PDCare SYMBYX: So I just spent an hour... - Cure Parkinson's

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PDCare SYMBYX

PDTom profile image
32 Replies

So I just spent an hour chatting with a CEO of SYMBYX Biome about PDCare and my development of Parkinson's disease. I've been using PDCare since September 20, 2021. There is also a LED helmet from the same company (I use the one from Vielight in gamma mode). My symptoms have hardly changed since autumn 2020. The CEO says as long as I use the PDCare and helmet my symptoms will not progress! That's the core message! Everyone has to decide for themselves whether they are willing to spend the money and try it. Or you simply wait until more and more people are commenting positively about the device and then make a decision. It's important for me to tell those around me that there is a way to stop Parkinson's and make things better.

symbyxbiome.com/products/sy...

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PDTom profile image
PDTom
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32 Replies
Millbrook profile image
Millbrook

Glad it’s working for you, Tom. My husband has been taking vitamin B1 HCl since Feb 2019 , PS 128 and using the coronet duo since May /June 2021. He is much better than before.

acsgeo profile image
acsgeo in reply toMillbrook

What's HCI, PS128, Coronet duo?

Millbrook profile image
Millbrook in reply toacsgeo

vitamin B1 hydrochloride

PS 128- it is the psychobiotic probiotic taken on empty stomach or 1 hour after food

Coronet Duo- redlight therapy from Australia. There are also others PD laser by Symbixx or cheaper redlight cap by Kinreen - i paid about usd 140 - I use this when travelling for fear of damaging my coronet duo

Search in the search bar and you will find the feedback from other members to make an informed decision.

Wishing you all the best

Terlin profile image
Terlin in reply toMillbrook

I have emailed twice about the Coronet Duo with no response. Does anyone have luck reaching them. I hate to pay almost $1000 for a device with poor customer servicr.

Millbrook profile image
Millbrook in reply toTerlin

Sorry to hear that. Recently I emailed them about coronase and had no issues.

Coronet Duo has given no issues and is absolutely amazing for my mother who was diagnosed with dementia in Jan 2022. She did not take well to the meds so is completely reliant on just the coronet duo. But she does take PS128 probiotics as well.

After the warranty period any electrical shop can help troubleshoot any issue like loose connection etc.

Terlin profile image
Terlin in reply toMillbrook

Thank you for your response. I will try again. I appreciate it!

Bolt_Upright profile image
Bolt_Upright

I hope you don't mind my Google Translating this for people: "So I just spent an hour chatting with a CEO of SYMBYX Biome about PDCare and my development of Parkinson's disease. I've been using PDCare since September 20, 2021. There is also an LED helmet from the same company (I use the one from Vielight in gamma mode). My symptoms have hardly changed since autumn 2020. The CEO says as long as I use the PDCare and helmet my symptoms will not progress! That's the core message! Everyone has to decide for themselves whether they are willing to spend the money and try it. Or you simply wait until more and more people are commenting positively about the device and then make a decision. It's important for me to tell those around me that there is a way to stop Parkinson's and make things better."

PDTom profile image
PDTom in reply toBolt_Upright

Thanks very much! I translated the report from German into English, but my permanent translator setting in the browser translated it back again. In the future I have to be careful to switch him off during these actions!

Bolt_Upright profile image
Bolt_Upright

Thanks for sharing this good news!

Thank you Tom for reaching out to the CEO! Great feedback!

kaypeeoh profile image
kaypeeoh

Es tut mir leid aber ich kenn nur ein bischen Deutch. Ich war in Frankfurt geborren aber voenned in USA 30 yahre. I murchte enutzen Vielight.

PDTom profile image
PDTom in reply tokaypeeoh

The PDCare is more important than the LED helmet. Please write to me directly, then I can give you the email address of Ann from Australia. She speaks English and German. With you can clarify the details very well.

PDCare
Mimilemew profile image
Mimilemew in reply toPDTom

Could you kindly give me her email address?My husband has been using PD care for a month and a half now, he's 41 and was recently diagnosed. I know it takes time to see improvements with this device, for some people even a year, so we are being patient and optimistic. He has experienced some mild improvements with his left hand and leg tremor, it used to be bad in the mornings when it's cold and now he's no longer shaking when cold. We don't know if it's the PD Care, the exercise he's doing or both.

I was under the impression that PD Care will suffice and a 2nd device from Viewlight wouldn't be necessary as they both basically do the same thing? Now I'm confused. As a matter of fact, PD Care is being tested on a Phase III trial in Australia right now and we will have the results next year, the hypothesis is that this therapy has the potential of stopping and/or reversing Parkinson's disease, the fact that they are now in Phase III when so many studies end on phase II gives me lots of hope, I really hope they will be able to prove that this works.

We just saw a documentary about the GDNF study done in Bristol in 2019, my husband got very scared when he saw Tom Isaacs condition after 17 years with Parkinson's. I'm willing to do whatever it takes to help my husband as I don't want to see him get to that point, it breaks my heart.

134A profile image
134A in reply toPDTom

TomCan you please send me the address as well?

Thanks

Aysegul profile image
Aysegul in reply toPDTom

hi Tom,

Did you pay any VAT charge for your pd care laser in Germany? I try to learn custom policies in Europe to buy a pd care laser. In Turkey , my device was stucked at customs. They did not accept it as a personal medical devşce for home users.

PDTom profile image
PDTom in reply toAysegul

I think I paid by credit card.... on the Symbyx biome homepage.

Aysegul profile image
Aysegul in reply toPDTom

I paid by credit card on company web site. But they could not know about custom policy on different countries. I could not get my device in my country,therefore I am trying to learn custom policies as you got one previously. If you remember, I will be appreciated too much. Thanks.

PDTom profile image
PDTom

Hello, this is Ann's email address.

Ann Schomakers <anns@symbyxbiome.com> Greetings from Germany

134A profile image
134A

Hi TomSo you’re using both devices at once? It sounds as if you have great results. Did one device preceded the other one or did you start with both at once? I am using the red light helmet currently for about 4 months. I have had some improvements mostly with sleep and some joint pain but I can’t say that I am not progressing unfortunately.

I would appreciate your thoughts.

PDTom profile image
PDTom in reply to134A

Please read my profile, because I have described what I do.

I use the PDCare Monday/Wednesday/Friday mornings, the Vielight helmet 5-7 times in the evenings in gamma mode.

healthabc profile image
healthabc

the pdcare is abdominal, and I understand and agree with that. My question is -which headpiece is most befefficial- the vielight or coronet?

healthabc profile image
healthabc

typo- beneficial

akgirlsrock profile image
akgirlsrock

Their is a diy instructions on a infrared helmet, from the makers of the coronet helmet, or you can buy the diy hat made for you, it's not to expensive, or the coronet is cheaper than v-light. Found on YouTube.

PDTom profile image
PDTom

dublinlive.ie/news/health/g...

PDTom profile image
PDTom

Video! SYMBYX Webinar, Seite 15 August. SYDNEY| TORONTO| DUBLIN

symbyxbiome.com/blogs/symby...

Turnipbarrow profile image
Turnipbarrow

do you have an update you can share with us? Thinking to get PD care for my hwp. He already uses the helmet from coronet. Thsnk you

Shambh profile image
Shambh in reply toTurnipbarrow

My mum has been using both and there is no improvement. Her condition has worsened. The only difference is that after wearing the helmet her voice becomes a little stronger, but her mobility has greatly reduced.

PDTom profile image
PDTom in reply toShambh

I'm sorry it's not working for your mother.

Every Parkinson's patient reacts differently. My condition is still very good and I do not take any medication! here is my homepage: parkinsonclub.de/en

Timeisimportant profile image
Timeisimportant

This is extremely hard to believe. I've been doing a research about this product and all I found in the end is few people like yourself mentioning it has been effective, there is no single before and after recordings anywhere.

Few generic videos that the founder of the business is posting on youtube and promotion videos around internet. There isn't any clinical data to support those claims. Few happy faces in videos and claims about the device does what it says is not really something I would be convinced by it and make such expense. The topic is sensitive and everyone is searching for hope to tackle the problem. When someone is desperate he/she can do anything to go beyond and give a try. Stuff like this is nothing but just taking the advantage out of that psychological behaviour.

Fricnfrac profile image
Fricnfrac

Hi, A functional doctor has recommended the Symbyx for my husband so I am just diving into my research. Do you still used it and is it still helping you? Can you tell me how it has helped. My husband has chronic back pain and also he gets very stiff and has mobility issues, freezing, mostly walking issues due to his Parkinson’s. it’s heartbreaking and I would love to see something so simple help him.

PDTom profile image
PDTom in reply toFricnfrac

It is difficult to say whether it has helped. I use a lot of alternative healing methods. tomparkinson.de

Fricnfrac1999 profile image
Fricnfrac1999 in reply toPDTom

Thanks for your reply. I understand exactly what you're saying,, That's the hard part for sure

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