PD or FND? : Check out FND: en.m.wikipedia... - Cure Parkinson's

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PD or FND?

stocktiki profile image
14 Replies

Check out FND: en.m.wikipedia.org/wiki/Fun...

Symptoms sound just like PD. It's it possible a person told they have PD actually had FND. It's important because FND is triggered by stress, not some still poorly understood mechanism with dopamine.

Anyone hear of this?

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stocktiki
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14 Replies
Bolt_Upright profile image
Bolt_Upright

Fascinating.

Hikoi profile image
Hikoi

Yes I have heard of this and know someone who has been diagnosed with it. There is a forum on here - health unlocked, for people with fnd. I have also know a person diagnosed with fnd by many neurologists who ended up in a wheelchair before she was properly diagnosed with PD. She was able to move out of her chair and stand after one day on levadopa.

LAJ12345 profile image
LAJ12345 in reply to Hikoi

Interesting it is treatable with levodopa too

Hikoi profile image
Hikoi in reply to LAJ12345

No its not treated with levadopa as far as i am aware. The person i mention was misdiagnosed. She had PD which had progressed untreated to her ending up in a wheel chair. Levadopa was a miracle drug to her.

Discogs_discogs profile image
Discogs_discogs in reply to Hikoi

I know of someone with the opposite scenario. For more then ten years, she had been misdiagnosed with PD until her diagnosis was eventually changed to FND. Because her hand tremor immediately responded to levodopa, her doctor just assumed that it was PD. It wasn't. Neurologists seem to assume that any positive response to levodopa automatically means PD, but that is not always the case. They use C/L as a diagnostic tool, perhaps with some overreliance at times.

BeedieBird profile image
BeedieBird

Yes, my neurologist thinks this is a possibility in my case. He has done a skin biopsy (Syn One test) which will confirm or deny Parkinson's or Parkinsonism. If FMD or FND, it is treatable with therapy but does not respond to Levodopa. However, I seem to respond well to small amounts of Levodopa (1/2 pill 4x a day), but, this could be a placebo effect. I would be very happy if it were FMD, which is not a neurodegenerative disease but more psychogenic in nature.

BeedieBird profile image
BeedieBird in reply to BeedieBird

My Syn One biopsy came back positive for Parkinson's. So, guess I'm still in the club.

kaypeeoh profile image
kaypeeoh

Reading the Wiki post on FND I'm thinking this fits me to a "T". But I have a positive DAT test which says I have PD. About the only test I haven't done is the skin biopsy for alpha sinucleon.

Schofield81 profile image
Schofield81

Would FND cause problems with sense of smell like PD does? Thinking altered smell is likely a strong indication it’s PD not FND!

Despe profile image
Despe

clinicaltrials.gov/ct2/show...

rond56 profile image
rond56

Lillian Sjøberg at. Hopeshortcut.com is working with people successfully treating Parkinson’s as a stress disease if anyone has an interest.

stocktiki profile image
stocktiki in reply to rond56

I bought Lilians online course. Found it helpful to stop freaking out about whatever the heck is wrong with me. No matter what, stress is the enemy. hopeshortcut.com/category/s...

HekateMoon profile image
HekateMoon

What would happen with a DatScan in such case?

House2 profile image
House2

in my humble opinion, fnd is a "fad diagnosis"

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