A question for anyone who built a red lig... - Cure Parkinson's

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A question for anyone who built a red light therapy helmet/hat.

Glenfarclas profile image
43 Replies

Hello. I’m interested in building a red light therapy hat. But I’m having trouble finding a source for 670nm and 810nm led strips. I was wondering if anyone who has built a hat using these specific wavelengths could share a link to where they purchased them.

Thank you.

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Glenfarclas profile image
Glenfarclas
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PDTom profile image
PDTom

Brain stimulation technology e.g. from the companyVielight (Neuro Duo - Brain PBM) Photobiomodulation device for the brain - I have been using this three times a week in “gamma mode” since November 6th, 2021.

Since the beginning of May 2023 I have also been using the helmet fromSymbyx Biomes.

parkinsonclub.de/en/brain-pbm

PDCyclist profile image
PDCyclist

A friend made my hat for me so I don't have the exact link, but they came from AliExpress in China

Glenfarclas profile image
Glenfarclas in reply toPDCyclist

Have you noticed any improvements in any symptoms? How long may I ask have you used it for ?

PDCyclist profile image
PDCyclist in reply toGlenfarclas

About a year. It's just one of many things I do / supplements take/foods avoid etc. so really hard to say what is working . Especially as what is doing good may mean not deteriorating as fast as would do otherwise 😉But I'm a believer in 'marginal gains' rather than silver bullets. So if each thing we do makes us 1% better (on average), then doing 30 things hopefully makes me 30% better than otherwise.

Glenfarclas profile image
Glenfarclas in reply toPDCyclist

That’s true about marginal gains adding up. Forget that sometimes. Do you have a picture of your hat by chance? Just curious what was used for the hat portion.

PDCyclist profile image
PDCyclist in reply toGlenfarclas

Plastic garden fencing! And lots of cable ties ebay.co.uk/itm/133884258232...

LED hat
Glenfarclas profile image
Glenfarclas in reply toPDCyclist

this is great thank you. I swear this picture looks familiar. I think I've seen it before. Does that device pulse the light? Is it a raspberry pi controller? I'm contemplating this led layout so it's great to see an example.

PDCyclist profile image
PDCyclist in reply toGlenfarclas

No, 1st time I've posted photos. Sorry, don't know technical details as a friend made it for me. I believe it is a raspberry pi case, but not sure what is inside. I will ask him.

PDCyclist profile image
PDCyclist in reply toPDCyclist

Here are some more details of the components used - hope it helps someone who knows about electronics -I am not sure what all of it means! Everything my friend told me is below....

Logic controller:  An ESP module espressif.com/en/products/m...   (I used Wemos D1 Mini though any small ESP8266 or ESP32 module would work.  These days I would use a module like this. unmannedtechshop.co.uk/prod...

A 12v buck (step-down) DC-DC converter module (the blue one) to power the LEDs from a 12-30V input.  Not sure of the exact specs but it needs to be able to handle enough current for either the IR or Deep Red strips but not both together.

A 5v converter module (green) to provide power for the ESP8266 module (which has its own 3.3V regulator). 

Enough 660nm Deep Red led strip to make about half of a hat

A similar amount of 810nm IR led strip (or a bit less as they use more cur)

2 x N-channel MOSFETs, one on the negative side of each LED strip, to perform the PWM switching. 

4 (I think) 10K resistors associated with the FETs

A diode on the power input - to allow for higher power than when using USB for input.

A "Dallas"  DS18B20 temperature sensor to measure the 12V module's temperature.  This is probably not 100% required but protects it from overheating with extended use.

A stripboard base to mount and connect the modules

A box (raspberry pi case)

Silicone-insulated wires (for heat resistance)

The MOSFET circuits used drive the LED strips are something like shown here :circuitdigest.com/electroni....   Apparently I used IRF3708 but lots of similar ones would work as long as they will switch on fully with a gate voltage below 3.3V. I think there are 2 resistors for each MOSFET.

Each is driven by a GPIO pin on the ESP8266.

The firmware was built using ESPHome. esphome.io/

Of course it would be much neater to design a custom PCB onto which the modules and other components could be soldered.    It's economical to get them made online if you want more than one or two.

Glenfarclas profile image
Glenfarclas in reply toPDCyclist

This is some really great information. Thanks for posting it and thanks to your friend too. I appreciate it.

Glenfarclas profile image
Glenfarclas in reply toPDCyclist

Hey I dunno if this thread updates posters so I just letting you know I finished the helmet. If you feel like checking it out the link to a new post is below. Also thanks again for the information you provided it was helpful.

Bolt_Upright profile image
Bolt_Upright

Just Google 670nm led strips and 810nm led strips. Plenty of sources come up: Like LEDLIGHTSWORLD ledlightsworld.com/products...

staceysack profile image
staceysack

I had to buy mine in two different places to get the right nm.

670nm ledlightsworld.com/search?t...

810nm superlightingled.com/940nm8...

Make sure you choose the 810nm in the dropdown. Here is the video to make one although I'm using both wavelenghts and this video shows only one:

redlightsonthebrain.blog/20...

Hope this helps!

Glenfarclas profile image
Glenfarclas in reply tostaceysack

does it get hot wearing it? Do the leds produce a lot of heat?

staceysack profile image
staceysack in reply toGlenfarclas

Not really. Remember to only wear it for the recommended 12 minutes each wavelength for a total of 24 mins twice a day

Glenfarclas profile image
Glenfarclas in reply tostaceysack

Thank you. Have you noticed any improvement in any symptoms? How long have you used your led hat for?

staceysack profile image
staceysack in reply toGlenfarclas

I have just started using it this week. I'm not sure yet because it's only been a few days :)

Glenfarclas profile image
Glenfarclas in reply tostaceysack

I hope it goes well I will try to remember to follow with you in a month. Do you happen have to have any pictures of your red light hat?

staceysack profile image
staceysack in reply toGlenfarclas

Here is the top

Top
staceysack profile image
staceysack in reply toGlenfarclas

2 Connections for the 2 different wavelengths

2 Connections
staceysack profile image
staceysack in reply toGlenfarclas

Bottom of hat.... Hope this helps :) Good luck to you too!

Bottom
Glenfarclas profile image
Glenfarclas in reply tostaceysack

Thank you for the pictures. Seeing other people’s hat masterpieces is helping to keep me motivated and not discouraged, like the fact my finger dexterity is a lot worse than I thought after fiddling with wires and a tiny bits and pieces. Made me quite sad.

staceysack profile image
staceysack in reply toGlenfarclas

I am sorry to hear that. Maybe doing more things using your fingers would help improve your dexterity? Best of luck in creating your own masterpiece 😀

Glenfarclas profile image
Glenfarclas in reply tostaceysack

HI Stacey, I was wondering if you started to notice anything after using your hat? Not sure how much time has passed. Anything positive?

staceysack profile image
staceysack in reply toGlenfarclas

Hi! Sorry for the late reply... I was out of town. I have noticed that I sleep better - especially if i wear it right before bed. I believe it has also helped with constipation. I wish I knew why lol! I have no idea why :)

Glenfarclas profile image
Glenfarclas in reply tostaceysack

Better sleep? Better poop? Sounds like heaven to me. This is great news I’m happy for you. I hope you continue to use it and see more improvements in other areas. I’ll check in on this again in a couple of months. I’m 50% done with hat building. I’ll post some pics when I’m done.

Glenfarclas profile image
Glenfarclas in reply tostaceysack

Hi Stacey. I had a question. The LEDs usually come in 5 meter rolls. Did you wrap all 5 meters of LEDs in your hat?

staceysack profile image
staceysack in reply toGlenfarclas

Hi Glen - No. I used most but not all of them.

Glenfarclas profile image
Glenfarclas in reply tostaceysack

I see. I noticed that there isn’t many LEDs on the top of your hat shining downwards onto the top of the head, since it’s hard to bend the LED strip that way. While working on my hat project I came across some of these LED connector kits. They have easy clip connectors so you can cut and connect then bend the strips into different directions.

amazon.ca/FSJEE-Connector-I...

This is a link to one of many different kits available. Just wanted to share this with you in case you had any interest in adding LEDs to the top of the hat so they can shine on the top of the head and increase the benefits you are starting to see.

staceysack profile image
staceysack in reply toGlenfarclas

Thank you - I have informed my hatmaker (my husband). I appreciate the information.

Glenfarclas profile image
Glenfarclas in reply tostaceysack

I finished the helmet if you want to have a look. The link is below I posted it in a new thread. Thanks again for your help.

staceysack profile image
staceysack in reply toGlenfarclas

You are welcome & I saw it. You did a great job :)

Autumn56 profile image
Autumn56 in reply tostaceysack

Why should you not wear it longer? I bought a handheld device called the cureray pro for my husband. It has both Nir and red light LEDs . I have used it for like half an hour on his forehead and brainstem. Is it a bad idea to overdo it? He has dementia and I am wondering if I am making it worse if I use the red light on him. His walking and movements are definitely improving. I really need to know more about this, and would appreciate more info. I bought Mark Sloans book on red light therapy, but did not get any guidelines on how much to use it.

staceysack profile image
staceysack in reply toAutumn56

I'm not sure if it's bad to overdo it but I believe there have been some negative effects for people. I just listed the time recommended by the company that makes the duo coronet.

Glenfarclas profile image
Glenfarclas in reply toAutumn56

Hi. I’m not familiar with the device you are using but longer isn’t always better. I wish I could be more helpful other than mentioning that. There is a channel on YouTube called brain-PBM. They have a variety of information on the use of photobiomodulation light therapy for things like Alzheimer’s dementia Parkinson’s TBI etc. hope it helps.

OhGussy profile image
OhGussy

I've been using one similar to this one on Amazon for 2 years. It has both bands and a 40hz pulse: a.co/d/9lEMsgP

Autumn56 profile image
Autumn56 in reply toOhGussy

Link does not work for me.

Sefu profile image
Sefu

Hi This might be a helpful link. wellred.com.au/products

Glenfarclas profile image
Glenfarclas

I want to thank everyone for their responses, I appreciate it. I will update this post as I make progress with the project.

Glenfarclas profile image
Glenfarclas

I forgot to ask for those of you who made a homemade helmet or hat, how hot or warm does it get wearing it? Do the LEDs produce a lot of heat? I'm still trying to decide the type of helmet or hat to use to mount the LEDs to.

Glenfarclas profile image
Glenfarclas

Hi everyone. I’m almost finished my red light helmet. I’ll either post the photos here or start a new thread with a link here. Thanks again for everyone’s help with links to parts and photos advice etc.

Glenfarclas profile image
Glenfarclas

I posted videos of my red light helmet here in a new thread.

healthunlocked.com/cure-par....

Cherryripe12 profile image
Cherryripe12

Hi all, I have a good friend with Parkinson's, but he lives 25 miles away from me, so I don't see him very often. I joined this forum some time ago, so that I could help him in any way I could with suggestions from other people. (He has had PD for about 17 years)

I read about red light therapy and asked a clever friend to make one for me/my friend. I am in the UK and had trouble tracking down the right LED strips. I eventually found them in the USA, but needless to say were very expensive.

Cutting a long story short, after I had had the hat made, sadly my friend had deteriorated considerably after a spell in hospital when they wouldn't let him walk around. ( He now can't walk!) He can no longer do things like putting a red hat on his head or switch it on. Nobody, (including his wife) was willing to enable him to use the hat, so I now have a hat which is virtually unused, and is surplus to requirements.

It cost me nearly £300 in materials, and is now just sitting here. If anybody would like to buy it, I feel that £250 would be a reasonable sum. Any takers?

Thank you.

Cherry

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