‘pee’ in bed: My husband needs to get up to... - Cure Parkinson's

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‘pee’ in bed

Jumex2017 profile image
18 Replies

My husband needs to get up to go to the toilet otherwise he pees in bed. He wears a nappie just in case but nevertheless his clothes still get wet. es now taking the pumpkin seed extract as well as the terazosin. Any advice will be welcome.

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Jumex2017 profile image
Jumex2017
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18 Replies

You can buy a plastic bottle with a cap that he can pee into. Google "portable male urinal". Of course it requires him to be able to sit up a bit, do his business, and put the cap on (without spilling!)...

LindaP50 profile image
LindaP50 in reply to

In order for my hubby not have to risk a nighttime fall, we purchased a male urinal with a long flexible hose, the cup part has a hook which he hooks onto bed railing. He doesn't have to get up from bed, just turns to his side and picks up the cup and does his business. Places the cup hook back on the railing. Keeps a hand towel by his side. We also put a chubs light plastic liner under the sheet for extra protection. Wash out the urinal base and hose every morning.

Here's some info I found … not the same one we purchased … don't see the hook on the cup but this gives you an idea.

Go Pilot Package Portable Urinal with Flexible Hose

Rated 4.00 out of 5 based on customer rating $29.95

The Go Pilot is a portable urinal. Unlike the bulbous urinals you see at tailgating parties, the Go Pilot is a compact device that traps in odor along with urine.

Gedge01 profile image
Gedge01

Hi, I had a similar problem but by limiting my evening drink to be no more than half a cup of nettle tea.This has worked for me.

Regards Geoff

GymBag profile image
GymBag

Plastic bottle male portable urinal already mentioned is great. I keep one in the bathroom also to ensure safe control.

For severe bed ridden cases they also use a condom catheter. Like the other more familiar kind it has a bag , but is does not have an insert-able tube but instead uses a condom. I have not used one so I cant tell you details. They are used in hospitals.

LindaP50 profile image
LindaP50 in reply toGymBag

Now that sounds less invasive. Will keep that in mind.

Hiroko profile image
Hiroko

Why not invest in a portable toilet placed near the side of the bed. It would help your husband where he doesn't have to travel to far.

gwendolinej profile image
gwendolinej

Just a thought...could if be any of his meds? My husband was on Florinef because he had orthostatic hypertension. He went off the Florinef because he suddenly had high blood pressure instead of low, and his bladder problem disappeared. The specialists certainly hadn't seen the connection. The bladder problem only started when he'd be on Florinef for a couple of years, so of course, they didn't connect them.

JeanieBeanie profile image
JeanieBeanie

My husband gave up sugar because he is pre diabetic and he has found he doesn't need to get up in the night as much. Also bedrails help.

Millbrook profile image
Millbrook in reply toJeanieBeanie

Someone mentioned that sugar causes cortisol to go up and that leads to nocturia

asmckay profile image
asmckay

Anything you can do to deepen your husband's sleep will help. Deeper sleep means less cortisol and less awakening. Cut out sugar and refined carbs at night.Increase root veg.Eat something with good far in it (avocado, nuts, seeds) at night.

ladyaudree profile image
ladyaudree in reply toasmckay

This helped me. I'm an 83 year old woman.

asmckay profile image
asmckay in reply toladyaudree

That is excellent. Well done. we can improve our health at any age.

NanCyclist profile image
NanCyclist

I am a woman who just had knee surgery and had same problem last night trying to get to the bathroom in time. I think I will try depends tonight for any comments you have to help would be appreciated. It was a heck of a long walk for a few steps in the middle of the night last night.

SharryEdwards profile image
SharryEdwards

try AZO (cranberry) Amazon has it - worked for me

Bobkat profile image
Bobkat

The urologist gave my husband a prescription for my berg. It helps somewhat, but not entirely. He keeps an urinal by the bed. At the worst of this when he got up 12 times during the night and I had to help him sit up, we finally found that an external catheter bag helped a lot.

Hikoi profile image
Hikoi

PwP are known to have problems of urgency. It is to do with autonomic dysfunction. Hope you find a solution which works for your husband

Millbrook profile image
Millbrook

My husband used to get up 6-8 times a night. We tried AZO, then pumpkin seed extract and managed to reduce it to 3-4 a night. He has a urinal bottle next to his bed so that he does not have to get out of bed as frequent visits to the toilet are opportunities for falls. We just started melatonin and presently he is getting up 2-3 times and having longer sleep. Will let you know how he progresses

Yankeeboy profile image
Yankeeboy

I had the same issues except during the day with my Parkinson's, having to go every hour to an hour and 1/2, but very little would come out, had prostrate problems a few years before this, but surgery removed a very large portion of this, my urologist found out it was just my brain telling myself I had to go from the Parkinson's, he implanted an Interstim in me that used a tiny electrical pulse to control the bladder, problem solved, now onto other issues, such is the life of living with Parkinsons, had it since 2004 although mine is from welding due to manganese poisoning, symptoms pretty much the same & take Sinemet

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