I just joined this group. My husband has PD he has been diagnose 2 years ago. We live in Canada and his neurologist is not suggesting anything only the pills... I started doing my own resarch and I found that group. I am interested in building that red light therapy bucket (Max Burr)
I am not sure how to do it...anyone?
Gigi,
About a year ago one of the forum members, jeeves19, built the red light therapy bucket, see link
Click on my icon and you can see the posts
On red light helmet and Vielight . You are in Canada - Vielight is Canadian. Recent trials on Vielight gamma are promising. Start on Vitamin B1 and mannitol.
Do you know if the vielight is covered by insurance?
Sorry I have no idea. But if you get it from neurofeedback quietmindfdn.org and feedback to them your progress you get 20% discount.
You can use it for 6 months and return it if it does not work for you and they will refund you 80%.
They have a new model out and someone on this support group was in a trial with the Vielight gamma and the X plus in Australia and reported good progress. Alternatively, you can go to Vielight.com and contact them to find out what is best for you.
All the best
Hi ..I live in Canada as well.. my neurologist is not helpful at all. Has always suggested pills.. I was diagnosed 7 yrs ago
By “always suggested pills” you mean your neurologist is recommending medication with known effects and known side effects? You wish to take advice from health amateurs, and try substances with unknown effects and side effects ?
I think you had better listen to your neurologist
Hi condor
What I meant was that there is no others suggestions of other things that could help ( I know he cannot stop his medication)
There’s a lot of info out there including the site red lights on the brain
check out amazon for red lights no helmets but they other things that might do the same i have sent away for one to see if it helps.regards john
I have been on this website for many many years. There is a continuous search for a cure that goes on here constantly. One of the problems is that people are desperate to alleviate symptoms and band wagons are easy to jump on to. The group who are determined to not take medications prescribed by their doctor eventually hit the wall at full speed and at that point will try anything . IT may be that there are many different diseases that do not all respond to the same treatment but are very similar that are in a family called Parkinson's . There is a long list that will get longer. If you are going to go out and buy the coconut oil or b1 or B12 or prunes (or whatever they are ) magnetic field generators or red lights, only buy enough for the test / experiment. Personally I like my aluminum hat best.
If any of this stuff really worked it would be on every news cast in the world and in every newspaper. People would be telephoning you with the information and there would be dancing in the streets, but they are not. BEWARE just because some one here fully believes the magic has cured his PD, swears on his mothers grave and promotes it ,does not mean it has actually made any difference or that he actually had PD.
I made an infra red Cossack hat for my dad 2 months ago - he has had had Parkinson’s for 10 years. He suffers from poor posture, sleep depriving RLS, freezing and also has hallucinations. Luckily he is active and always busy in the garden. He is in much better spirits and his mood is much lighter after switching the lights on. I am in the process of making another one with 2 alternating wavelengths 670nm and 810nm to use twice a day for 15-20 mins. In addition to a pill regime he has used it most days. He manages to sleep much better and do loads more activities. More lucid and clearer speech. Because this method is new and needs a few more years testing, you can’t easily buy the hats.i can give you tips on making and buying LEDs but I followed instructions from redlightsonthebrain.blog
MissionTBC,
How is your Dad doing with the Cossack hat? Do you still see improvements?
I am looking into the infrared light therapy but not sure which one would be more effective - Vielight which is very expensive or the red light hat (Cossack) which my husband could make for a fraction of Vielight.
dad has switched to a bought an infra red light from the US about 3ft x 2ft for £300 - 20 mins a day varying times of day - doesn’t interfere with sleep if he does it at night. Seems to boost energy and clarity of thought. Does plenty of exercise and doesn’t drink alcohol anymore. RLS and dizziness a lot better.
Thanks for sharing, amazing that you made your dad hat! How is this going? Also, what time of day does your dad sit under the light? I'm gonna try and get my dad on this.
Hi PDkid - Dad uses his infra red treatment it at different times but i hear it’s best in the morning from some sources. he’s bought a panel with 2 types of infrared and uses it most days for 20 mins. More effective than the home made hat we think.
hi gigi, have you had any luck with the red light yet? my husband was also diagnosed almost 3 years ago and we are in canada
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