Anxiety Strategies

[AndyMu72]

Hi folks,

After reading the excellent article posted four months ago by Sydney75 (link below), it got me thinking about a few things...

sciencedirect.com/science/a...

2 years post-diagnosis I'd still say anxiety is my main issue. Motor stuff not giving me too many headaches (thankfully) right now - exercise, nutrition, meditation regime seem to be helping.

Particularly interesting that Levodopa doesn't appear to have any positive impact on anxiety, and may indeed make worse by affecting Serotonin and NE levels!

Also of interest is that Anti-Depressant type Meds can exacerbate other PD symptoms.

Leaving herbal type remedies (along with Music, Meditation, Yoga, Massage, etc) looking like a good option.

Wonder what some of you good people have found works for this? The article listed a few like Ginko Biloba, Lavender, Passion Flower.

Thoughts appreciated!

Best wishes,

Andy

[Bolt_Upright]

Thanks for sharing. Makes me think I should try and kick Prozac again. It did not end well the first two times I tried

But seriously, thanks.

[Gioc]

the usual b1 hdt plus b-complex , magnesium and diet based on fresh vegetables for minerals, little interaction with negative people and bad things if not necessary for life, walk in large spaces observing the environment (extroversion); these things helped me a lot.

Greetings from Italy

Water

[AndyMu72 in reply to Gioc]

Thanks Goic. Wise words right there! I’m on the B1 journey & that has definitely helped. I hike in the Scottish hills when I can get some spare time - it’s truly the best tonic!

Best wishes from Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

[Gioc in reply to AndyMu72]

 Scotland is a beautiful and spiritual country.🙏Ty

[Deforel_Ch]

Watch posts about Lithium Orotate. Wholeheartedly with you.

[LeharLover62]

For hubby it’s a sign of too much levodopa. But we haven’t been able to control it without bringing his med dosages too low for movement. Next on the list for him to try is CBD oil. But we’ve used lithium orotate, magnesium, antidepressants (Effexor), and melatonin with limited success.

[AndyMu72 in reply to LeharLover62]

Thank you LeharLover62 . Very interesting on the Levodopa🧐. Best wishes to you & hubby!👍

[1LittleWillow]

Mannitol helps my mood really dramatically. I've tried to stop taking it about a dozen times over the past few years because I keep thinking it's not really doing anything, but then I start to feel depressed and anxious and unbelievably sad. As soon as I take some, everything is back to normal, and I feel like I can cope again (no more weepiness, and I regain my calm and my motivation). It's pretty strange, but I'm sure grateful for it.

[alexask in reply to 1LittleWillow]

Mannitol and Melatonin are the only two things I take. Both super cheap

[AndyMu72 in reply to 1LittleWillow]

Thanks for sharing 1LittleWillow 🙏🏼

[1LittleWillow]

Another thought... My 27 year old son who has Asperger's has been dealing with some depression, anxiety, and panic attacks this year. He's been taking Sam-e during the day and ashwaganda at bedtime for about 6 weeks, and that has helped to calm things down significantly. It's not that everything is perfect now, but it's more of an occasional annoyance and no longer debilitating.

[Hidden]

hi Andy,

I was on levodopa from October 2018. It was very effective stopping right leg tremor. In November of 2021 my brain changed anxiety/depression and Sinemet no longer worked for tremors.

Psychiatrist, neurologist and gp worked together to try different medications. All Parkinson’s medication stopped in February and different antidepressants were tried trintilex, Prozac ( I had been on escitalipram for sometime) in August of 2022 I got relief from anxiety and depression from Vilazadone (anti depressant)I was referred to movement disorder clinic in August of 2022 and put on the Neupro patch. I never felt much improvement (didn’t help tremors and other motor and nonmotor symptoms increased)until April of this year when movement specialist reintroduced Sinemet. I started with 1/2 tab a day and titrated up to 3 tabs a day over six weeks. I have been on 3 tabs for eight weeks and have relief from tremors ablmost completely and relief from other symptoms for about 3 hours at a time. When the Sinemet wears off I experience dizziness stomach upset nausea fatigue bradikinesia until the next dose kicks in. I expect they will add another tab at.my appointment next week . I am much improved and have continued to walk lots albeit slower even at my worst. I also had CBT counselling through th provincial parkinsociety. and it helped with anxiety. i havent used ativan in months. Hope this helps.

[AndyMu72 in reply to Hidden]

Thanks for the detailed reply Hidden . Interesting! Hope your new regime continues to work well 👍