B1 thiamine HCl dosage: I was diagnosed... - Cure Parkinson's

Cure Parkinson's

26,183 members27,513 posts

B1 thiamine HCl dosage

Fattu profile image
3 Replies

I was diagnosed with parkinson's before one year I am 66 , when the disease is started I had tremor in right forearm and a pain like burning sensation, I am taking L/C, 75mg/18.25mg for one year, now I want to take B1 with L/C ,so in which dose should I start to taking

Written by
Fattu profile image
Fattu
To view profiles and participate in discussions please or .
Read more about...
3 Replies

Parkinson's disease relief:

Diagnosed

2012

My regimen:

The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...

Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.

New schedule, now I follow this regimen:

2 x day C/L 50-200 ER : 8 am, 5 pm. Because it is ER, I take with or w/o food.

2 x day (8 am 2g, and 5 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:

(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)

Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".

Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.

I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –

Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600... ; …

Parkinson's Relief, Questions and Answers

Guide:

1. Read page, About, open links.,

2. On Files page, open B1 FAQ document.

3. On Files page, download First Appointment document, answer and submit.

4. read Announcements

5. Website: Dr Costantini's guidelines on Parkinson

stopparkinson.org/en/table-...

Fed1000 profile image
Fed1000

In this forum you will fin all the possible information on how to take B1. I have been taking it a few months in increasing doses. I started with 100mg morning and afternoon and currently I am increasing by 100mg in 100mg every 15/20 days. I hope to find the right dose soon. Tha majority of memebers that using B1 (following the instructions of Dr. Costantini) has started with high doses and then started to go down. There is no a standard dose that fits for everyone because everyone has a different condition from the other. It takes patience and trust. Good Luck

M-o-ggy profile image
M-o-ggy

I started on 1grm every morning 6 weeks ago. It took three days before I noticed an improvement and that was with something that I have had forever and didn’t relate to Parkinson’s.

After 3 weeks I increased to 1.5. The improvement was amazing.

I didn’t really think that there would be more improvements but because of Dr Constantine’s recommendations I decided to increase the dose and a week ago I started on 1grm in the morning and 1 at mid day.

Still more improvement. I am delighted and can’t quite believe it.

I will stay on this dose for a while I don’t know how long ‘a while’ will be but I am a very curious person so I will probably will increase the dose again to see what happens.

I am stage three and about three months ago noticed that I was having trouble with multi syllabic words. That has stopped.

I take 6 tablets a day and 1 long release for night.

Exactly how am I going to explain this to my specialist :-).

My son tells me they gave B1 to soldiers in WW1( I think) for damage to the brain.

Not what you're looking for?

You may also like...

Thiamine HCl plus allithiamine

Over this past week I stopped c/l my tremor became more troublesome especially trying to sleep....

Thiamine HCL timing

Does Dr. C recommend a waiting time before eating after taking the thiamine HCL or does it matter?...

B1 (high dosage) intake

Should it be taken with food? How long should it be taken after my AM C/L, Amantadine?

Dose, thiamine hcl / B1

This morning I combined my morning and afternoon dose. I took eight capsules (4 grams) in one...

Thiamine hcl update

I sent videos of myself walking, talking and of the pull test to Dr Costantini today. I was not...