Constant feeling of the necessity of a toilet visit.

[haugenk]

Hi, I struggle with constipation, bloating and pain, and a constant feeling of the need to go to the toilet. This feeling is almost constant and creates additional problems with my sleeping, which already is pretty bad. Anybody else with similar problems, any suggestions? I use various laxatives, without much success. It seems either the dose is too small or too large. I would not say this makes me crazy, but not very far from. It does definitely constrain most social life I might have.

[JANET127]

Hello, If I had pressure continually, I would make sure that I had a Colonoscopy to rule out anything going on! Just a thought! Janet127

[haugenk in reply to JANET127]

Thanks a lot Janet127, a sensible tip. However, I have taken 4-5 of such the last 10 years without and special findings.

[ruff1]

Have you tried Thiamine ?

[haugenk in reply to ruff1]

No, I have not. Is it good?

[ruff1 in reply to haugenk]

Helps with all sorts of issues related to Parkinsons, read up on it on this forum 😀

[park_bear]

High-dose thiamine relieved my Parkinson's related constipation within the first two weeks. It restored normal peristalsis. Sometimes I do have excess peristalsis which does make me feel like I need a bathroom visit only to find there is nothing to expel. This can be mitigated by adjusting dosage.

In my case I also suffer from insufficient moisture in my G.I. tract. The stool softener known as sodium docusate fixes that problem for me. It restores normal water content.

[MBAnderson]

A lot of PWP have a slow, and most often incomplete, empty of their bladder and/or stomach and/or bowel. If you feel like you have to go, may likely be because you're not empty, i.e., your backed up, you do have to go, so you have to employ a regimen of anti-constipation measures which you probably heard by now. Exercise, a lot of water, fiber, psyllium fiber husk, stool softener, Taco Bell, etc.

What kind of laxative have you been using?

[haugenk in reply to MBAnderson]

Movicol, Laxoberal, Duphalac, to name some.

[MBAnderson in reply to haugenk]

Stool softener's are fine, so you know you can't take laxatives. Lotta good suggestions here. I think PWP can reduce the problem with home remedies.

[Syncletica]

You might find the use of Mag-07 (Aerolife) to be helpful. Go to Amazon and read the testimonies to its effectiveness.

[Hidden]

haugenk,

According to forum members who have started High Dose Thiamine (HDT), one of the most commonly reported benefits, of the many that they report (80 reported benefits) is an end to years of constipation!

healthunlocked.com/parkinso...

Others on the forum have reported that certain magnesium forms such as magnesium citrate or magnesium oxide are also useful for relieving constipation. Some people have reported that even topical magnesium chloride oil spray (mag oil) that they were applying for pain and cramps associated with PD, also helped ease the constipation.

Art

[haugenk in reply to Hidden]

Thanks a lot for some very good advice

[Hidden in reply to haugenk]

You're welcome!

If you want to know more about HDT, you can click on my icon and that will take you to posts I have made about it that will likely answer any questions you may have about it. There are 8 posts concerning HDT and related information there in case you ever want to know more about it. There is also the contact information you will need.

Art

[haugenk in reply to Hidden]

Great, thank's a lot. I will discuss this option with my GP

[Hidden]

My husband who also has PD found his solution to constipation by eating honey coated peanuts!! I know it’s not a medical solution but it certainly works for him. He eats a large handful each day and also takes two senecot daily. It’s made a huge difference for him!

[4000Nights]

Taking high dose Thiamine seems to be an extreme treatment for constipation.

I recently started taking a probiotic, a glass of Kevita everyday, and it has been very effective at relieving my previously chronic constipation. You may want to try that first for a couple weeks.

I don't think that urinary urgency is a PD thing. It usually relates to an enlarged prostate which is normal with age and can be treated with meds but could be more serious. You should see an urologist ASAP.

[haugenk]

Thanks for good advice.

[Burlingtongal]

From another Thiamine HCL user, my constipation is gone.

[haugenk in reply to Burlingtongal]

Very promising 👍

[Zardoz]

I make smoothies daily with chia seeds and whole fruits like apples with the skin. Good way to take supplements, just open the pills and add to the contents.

A good probiotic before bed. Prunes if necessary. Magnesium glycinate for tight muscles and mag threonate for the brain, the magnesium helps constipation too.