Toes curling: Remind me what causes it, is... - Cure Parkinson's

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Toes curling

akgirlsrock profile image
16 Replies

Remind me what causes it, is it lack of dopamine? I get Botox in feet and lower legs I don't get cramping in legs, but toes seem to curl once in a while, I ate to soon after I took my pills. So I had to use my Inbrija ,84 mg. and it stopped. I'm trying not to use to much, I don't like the idea of inhaling something into your lungs. I was thinking how scary it would be if I didn't have the Botox for cramping, my lower legs would cramp bad it was painful. I take magnesium, B1, melatonin, C. Thank you, Maria

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akgirlsrock
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16 Replies
Thal profile image
Thal

I wear silicone toe separators from Amazon.

Manypony profile image
Manypony in reply to Thal

I have a toe separator called “correct toes” it’s excellent

park_bear profile image
park_bear

You have answered your own question - Inbrija put a stop to the toes curling, thereby demonstrating it was a lack of dopamine.

pdpatient profile image
pdpatient

Hi Maria. @park_bear is right in concurring with your own assessment and I second the hypothesis. An MDS would of course make the final call 🤔

I am curious, why Inbriga? I hope that you are seeing an MDS and not a general Neurologist.

RKM

akgirlsrock profile image
akgirlsrock in reply to pdpatient

The inbrija works fast 10 to 15 minutes and not having to go through the intestinal track, getting into system fast.

Astra7 profile image
Astra7

I can literally watch my toes uncurl as the meds start to work. It’s lack of dopamine in my case.

Kia17 profile image
Kia17

Avoid acidic foods . Squeezing a lemon in a glass of Lukewarm water and drinking an hour before bedtime helps alot.Avoid nuts like walnuts and animal protein. Avoid coffee. Eating leafy green vegetables can also help immensely.

Despe profile image
Despe

Did you ever try Magnesium oil instead of Botox? Are you taking any kind of Magnesium supplements?

akgirlsrock profile image
akgirlsrock in reply to Despe

I use lotion but I'm out ,the oil makes me itch, I was thinking of trying to make some lotion, it might be more economical.

Despe profile image
Despe in reply to akgirlsrock

Yes, you can add magnesium oil to your body lotion, preferably fragrance free. If you search HU, upper right-hand box "Search HealthUnlocked," you will find Art's posts on Magnesium. He was/is my teacher! :)

glenandgerry profile image
glenandgerry in reply to Despe

Mine too!

rebtar profile image
rebtar

lack of dopamine. I also have this problem if I take meds too soon after eating protein containing meal.

jeffmayer profile image
jeffmayer

Me too but only for About15 minutes in the morning waiting for my meds to kick in after that no problems

Manypony profile image
Manypony

Toe curling is among my most aggravating symptoms. It wakes me up in the morning and barely stops at night. I also use a toe separator called “correct toes” which is currently keeping my sanity. I’m using mucuna for dopamine but still at a low dose.....

beehive23 profile image
beehive23

Dystonia. ....

Vjbaiocco profile image
Vjbaiocco

Normally when I wake up in the mornings my left toes tingle and sometimes curling. I take 1 gram of B1 Thiamin hcl and discomfort stops within 15 minutes. I have breakfast and about an hour later I take my first carbidopa levidopa. 15 minutes later my toes start curling. I take another gram of B1 and the curling stops. I basically take my meds according to how my body feels. I take anywhere between 1 gram to 3 grams of B1 a day. Sometimes I take my 3rd c/l before bed. For sleeping I take Trazodone 50 mg tablet and I sleep very well. Without it, I'm awake most of the night.

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