Confirming it's NOT PD

[billPD]

Neurologist wants to confirm it's NOT PD using a biopsy.

sciencedaily.com/releases/2...

it will at least give them a more definitive direction

[kaypeeoh]

I've always wondered whether I have PD. So I read the article eagerly until reaching the part that says if it's not PD its something much worse, like PSP or CBS.

[billPD in reply to kaypeeoh]

Primary lateral sclerosis PLS

Its what they think i have but want to confirm with the biopsy

[Bolt_Upright in reply to billPD]

Good luck. I am praying for good health for you.

[kaypeeoh in reply to Bolt_Upright]

Ditto.

[billPD in reply to kaypeeoh]

thank you

[billPD in reply to Bolt_Upright]

thank you

[SilentEchoes in reply to kaypeeoh]

Ain't that the truth!!

[eschneid]

bill,

According to the Mayo Clinic.

This rare condition can develop at any age, but it usually occurs between ages 40 and 60 and is more common in males than females. A very rare subtype of PLS, known as juvenile primary lateral sclerosis, begins in early childhood and is caused by an abnormal gene passed from parents to children.

PLS is often mistaken for another, more common motor neuron disease called amyotrophic lateral sclerosis (ALS). While likely related to ALS, PLS progresses more slowly than ALS and in most cases isn't fatal.

Same wishes as above for good health and the best possible outcome for you.

[billPD in reply to eschneid]

Thank you. i have read that

[KBGfightsback]

This is an amazing story detailing what one doctor did to help his daughter win the fight against ALS. It was a recommended read by my integrated medicine doctor as she thinks aspects of it can be helpful to anyone combating a chronic illness .

deannaprotocol.com/

[billPD in reply to KBGfightsback]

thank you

[Bolt_Upright in reply to KBGfightsback]

Interesting. Metabolic Therapy with Deanna Protocol Supplementation Delays Disease Progression and Extends Survival in Amyotrophic Lateral Sclerosis (ALS) Mouse Model 2014 ncbi.nlm.nih.gov/pmc/articl... SilentEchoes

[Bolt_Upright in reply to Bolt_Upright]

This does not look easy. Specifics of the protocol are here.

ALS Untangled No. 20: The Deanna Protocol tandfonline.com/doi/full/10...

[Bolt_Upright in reply to Bolt_Upright]

ALS Untangled does not endorse this protocol. Just not any evidence it works: alsuntangled.com/review/dea...

[Bolt_Upright in reply to KBGfightsback]

Deanna seems to still be doing well (for somebody with ALS) 11 years in: facebook.com/Thedeannaproto...

[SilentEchoes in reply to Bolt_Upright]

Hi, thanks for sharing the info on Deanna and the protocol her father, a medical doctor, developed. His initial theory on causation was "Chinese" drywall in her home and then he shifted to a Lyme infection. That seems to be the popular theory in ALS circles these days. There's a lot of bias in research and medicine in general, but one topic that is taboo is glyphosate and pesticides in general. People typically don't recognize subtle symptoms of acute poisoning and think it presents as a life or death situation, that's usually not the case. Dr. Tedone is too close to the situation, he knows it was a toxic exposure but fails to see the most common source of exposure - turf. In agriculture and in sports. Most can't point to a specific event like I can, but it's a common occurrence. Look carefully at the athletes who get ALS. Soccer, golf, football, baseball....I saw a photo of Deanna on a golf course (she lives in Florida). I could go on but I get disgusted with the whole thing. SE

[Bolt_Upright in reply to SilentEchoes]

Sometimes I look back at my life and regret not spending more time playing golf. I may re-evaluate that regret.

[SilentEchoes in reply to Bolt_Upright]

It's a combination of things in PD and AD, chronic low dose exposure to toxins and lifestyle, but when you get ALS it's an acute poisoning.

You were in a sense lucky you didn't play a lot of golf. After my poisoning, I could not in good conscience allow my athletic youngest son to play baseball and football anymore. It troubles my soul that my little grandsons play soccer. I know we can't live in a bubble, but mitigating risk is really important post poisoning and because we live in a rural area ambient exposure is happening all summer long. Methylene blue and high dose B12 (methylcobalamine) are your best defense. And detox with Zeolite.

[chartist in reply to SilentEchoes]

While methylene blue has many positive health benefits and is a potent antioxidant, it does have a couple of downsides. When mixing, wear clothes that you won't mind if they get stained as it will stain most things blue. You should use a protective cover on stone counter tops such as marble or granite as it will stain them blue. When I used it, it turned my urine blue and the higher the dose I took, the bluer my urine got. It had a noticeable effect similar to amphetamine without the jitteriness, with clearer thinking and feeling more present in the moment, but those are very subjective observations on my part.

Methylene blue is an MAO inhibitor and should not be taken with a long list of psychiatric drugs as might be used for depression as that could cause serotonin syndrome/serotonin toxicity, a very dangerous drug reaction :

fda.gov/drugs/drug-safety-a....

Here is a list of potential side effects for MB .

drugs.com/sfx/methylene-blu...

Art

[Bolt_Upright in reply to chartist]

Fortunately I married an art major so there are no worries about random blue stains in the house.

DO YOUR OWN RESEARCH but I think those interactions are based on the larger intravenous doses of MB. Personally I just take enough to turn my pee green. youtu.be/dYlTsQNP5iM(Not working as expected?)

[Godourtruehealer in reply to SilentEchoes]

Any source?

[SilentEchoes]

Muscle biopsy? Is it possible the doctor thinks it's genetic?