Cue1 Charco Neurotech

[Lamadre]

Hi, I have been offered a Cue1 device from Charco Neurotech. Does anyone have any experience of this device and if so has it been helpful with tremors? I was diagnosed a year ago and have left hand and leg tremor and some awkwardness in walking. Still managing Pilates and tai chi for which I am grateful but exercise is much more tiring now. Thanks!

[Juliegrace]

You may want to search it as there are multiple posts, some very recent.

[Lamadre in reply to Juliegrace]

Yes, a lot to read through! Thanks

[Zella23]

healthunlocked.com/cure-par...

I posted this reply recently . It’s worth trying.

[Lamadre in reply to Zella23]

Thanks, that's helpful to know.

[Smokeypurple]

And I believe you can send it back within a certain timeframe if it doesn't do anything for you.

[Lamadre in reply to Smokeypurple]

Also good to know, thanks.

[healthabc]

if u dont want it, send it to me- I will buy it from u for whatever u paid for it

[Lamadre in reply to healthabc]

Sorry but I do want it, just asking if others have found it helpful.

[Missgirly117]

we’re on a waiting list ! Lucky you! Keep us updated!

[Lamadre in reply to Missgirly117]

Yes I've been on the list too! Good luck!

[Givemeabreakffs in reply to Lamadre]

Hi I'm new on here, I'm also waiting for the cue1 device, I'm so sick of these awful tremors on my left side and face. Katy

[Lamadre in reply to Givemeabreakffs]

Hi Katy, I know how you feel, I'm fairly new to this too, it's hard to accept that this is the 'new me'. Sending you good wishes.

[cjCardio53]

If I were you I'd try in a heartbeat.

[cjCardio53 in reply to cjCardio53]

Me 3, on waiting list.

[Lamadre in reply to cjCardio53]

I will, I was just feeling a bit cautious.

[cjCardio53]

How long were u on waiting list? and how much does it cost? Thanks.

[Lamadre in reply to cjCardio53]

I’ve been on the list since Sept 2022. Cost is £295 ex VAT (I think you don’t pay the VAT if you have a P diagnosis). You can also pay by instalments.

[Sun_and_flowers in reply to Lamadre]

Hi Lamadre, did you have to pay VAT in the end? Also, how are you finding it?

[Lamadre in reply to Sun_and_flowers]

Hi, I have paid the VAT but will ask about the possibility of reclaiming it when they come to fit the device later this week. I'll let you know how I get on, fingers crossed it will be helpful!

[Sun_and_flowers in reply to Lamadre]

Yes, hope it works for you! 😊

[Always_hope in reply to Lamadre]

I'm not sure if you will see this post. How are you getting on with the CUE1 device? My hwp is on the waiting list. I've heard from 2 other pwp having great benefit with speech and walking. 😃

[Givemeabreakffs]

Hi again, do you have to have it fitted or can i do it myself?

[Lamadre in reply to Givemeabreakffs]

I think you can do it yourself. I had 2 people who came to show me what to do but I was about to go on holiday and didn't want a buzzy thing stuck to my chest! They said some people just hold it in their hand and get some relief from the vibration. My mum has a vibrating foot cushion (a Christmas present years ago!), it definitely feels good on my feet but doesn't get rid of any tremor. I expect I'm not a good tester as I don't use it constantly! Hope it helps once you have yours.