CUE1 device from Charco Neurotech...seems almost too good to be true....

[Grey_Area]

And I'd struggle to believe it if it wasn't for the fact I know someone personally with one who swears by it...though in his case for countering his anxiety, not speech...

youtu.be/7HboZ1tTDZE(Not working as expected?)

[Jalia]

My husband has had the Cue1 device for about 10 months and it certainly helped him with his mobility. I haven't noticed much difference in his speech but that varies anyhow in spite of ( or because of) speech therapy. He also finds it helpful as a sleep aid ie to help him get to sleep if he is feeling anxious.

[park_bear]

Impressive!

[Grey_Area]

I feel I should point out that other than being on the waiting list for the CUE1+ (the "+" being the next generation version, reportedly going to cost around £750 when I get to the front I'd the queue) I know very little about the device other than it's some sort of vibration-based therapy device that attaches to your chest, and that as I said, someone I've actually met ("Terry", if you browse any of the other charco-neurotech videos on their YouTube channel) speaks very highly of his "V1" device. Terry tells me that even once you have it, there is quite a lot of "tuning" to be done and that getting it "wrong" can really set back his progress.

[jeeves19]

I sent mine back. It made no difference to my symptoms 🙁

[Grey_Area in reply to jeeves19]

Yeah they do seem to be a bit "all or nothing"...just have to cross my fingers that I'm in the "all" group...

A thought though; how much time did they/you spend adjusting or calibrating it? Terry tells me changing the settings on his can make a HUGE difference, up to and including making him worse rather than better.

[jeeves19]

it’s been a white now if I’m being honest. I’m just sceptical of anything that you have to play around with for days before it comes good anyway. Bit like the elusive B1 ‘sweet spot’ if you get my drift.

[Windermere1 in reply to jeeves19]

I found my b1 sweet spot within 6 weeks and I now have a cue1+ that I am trialling to get max benefit. Both better than just adding more drugs

[Smokeypurple]

If needed mostly for anxiety and sleep I would opt for a different, perhaps non Parkinson's specific device.Vibration has been used to ground and comfort for ever. Think parent crooning to babe in arms held tightly to their chest. Vibrating cushions for autism/ADD etc.

I am on the anxiety/sleep mission, and so use the Apollo neuro. My mother (age 88 without Parkinson's) uses the Sensate device.

I know several people who have tried it and only 1 found it beneficial for walking. I found it uncomfortable to have to stick something to my chest. However, did any of us fiddle with the settings enough? Perhaps not.

If there is still a trial period at the new price then why not try it - nothing to lose. Check what the guarantee period is - it used to be 2 years. A friend of mine had 2 or 3 replacements in that time as it stopped working.

I am not anti the device at all, and with the checks above I'd say try it - as yes, as Grey_Area says - if you're in the 'works for me' camp it's worth any amount of money.

[Jalia in reply to Smokeypurple]

My husband had 4 replacements in earlier days. The company are very good to deal with and really go the extra mile to assist

[Gymsack]

Like most things that are beneficial in Parkinson's it must be fine tuned to meet your specific needs and address to your specific Parkinson's. Six weeks seems a reasonable amount of time to accomplish this. If you can not quantify improvment by then I would say that you are chasing rainbows. Which does not mean it will or will not work for somebody else. There seems to be a ( small ? ) group of PwP ( I am one) for whom not a single regimen works. (vibration, red light, grounding, etc. )