Matt Eagles: Positivity in Adversity – 46 years living with Parkinson’s

[Michel0220]

As many of you know, I am part of a small group of PWPs who regularly invite speakers to inspire or educate us on how to manage our symptoms.

Our next zoom session will be taking place at 7:30 p.m. London time on Monday the 22nd of November.

I will have the pleasure of interviewing Matt Eagles on the topic of “Positivity in Adversity – 46 years living with Parkinson’s“.

Diagnosed with Parkinson's when he was aged just seven, Matt has lived with the disease for forty six years and has become an expert in his own condition.

Matt is a patient champion and motivator, a positivity activist and “possibilist”.

He had Deep Brain Stimulation just over 15 years ago and is a keen advocate of health tech and using AI and machine learning.

Matt also heads up a global wellness campaign called Parkylife, a unique project helping people with Parkinson’s and their families live brighter happy lives.

Please use the Eventbrite link below to register for this event:

eventbrite.co.uk/e/matt-eag...

You can view recordings of our previous sessions at: youtube.com/channel/UCN2A0v...

[Kia17]

Very interesting. Thank you for letting us know.

[Michel0220 in reply to Kia17]

Thank you very much Kia. It is a great opportunity to learn from someone who has had to cope with the condition for so long.

[Kia17 in reply to Michel0220]

It should be very inspiring. I will do my best to join the Zoom meeting.

[Grumpy77]

"Diagnosed with Parkinson's when he was aged just seven"

What!!! That's by far a record diagnosis age, I've not heard of anyone below 26 diagnosed with PD

Great work, well done Michel

[Michel0220 in reply to Grumpy77]

Thank you very much Grumpy. According to his GP’s digital records, he has had Parkinson's since 1975 . I am eager to learn from his long-standing experience.

[Propertytyphoon]

Same reaction as to Grumpy77 , never heard of such a young diagnosis so will defn join in, thanks

[Michel0220]

Thank you Typhoon 😀

[eschneid]

Keep them coming Michel.....you are adding an xlnt new feature to this great site.

[Michel0220]

Thank you very much eschneid, we have several other great speakers lined up for the next months. Stay tuned!

[JohnPepper]

Hi Matt. I am now 87 years old. My first symptom of loss of coordination happened kin 1963. Betwaeen that date and 1992, when I was finally diagnosed, I had been doing a lot of exercise, but also had a very ddemanding job with lots of stress! For the first two years after diagnosiis I went to the gym every day, six days a week for 90 minutes and worked at my highet possib;le rate on ftreadmill, syep-climbing, rowing, and each machine using weihts.For rhe next two years my Pd got worse quicker than it had been doing. Then I 1994 I stopped going to the gym and started a fast walking program. Witjon 3 months my performance improved by nearle 20% an it cintined to kimprove until in 1998. at the age of 64, I was walking at less than 7 minutes per K.

I hav econtinued the fast walking ever since then, other than when I had other health isssues. I stopped taking any Pd meds in 2002 and have not been back on ever since. At 87 I still walk 4 Ks every second day in under 10 minutes a K.

I have a website reverseparkinsons.net where you cab see more on what I do and what I offer others, free of charge.

[Michel0220 in reply to JohnPepper]

Thank you very much John. Yours was one of the first books that I read after being diagnosed. I have been practising the fast walking six days out of seven since then, either outside or on the treadmill. Thank you for being such an inspiration.

[JohnPepper in reply to Michel0220]

Hi Michel. Please donot do FAST WALKING every day!!!! You will do more harm then good. Put everything you have into it every second day and do not do strenuous exercise on the in-beteeem days.

[Michel0220 in reply to JohnPepper]

Roger that👍

[JohnPepper in reply to Michel0220]

THanks. Let us all hear the results of the fast walking, please!

[VALENTINE28 in reply to Michel0220]

Depuis quand pratiquez vous la marche rapide et avez vous des résultats ?

[Michel0220 in reply to VALENTINE28]

Bonjour ValentineJ’ai été diagnostiqué en février 2020 mais avais probablement Parkinson depuis plusieurs années. Mon approche est multidisciplinaire et comprend exercices, méditation, nutrition et médicaments. Le contrôle de mes symptômes est devenu une occupation à part entière. Puis-je vous suggérer d’écrire à John Pepper en anglais?

[VALENTINE28 in reply to Michel0220]

Merci pour votre réponse, je viens d’écrire en anglais à John Pepper... D’autre part, je voudrais vous demander si, de votre côté, vous avez remarqué une amélioration puisque vous pratiquez également la marche rapide?

[Michel0220 in reply to VALENTINE28]

Je fais beaucoup de choses pour gérer mes symptômes et je pense que mon état de santé dépend de toutes ces choses mais pas uniquement de la marche. La marche a toutefois un rôle très important car elle contribue à une bonne circulation sanguine, une stimulation musculaire et une bonne respiration (l'oxygène joue un rôle très important au niveau de la mitochondrie).

[VALENTINE28 in reply to Michel0220]

Merci, heureux que ces activités vous donnent des résultats.

[VALENTINE28 in reply to JohnPepper]

Bonjour, je suis tellement admirative de votre histoire... et surtout du résultat. ; Mon mari a été diagnostiqué il y a environ 2 ans, il fait chaque jour du vélo et de l’exercice. J’aimerais vraiment qu’il essaie votre protocole... est il en Français ? Merci à vous d’aider les autres

[JohnPepper in reply to VALENTINE28]

Thanks Valentine. Do you have my book? It is available from Amazon in French. or go to my website 'reverseparkinsons.net' Your husband is not doing the right exercises and/or the amount he is doing. It is important to do the correct exercise and quantity to avoid injury and to hget the best results.I will send you my videos if you contact me.

[VALENTINE28 in reply to JohnPepper]

Merci beaucoup d’avoir pris le temps de répondre à chacun de nous... J’ai tellement de respect pour ce que vous faites. J’ai commandé votre livre hier et je le recevrai aujourd’huih’ui... si cependant pendant la lecture, je voulais avoir des informations comment puis-je vous contacter (je suis Français)... Merci d’avance

[gginto in reply to JohnPepper]

John You are very inspirational!

[JohnPepper in reply to gginto]

Thanks! I hope you are using me to your best advantage and getting some real benefit out of it all!

[gginto]

Looking forward to listening to his amazing story! Thanks for posting!

[Michel0220]

Hi everyone,This is a quick reminder that our next zoom session will be taking place at 7:30 p.m. London time on Monday the 22nd of November.

I will have the pleasure of interviewing Matt Eagles on the topic of “Positivity in Adversity – 46 years living with Parkinson’s”.

Diagnosed with Parkinson’s when he was aged just seven, Matt has lived with the disease for forty six years and has become an expert in his own condition. This is a rare opportunity to learn from someone who has so much experience of Parkinson’s disease.

Please use the Eventbrite link below to register for this event:

eventbrite.co.uk/e/matt-eag...