🤧😥

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