Messed up oral biome: Anyone else have... - Cure Parkinson's

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Messed up oral biome

Oceanflow profile image
19 Replies

Anyone else have experience with a noticeable change in their mouth biome, or saliva chemistry? is anyone else having trouble with motility in the gut as well?

For example, I have trouble with slow transit/motility and I feel like my whole colon is dried out. Strangely similar is my oral biome - as the saliva in my mouth does not do its job anymore. Much of the time my mouth has a useless variety of saliva -seems that the chemistry of the saliva has changed in a way that it doesn’t dissolve the debris in my mouth well it seems to take forever to do the job. When I’m out with friends or some social group at dinner, I’m embarrassed to open my mouth and smile because I know I have food stuck in my mouth. (pocketing)

Also, I noticed when I am trying to eat but am also wearing off my drug, it’s even more difficult because it seems that my saliva could be affected by the level of levodopa. (and of course the mouth muscle is not working as well when I am wearing off).

Does anyone out there know more about this and can help me understand how to change my oral biome to make it function better? I’m just guessing here, but I suspect there might be a way- just like when you add a probiotic for your gut health.

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Oceanflow
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Rosenmu profile image
Rosenmu

This looks like it might be helpful, lots of info.

marksdailyapple.com/how-you...

Oceanflow profile image
Oceanflow in reply toRosenmu

Fantastic find, thanks Rosenmu! Seems like I should not brush my teeth 3 times a day after all, and I should maybe eat more Paleo-style, and kiss more fellas !🙂

WinnieThePoo profile image
WinnieThePoo

Drinking plenty of water may help? Food for probiotics instead of pills (homemade sauerkraut, kefir, honey, yoghurt, kombucha) might help promote a healthier oral microbiome.

park_bear profile image
park_bear

Yes, PD dries out the G.I. tract from one end to the other. As to the lower end, I found that high-dose thiamine, plus 500 mg of magnesium glycinate twice a day helps.

The problem you are experiencing in your mouth is bacterial biofilms are no longer properly attacked by the saliva, making your teeth sticky instead of smooth and slippery. Not only can it be unsightly and embarrassing but it can also lead to tooth decay. I have invented a toothpaste that solves this problem - my dentist was impressed because it stopped my decay problem - he called me "smarter than the average bear". I just about fell out of the chair laughing, but I digress.

The Recipe:

Neutralized NAC: N-acetylcysteine powder +25% calcium hydroxide by weight. NAC alone is highly acid. The calcium hydroxide brings the pH to neutral or slightly alkaline. NAC dissolves biofilms.

Serrapeptase: this also dissolves biofilms. It is probably optional.

Calcium ascorbate: the calcium salt of vitamin C, also roughly neutral in pH.

The foregoing are readily available from Amazon in bulk, except the serrapeptase which comes in capsules. This mixture is preserved and dissolved in 40% ethanol, otherwise known as vodka, to prevent spoilage.

I make up about an ounce of this at the time and keep it in a small plastic bottle. That lasts for several weeks. I dip my toothbrush in it before brushing. My teeth are once again nice and smooth and slippery.

Oceanflow profile image
Oceanflow in reply topark_bear

Hi PB! Nice share with your toothpaste. 🙂 Actually, my teeth are generally clean because I’m ridiculously self-conscious, so I brush them too many times a day - I don’t have a film on them, it’s the saliva itself that’s not doing the job of making the food disappear as it does for normal people. For me, it gets to the point of having an unswallowable mess in my mouth that I need to spit out.

park_bear profile image
park_bear in reply toOceanflow

There is a medication named Cevimeline that promotes the release of saliva. I find it helpful.

John_morris71 profile image
John_morris71

Regarding Motility in the Gut - try having Ginger juice; research proves that it enhances motility appreciably. As a bonus, it is anti-inflammatory and combats nausea. I have been giving my mother ginger juice. Pl. see details in link where I refer to details of ginger juice and its preparation at home. Note that I am not a doctor and it should not be taken as medical advice.

healthunlocked.com/parkinso...

Oceanflow profile image
Oceanflow in reply toJohn_morris71

Thanks John,

I do try ginger tea and ginger juices from time to time and it does seem to help a little.

Rosenmu profile image
Rosenmu in reply toJohn_morris71

Making sure your Vagus nerve is active and firing, it influences/controls things in the throat, stomach all the way down. I can see it losing stimulus the more we're effected by PD.

Oceanflow profile image
Oceanflow in reply toRosenmu

I think mine is overactive! Definitely it’s made itself known to me. Have you come across the “Out-thinking Parkinsons “ site? It’s full of info you don’t get from your docs...

Rosenmu profile image
Rosenmu in reply toOceanflow

No, I've just recently started reaching out to more Parkinson's boards.

LAJ12345 profile image
LAJ12345 in reply toRosenmu

How do you “ feel your vagus nerve” losing stimulus? Is it just things don’t work so well and you put it down to the vagus or is there something you can actually feel? Is it to do with that anxious gut feeling?

Rosenmu profile image
Rosenmu in reply toLAJ12345

It's one of those things that needs to be diagnosed, you can search it out yourself or consult your DR.

pyckle_syckle profile image
pyckle_syckle

Re changes in saliva chemistry, I’ve noticed a difference in the elasticity of my saliva. When I spit, or unfortunately drool, it stretches out to be impossibly thin before it breaks off and then what remains stretches out again.

I used to experience the same phenomenon premenopausally, when I had at least two wicked migraines a month. My whole body chemistry would change and the elastic saliva was one part of it. It was often one of the first symptoms. But now it’s all the time.

I guess it’s an increase in the protein elastin, or something related to it. Why it’s happening now, is still unclear to me.

LAJ12345 profile image
LAJ12345 in reply topyckle_syckle

I wonder if NAC would help that?

mayoclinicproceedings.org/a...

pyckle_syckle profile image
pyckle_syckle in reply toLAJ12345

Thanks for the suggestion and the link ". However, I don’t think I’m experiencing xerostomia (a new word for me that just means ‘dry mouth’) or thickened saliva. In fact, I’d say it has a more fluid, slippery quality. And, thankfully, it’s not a problem I can’t currently deal with.

Willowpom profile image
Willowpom

You should look up on Google,Facebook or maybe you tube the interconnected series,oral microbiome that will probably give you the answers you are looking for.

justjohn46 profile image
justjohn46

hi oceanflow well there are 2 things you can buy both are easy to use,,, one is called green black walnut wormwood complex the other one is called triplex both are hebal medicine it tells you how to use it, both are the same just read what it says on the bottle when you sleep keep your head high on your pillow if you want to try b 12 go see your doctor he will give give you it or get some one there will do it for you.regards john.

Oceanflow profile image
Oceanflow in reply tojustjohn46

Thanks, some new ones to research!

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