Feeling blah

[Cleo16]

Neurologist appointment today feeling so flat after it.All is stable but It's all about meds and not about me the person. I am losing me because every minute >is filled with Parkinson's. Sorry feeling blah..

[Xenos]

You are not alone...

[Nitro53]

Ditto

[John_morris71]

My mother's doctor is also just like that. Does not know much about ongoing trial/research or ANYTHING about Alternative Medicine. Just go there once every 4 to 6 months to visit him and get prescription for her, after paying her co-pay. Same question every time " so how is she doing"; nothing more. He cannot go beyond the standard protocol even if he wants to, as he risks losing his license if something were to go wrong. This portal is a great source of information and encouragement.

[justjohn46 in reply to John_morris71]

yes john i dont go to them anymore as they dont give a sh,t about about you 5 mins later for what they just chat about nothing i tried getting cannabis oil he wanted 400 dollars for just seeing me then he asked 250 dollars for writing the script hen 350 dollars for a 60 ml bottle from canada so the total amount was 1000 for 1 tiny bottle of oil i just paid the 400 dollars and never went back again.you learn more here and it dont cost any thing..regards john,

[LindaP50]

Be pleased that "all is stable" - my husband's neurologist is a pleasant person, will give you time to talk although he isn't interested in knowing what supplements you take, he does like to hear that you try to exercise or at least walk a bit each day, other than that you are on your own which is one of the reasons we go on HealthUnlocked and do our own research to feel we are doing something to slow down the PD and make each day worthwhile. Live in the Moment.

You are definitely not alone. We are all here for one another.

[JohnPepper]

Hi Cleo16. Are you aware that no Pd medication does anything to slow down the progression of Pd? That means that whether you take it or not, your Pd is continuing to get worse. That's the bad news!

The good news is that fast walking IS ABLE TO SLOW DOWN OR EVEN REVERSE PD.

How do I know that?

Because it has happened to me and is happening to others.

If you want to learn a lot more then visit my website - reverseparkinsons.net and contact me. I will try to help you, at no cost to yourself!

[Buckholt in reply to JohnPepper]

I’ve read about your fast walking before, but how fast is fast and over what distance or time do you think is therapeutic?

[JohnPepper in reply to Buckholt]

Hi Buckholt

The answer depends on the person. You can start fast walking for AS LONG AS YOU ARE ABLE! It might be on minute it might be be five or even ten,

FAST means as FAST AS YOU CAN. That means it could be on kilometre an hour.

It is recommended that you only walk as fast as you can every second day, because your muscles need time to recover,

The maximum recommended time is ONE HOUR! There is no benefit to be gained from walking longer than that.

When I was 64 I was able to walk 9 kilometres in an hour. Now at 84 I battle to walk seven kilometres in an hour. It makes no difference how far you walk ij=in that hour as long as you ar e walking as fast as you can. That is when your brain produces a natural chemical called GDNF, which repairs the damaged brain cells. YES! We have our own built-in repair kit, if only our doctors would tell us how to use it,

[John_morris71 in reply to JohnPepper]

I salute you !!. 84 and walking 7 Kms in an hour. You definitely put a lot of us even with no PD to shame. Wish I could get my mother who is 75 to walk half the distance in double the time. Getting her to go outside and walk for 30 to 45 minutes is a challenge, as she does not want to. Given her balance issues fast walking is almost impossible. Irony is that she feels good after walking and says so after she is done! But the next day when it is time to walk, the tantrums start. I do not blame her entirely, as I do not know what is going on inside her head due to PD.

[JohnPepper in reply to John_morris71]

Hi John. If your Mum believed that fast walking can reverse her Pd symptoms she would set her mind to starting walking, every second day, as fast as SHE CAN, which might be 1 kilometre an hour, for as long as she can, which might be 1 minute, and take it from there. In no time at all she will be walking a little longer each week and BINGO! She will be on the road to recovery. Don't forget, she must always walk as FAST AS SHE CAN!

Visit my website - reverseparkinsons.net and contact me. I will help her to get better. If it does not work, it cost her nothing but she would be at least a lot healthier. What has she got to lose?

[John_morris71 in reply to JohnPepper]

Appreciate the reply. How I wish she would just listen to me. I will keep trying even though have to put up with her daily song and dance.

[JohnPepper in reply to John_morris71]

That's it! Never give up!

[LindaP50 in reply to John_morris71]

I'm in the same boat. I research and then tell hubby about my findings - people in similar situations as him - but he will try it one day and then seems to give up.

[Redginger in reply to John_morris71]

Perhaps you are not, but it wasn't clear in your post, do not have your mom walk EVERY day, only every other day. See John Pepper's info on this.

[John_morris71 in reply to Redginger]

I know what you mean. Given her sedentary life style wherein she is sitting or sleeping all day, walking every day anywhere from 30-45 minutes seems a must do to me. I also do physical exercises/physiotherapy for her daily for 30 minutes. These are the only 2 activities that she indulges in; I even brush her teeth, bathe her etc. and do toilet duties. So you can understand why I want her to go out and walk ( while I am holding her hand). Frankly, if she does not walk or have any physical activity I am scared that she will become bedridden.

[JohnPepper in reply to John_morris71]

Unfortunately lethargy is a symptom of Pd, due to low levels of dopamine. If she is capable of walking, with or without your help, for ten minutes, it is possible that she will then overcome the lethargy and become more with-it. Unfortunately it does not stay like that! Good luck! Whatever you are doing.

[Zella23]

My husband and I gear up for appointment and hope for our neurologist to be more helpful but he is only interested in the ‘drugs’ therapy. We told him we had been to Italy for exercise and support. He did listen but made absolutely no comment about it. He did however report to our GP and stated about my husband s. Holistic approach to treatment for PD! We are in the process of looking for a new neurologist.

[LindaP50 in reply to Zella23]

Most neurologist follow the conventional guidelines - even stated this on the Fox Foundation. I'm guessing because there isn't enough proof and the FDA hasn't approved supplements, cbd oils, etc.

[Niggs]

Don't know if it's any help, but I'm a member of a Farcebook group for pwp's and their carers which is 'only' jokes, gags, puns. It's a simple yet brilliant idea that seems to be helping folk, even if only for a short while. Everyone's welcome but you have to join because it's a closed group ie just for Parkies.

'Laughter is the best medicine'

'Parkinsons laugh with me group' - facebook.com/groups/PBH.LWM...

[Maltipom]

Right there with you most days.