Curling of toes : Anyone else? - Cure Parkinson's

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Curling of toes

Rosabellazita profile image
20 Replies

Anyone else?

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Rosabellazita profile image
Rosabellazita
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20 Replies
etterus profile image
etterus

Yes. One of my worst symptoms. DBS has helped immensely. I still need to stretch them regularly. Best technique for me is to kneel with my toes into the carpet pulling them and my foot towards my knees. Hurts but helps. Keeps the tendons from getting shorter DYSTONIA IS A PAIN!

BUZZ1397 profile image
BUZZ1397 in reply toetterus

Thanks for the stretch tip

Are usually just put my hands on the wall and step Away from the wallBackwards to stretch my toes and caloves

Grumpy77 profile image
Grumpy77 in reply toetterus

What's DBS?

etterus profile image
etterus in reply toGrumpy77

Deep brain stimulation

justhavefun2 profile image
justhavefun2

Me,too...makes running in the pool a bit painful, but gotta do it! Thanks etterus for the stretching advice!!

johntPM profile image
johntPM

In my case dystonia is linked to being under-medicated.

To test for this ask yourself the question: is the curling worse when you are at the end of a dose? If yes, you might wise to increase your meds by increasing the dose, or by increasing the frequency or by adding an inhibitor.

John

Rosabellazita profile image
Rosabellazita in reply tojohntPM

No end of dose because im not taking any meds

rebtar profile image
rebtar

I have that with exercise, sometimes just normal walking if i'm stressed. Since I try to get as much exercise as possible, I find that the shoes with toes (vibram brand) help a lot. Or going barefoot.

BUZZ1397 profile image
BUZZ1397 in reply torebtar

Yes barefoot totally helps the most until your feet start hurting from walking on the hard floor surface but Walking on grass or sand is wonderful

camper1 profile image
camper1

Yes in the morning before I take my meds, painful!

harding55 profile image
harding55 in reply tocamper1

That's when mine does it too

camper1 profile image
camper1 in reply toharding55

Neurologist said it’s the lack of dopamine in the am and that’s when it is most common in parkinsons patients.

jrg54321 profile image
jrg54321

Happens a lot on the spin bike in my right big toe. It eventually stops after a few minutes. I just keep going and stretch out my soleus muscle on the pedals.

Coblrman profile image
Coblrman

I elevate the hurting foot higher than the other foot so pain is not as bad.

Bouffere85 profile image
Bouffere85

Me too painfull & big toe holes in most of my socks ! Any advice on that?

Ratzkywatzky profile image
Ratzkywatzky

Me too, especially when running, does seem to come and go in terms of frequency , seems to creep up in severity when get slack about exercise regime.

CplParkinson profile image
CplParkinson

Dystonia, what a pain. Would hit and take my legs out from under me. Then bad ones would take my right shoulder and leave me in a fetal position in treats and so much pain. And I couldn't do anything with those until it passed. When it was just the legs I could stretch the muscles the opposite way the dystonia was pulling them and stay that way for a few minutes.

Dbs surgery with just the leads made my dystonia gone. At least mostly, very little if any only with stress now.

etterus profile image
etterus in reply toCplParkinson

I’m curious.. how long ago did you get the surgery? How long did you wait to have the electrodes turned on... and where did they perform this?

CplParkinson profile image
CplParkinson in reply toetterus

2016 October, about a month before turned on. Of course during the surgery I was miserable when they had to test the leads. Dystonia was horrendous. But once all was done things turned around and I was so happy.

They did it at North shore Evanston hospital, Chicago ill.

etterus profile image
etterus

Deep brain stimulation

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