Patient enrollment begins in study of novel light therapy for Parkinson’s disease

[Farooqji]

The first 100 patients have been enrolled in a clinical trial investigating a novel light therapy device intended to treat individuals with Parkinson’s disease, according to the manufacturer.Enrollees are expected to use the Celeste device within their own homes for 1 hour per day when doing activities like reading, eating or watching TV.

The study’s primary endpoints are improvements in overall quality of life, motor function, sleep quality, mood and cognition, evaluated by clinical scales and patient-reported outcomes

healio.com/news/neurology/2...

[TiVghh]

link to DBS?

[Allypally49]

That link directed me to The Guardian report on DBS and not any light therapy

[Farooqji in reply to Allypally49]

healio.com/news/neurology/2...

[Allypally49]

I've read about using infra red but not seen any peer reviewed study of it.

[docjleonard55]

I am one of the first 100. Been using my light since the beginning of May. I haven't seen any improvement in any way, so I might have the placebo, or maybe not. Thinking of quitting, since it is a PITA to sit for the hour each day required, but I did commit, so I'll probably finish off.

[blackbear701]

I signed up for the trial, but a Celeste rep called and said I was ineligible because they do not have a neuro in Vermont, which is where I live. They do have neuros in New Hampshire. I told them that my neuro IS in New Hampshire. But it did not matter to them.

[Esperanto]

In addition to a placebo group, a ‘sunlight group’ would have been an intriguing addition to the study. Spending half an hour in natural sunlight outdoors, at sunrise and before sunset (even behind UV-transparent glass if necessary), potentially combined with 0.5 mg of melatonin and magnesium an hour before bedtime, could yield valuable insights. This is particularly relevant since the Celeste light therapy primarily works through the eyes and harnesses the "power of light," which integrates sleep and circadian rhythms.

Unfortunately, it appears that this research is being conducted again from a commercial perspective. I couldn’t find any information regarding the future costs of a Celeste device, but I fear the worst. And free sunlight? Not considered interesting, but certainly a means for plagiarism.