losing weight

[Sandmanliz]

does anyone have any tips on timing with eating and your meds. If I eat too close to my meds, they don’t work and I feel awful. But I am losing weight because I am eating much less. 40 pounds in the last year.. needless to say I was a little chubby. But now I’m getting a little too thin. I’m also starving all the time. I am eating much healthier but should I go back to Captain Crunch? (Ha)….. that’s the constant effort to keep a sense of humor.

[bradykin]

Regarding timing of food and meds, I find I can eat what I want, when I want it, as long as it doesn't contain protein.

I eat almost all of my protein after the last C/L dose of the day.

[Juliegrace]

I’m having the same problem, regardless of what I eat. I’m eating at odd times.

[eltoro]

yes, you must eat protein to maintain your weight. I eat 45min after taking meds. Good luck

[Allypally49]

Parkinsons.org give you guidelines.My wife using Echodot ( alexa) to reminder of the times.

30 mins before eating any protein or 2 hrs after a high protein intake ( a big steak or half a chicken)

A low carb diet ( not keto) may help you as although you cut out wheat, pasta, all sugary things ( you can eat low carb bread, just aim for as low as possible, about 9gm of carb per slice)

You can eat, fish, meat, eggs, chicken, at least 70% dark chocolate, cream.

Do not use ANY vegetable oils, olive oil, avocado oil, coconut oil are OK. YouTube Nina Teicholz- vegetable oils: The unknown Story.

[Parkinsunny in reply to Allypally49]

why no olive oil??

[RBan in reply to Parkinsunny]

I think he forgot to put a full stop In there. No vegetable oils full stop. Olive oil, avocado, oil, coconut oil are ok.

[Parkinsunny in reply to RBan]

Thanks!! whew!!

[Allypally49 in reply to Parkinsunny]

Yup full stop after vegetable oils.

[Boscoejean]

I wish that it was easy to find more information on why there is weight loss in Parkinson's particularly if the person is not taking medications and to me it seems like most of the recommended remedies to this issue are not effective

[jeffmayer]

Yes I have thesame

[jeffmayer]

Problem.when I finished working I was 14 stone.but.looked well now I am 9sg6. Yet I eat like a horse I tend to eat in between doses ses to work admittedly good I am not putting weight on but not losing it either

[Palmar]

My PD nurse said take the meds (Sinemet) on an empty stomach. And that kind of works.

I'm new to this forum but not to PD, diagnosed 20 years ago. I have tried most things but the most effective was early on when I had all my amalgams out. Best wishes to you all.

[Kingsdaughter1]

I have had this problem off and on for years concerning the weight loss and have been experiencing it over the last several months. I work with a gastroenterologist. Along with taking my C/L either a half hour before eating protein or waiting 1-2 hours after eating protein before taking C/L, I try to nibble in between meals. It takes intentional planning. I try to add some healthy high calorie items such as avocado oil and walnuts into my diet. My ideal weight is about 110-112 pounds. I had dropped to 89 lbs and I have gotten up to 92 lbs. it’s not enough but at least I got above 90 and have maintained that. My gastroenterologist has even suggested my eating a high calorie sweet snack in the evening before bed as when the body is at rest, your digestion slows and so may keep more of the calories. I had been walking three miles daily, which is great for the PD but burns too many calories so I have dropped that down to two miles five times weekly.

[Hikoi]

i find my pills get less effective as the day progresses. I think it is due to slow gut movement. I find full gut is as significant as avoiding protein . Small frequent meals and include protein, You will find that you cant eat big meals anyway. Don't let your weight drop too low. Eating is one of life's pleasures, so don't forget to enjoy as much as you can ie dont go hungry!

[judykuenn]

My hubs is PWP, is on Ryraty (C/L) and lost 40 lbs in 1 year also. It worried me; his doc checked and told me many who have PD lose or gain weight. Today, 2 yrs in, I am glad he is at a better weight. His balance is still great and he doesn't have other health issues. I started digging deeper + found while he needs protein, Rytary doesn't. So, we set his drug taking tines to be no closer than 1/2 - 1 hr before/after drug intake to avoid protein loads.

We also stick to the Mediterranean diet incorporating fruits, veggies + grains.

You will need to research + find what works for you.

Also, what kind of activity have you regimented to since being diagnosed? My hubs has always been active and we added Rock Steady Boxing to his schedule. Look them up! You'll be heading you did

[keighclark]

I found this to be very helpful .

apdaparkinson.org/article/l...

[CaseyInsights in reply to keighclark]

Excellent article on levodopa dosing and food intake. Key takeaway -

Many people ask: “How do I know if I have the protein effect?”  The answer is, by trial and error. If a levodopa dose taken with protein is just as effective as one taken with carbohydrates, then you do not have the protein effect.

My spouse is five years in and all her levodopa and supplements are taken with meals or immediately after meals.🌹

[Following_closely]

For me, Rytary helped in that I am able to take my doses 5hours apart, which is about the same spacing as my meals. I wait 30-60 minutes after my first dose to eat breakfast, and then the timing works out to be the same for my other two meals. It took me some time to adjust to Rytary, however. It caused nausea at first. Also, if I didn’t have good insurance, I’m not sure that I could afford it.

[Kelrjd]

I was just in the hospital two weeks ago for Parkinson's flare up. Part of that was losing weight from malabsorption. And I eat non-stop I just wasn't absorbing the nutrients. I started on a digestive enzyme, and now I gained 4 lb back.

[Javafran in reply to Kelrjd]

is there a particular digestive enzyme to use

[Kelrjd in reply to Javafran]

I asked a trusted friend and nutritionist what she would recommend. I like this because it only has the enzymes in it, no other herbal stuff or supplements. I've been on it almost 2 weeks and I've already gained my 4 lbs back. I can walk and I have a little more energy. I live in Pittsburgh Pennsylvania so I just go to the store there, but they are able to mail it to you also

.

[Javafran in reply to Kelrjd]

Thank you very much for your prompt response! Plan to start some asap.

[Kelrjd in reply to Javafran]

. Let me know if the front picture or the bottle doesn't go through

.

[Javafran in reply to Kelrjd]

Perfect! Just placed my order; should be here Thursday.

Thank you for helping me start my day off so positively

[Kelrjd in reply to Javafran]

You're very welcome! Glad I could help! You'll have to let me know how it works for you

[Javafran in reply to Kelrjd]

I sure will. Have a good day!

[PalmSprings]

I have the same problem. It is so tricky. Protein really interferes with the meds. Good luck!

[Gioc]

My mother in law 80 yo, would tell you: “Mangia!” 😃

[Esperanto]

You just use more energy with PD. The brain (20% of your calorie consumption) has to work constantly at full power. All effort with PD costs more energy among other things due to inertia and stiffness. The same goes for some motor complaints and the (internal) tremors. Not without reason, constant fatigue is one of the most annoying complaints. So indeed, the recipe is to eat more (well)! One of the few benefits of the PD 😉

[Esperanto]

But actually your question was how to better tailor your medication to your diet. You may already be familiar with this information about the effectiveness of your diet/supplements, if not then maybe a tool :

Dietary Approaches to Improve Efficacy and Control Side Effects of Levodopa Therapy in Parkinson's Disease: A Systematic ReviewJikke T Boelens Keun et al. Adv Nutr. 2021.

pubmed.ncbi.nlm.nih.gov/341...

🍀

[Sandmanliz]

I want to thank everyone on their camaraderie and advice on weight loss. (I am also writing a book on gut health right now so hope to have some pointers soon.) In summary advice was: eat protein at the end of the day, try some oral digestive enzymes, small meals that move through faster, supplement vitamins for malabsorption.

I am wondering if pea protein binds the same to the receptors as animal protein? that could open the door to a lot of shakes.

thank you for letting me be part of this family that constantly gives us all hope.