Anyone else?
Curling of toes : Anyone else? - Cure Parkinson's
Curling of toes
Yes. One of my worst symptoms. DBS has helped immensely. I still need to stretch them regularly. Best technique for me is to kneel with my toes into the carpet pulling them and my foot towards my knees. Hurts but helps. Keeps the tendons from getting shorter DYSTONIA IS A PAIN!
Thanks for the stretch tip
Are usually just put my hands on the wall and step Away from the wallBackwards to stretch my toes and caloves
Me,too...makes running in the pool a bit painful, but gotta do it! Thanks etterus for the stretching advice!!
In my case dystonia is linked to being under-medicated.
To test for this ask yourself the question: is the curling worse when you are at the end of a dose? If yes, you might wise to increase your meds by increasing the dose, or by increasing the frequency or by adding an inhibitor.
John
I have that with exercise, sometimes just normal walking if i'm stressed. Since I try to get as much exercise as possible, I find that the shoes with toes (vibram brand) help a lot. Or going barefoot.
Yes in the morning before I take my meds, painful!
Happens a lot on the spin bike in my right big toe. It eventually stops after a few minutes. I just keep going and stretch out my soleus muscle on the pedals.
I elevate the hurting foot higher than the other foot so pain is not as bad.
Me too painfull & big toe holes in most of my socks ! Any advice on that?
Me too, especially when running, does seem to come and go in terms of frequency , seems to creep up in severity when get slack about exercise regime.
Dystonia, what a pain. Would hit and take my legs out from under me. Then bad ones would take my right shoulder and leave me in a fetal position in treats and so much pain. And I couldn't do anything with those until it passed. When it was just the legs I could stretch the muscles the opposite way the dystonia was pulling them and stay that way for a few minutes.
Dbs surgery with just the leads made my dystonia gone. At least mostly, very little if any only with stress now.
I’m curious.. how long ago did you get the surgery? How long did you wait to have the electrodes turned on... and where did they perform this?
Deep brain stimulation