Near infra red light therapy for Parkinso... - Cure Parkinson's

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Near infra red light therapy for Parkinson's and Alzheimers

Nguflh58 profile image
12 Replies

I hope all are well,

I finished my near infra red light therapy helmet. I am not diagnosed but have all the signs of developing parkinson's at 58 except the tremor so I am trying to be proactive. I added a pwm controller from Amazon that pulses the light at 40 hz which is seen as the most therapeutic.

Adjustable Signal Generator amazon.com/dp/B07W229NVP/re...

I share my experience as an amateur so I can not recommend this as a therapy though there are FDA approved devices for sale. This link explains options and the science known so far.

redlightsonthebrain.blog/ta...

My goal, as is everyone's, is to slow or halt the process which this seems to have done anecdotally. The hat from the men's shed in Australia was about $300. I spent that much on parts as the 670nm and 810nm led strips I used are very expensive. I have some left over though to make a pad for other parts of the body.

If you are not too handy, they ship from the Dorset Community Men's Shed in Australia to anywhere if you are interested. Look them up on Facebook to buy one from them.

He emailed about 10 pages of studies and articles about near infra red light therapy. It looks promising and is undergoing clinical trials, all of which seem to be really positive. They sell the helmets to raise money though I see the cost as being reasonable for the material prices.

nexusnewsfeed.com/article/h...

My only issue with the bucket type unit is that it being slightly cone shaped instead of tubular the led strips didn't lie flat like the do on the Cossack version (see link above) and the higher NM lights get warm in the closed bucket. The Cossack version DIY is also naturally vented. I will be adding holes for ventilation in the bucket. As is always suggested, run this past your doctor. I personally couldn't find any risks associated with this except the chance of 40 hz light triggering people with seizure conditions but my search is not exhaustive.

Bonus, I think I can wear it on Halloween without being giggled at. :)

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Nguflh58
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12 Replies
Zella23 profile image
Zella23

Well done making your own hat, a few people on here have made one but many have bought them. My husband uses a read light hat from the men’s shed in Australia and the top has got a circular hole cut out at the top and foam padding surrounding this so it doesn’t get hot when wearing. Maybe you could adapt yours unless it isn’t wide enough. He’s been using it for a year now and feels it helps with his PD. If you look on my profile I have many posts, as have others on using red lights. Our next purchase will be the coronet when his bucket light no longer works.

LondonPD profile image
LondonPD in reply toZella23

My HWP has been wearing the Coronet for about 2 months and we are enthusiastic and think it is helping. They shipped to the UK.

JeanieBeanie profile image
JeanieBeanie in reply toZella23

Where do you buy the bucket light?

Zella23 profile image
Zella23 in reply toJeanieBeanie

We bought it from The men’s Shed in Australia, the coordinator is Mervyn Chilcot and email address is mrc @bigpond.comIt cost about 350 $ in Australian currency and took about 3 weeks to arrive. Good luck 🤞

gwendolinej profile image
gwendolinej in reply toZella23

Hi Zella, is there any reason why you think there’s any difference as far as results are concerned with the hat you have and the more expensive version made by Wellred?My husband has been using the Men’s Shed one, but it’s not helping.

Gwendoline

Zella23 profile image
Zella23 in reply togwendolinej

I m sorry to hear it’s not helping your husband. I think the Well red one looks a bit more substantial, probably more comfortable and I think the lights flash which might be more beneficial and it’s mains wired. Hard to make a direct comparison, I just think as it’s helped my husband we d go for the wellred one plus the therapad which we could both use.

gwendolinej profile image
gwendolinej in reply toZella23

Thanks Zella. I think I’ll order the Wellred coronet. We’ve already got the Therapad. I will give Catherine at Wellred a ring and discuss.

I’ll report back here fully very soon. We are in crisis at the moment, as the mannitol has stopped working.

Gwendoline

Millbrook profile image
Millbrook in reply togwendolinej

Hi Gwen,

The coronet duo is well made and easy to use. I highly recommend it.

Zella23 profile image
Zella23 in reply togwendolinej

Really sorry to hear about that. I re read your story about Mannitol and it clearly helped your husband a lot. Maybe consult your husbands medics and see if they have got any suggestions to help your husband. Hoping it is manageable, and you can get some help. Let us know how you get on.

Michel0220 profile image
Michel0220

Thank you very much for this post that will help put red light therapy within reach of many more PWPs.

Nguflh58 profile image
Nguflh58

It flashes the light on and off 40 times a second which is supposed to be therapeutic. Commercial systems use 40hz. I set it to .040 kHz with a 50% duty cycle meaning on 1/2 and off 1/2

blackbear701 profile image
blackbear701

I have two home-made hats (670nm and 810nm) but what exactly is the "pwm controller that pulses the light at 40 hz"? I saw the link but how do I attach it to the red light strip? Thanks.

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