mannitol and painful cramp: A couple of... - Cure Parkinson's

Cure Parkinson's

26,569 members27,876 posts

mannitol and painful cramp

gingerj profile image
10 Replies

A couple of weeks back I woke and could hardly straiten my arms for painful cramp. Painkillers got me through the day but it seemed to be getting worse. I couldn't pick up a mug without pain. I have been taking mannitol for 4 months 12g a day. The weather has been warm (unusual for north England). Reading that mannitol is a diuretic I decided to have a week off it. The pain went by day 3. I'm back on mannitol now., Drinking more an eating more fruit and salt. It's still unusually warm. Anyone else had this experience and can put it down to mannitol?

Written by
gingerj profile image
gingerj
To view profiles and participate in discussions please or .
Read more about...
10 Replies
alexask profile image
alexask

It's possible. I don't know what would be the best dose. I am not sure how much I take, but it may only be 4 grams. It is important to make sure you are hydrated before taking this. Also if you find this gives you excessively loose stools it is likely you are taking too much.

gingerj profile image
gingerj in reply toalexask

Thanks alexask I'm sure 12g was recommended when I started clinicrowd. I'll check. It doesn't give me any gut problem at all. It could have been a combination of warm weather, coffee and mannitol. I did worry that my PD had suddenly got worse.

alexask profile image
alexask in reply togingerj

If that was recommended then carry on. Do you take it all in one dose or spread it out? Have you been exercising and sweating a lot too? It might be worth taking a magnesium supplement also. I see you are a postman so would be getting more than enough cardiovascular exercise!

gingerj profile image
gingerj in reply toalexask

Yeah I have been out delivering in the sun every day. I do use betteryou magnesium spray.

Despe profile image
Despe in reply toalexask

My husband was on Mannitol for about 2 months. He had to stop it as his bathroom trips were every 25-30 minutes, day and night. He couldn't get quality sleep plus it caused him low blood pressure and extreme fatigue. He stopped it and he feels a lot better!

NancyJHP profile image
NancyJHP

I had horrible cramps daily. I have been taking magnesium and haven't had one in months.

gingerj profile image
gingerj in reply toNancyJHP

Hi Nancyjhp. Are you still using mannitol? Which magnesium product do you use?

Astra7 profile image
Astra7

I'm taking a heaped tsp of mannitol daily. I do get quite a lot of cramp but had never thought it was related. I take magnesium and b1 as well.

My eyes are a but odd though and I am wondering if mannitol is effecting them. It is used to reduce pressure in people with glaucoma. Are yours ok?

I believe mannitol is virtually reversing my symptoms and would hate to have to stop taking it!

Astra7 profile image
Astra7

I've just read your profile- did your dr prescribe mannitol??

gingerj profile image
gingerj in reply toAstra7

Hi astra7. I started taking mannitol due to this forum. I logged on to clinicrowd and keep filling out the questionnaire each month. I guess the amount taken would need to be much higher to improve glaucoma. My vision is iffy anyway. I need new glasses but want to get the tremor under control before the test.

Not what you're looking for?

You may also like...

Mannitol and Dopamine Levels

My husband started 1 tblsp of mannitol per day a month ago. He responded immediately with a lot...

mannitol

http://clinicrowd.info/pd-registry/ Hi everybody, about 5 days ago I got my 5 kilos of mannitol...
parkie13 profile image

Mannitol and bacteria

Here is another piece on mannitol selectively growing bacteria. My husbands faeces analysis showed...
LAJ12345 profile image

Proper Mannitol Dosing?

How much Mannitol are people taking please? I've been adding a rounded teaspoonful of Mannitol to...

Mannitol and dizziness?

My hwp has been taking mannitol for over a year. I recently increased from 1 tsp to a healing tsp....
Turnipbarrow profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.