Zandopa

[bibsie]

We have just ordered Zandopa for mucuna pruriens but were not sure of an initial dose? (Currently my husband is not on any drugs for PD. He takes mannitol and B1 but does not notice any effect...either positive or negative...from these. I think he needs some source of dopamine boost. He tried nutrivita MP but took too much and got dizzy, disoriented, and nauseus so he is afraid to try that again.

Suggestions? Timing and dose?

[Farooqji]

experiment with dose of 1 scoop provided with the powder.

[cshamb]

I TAKE ZANDOPA AS PER DR.NESHAL. I STARTED OUT ON 1/4 TSP AND THEN UPPED IT TO 1/2 TSP IN ABOUT A TWO WEEKS. AFTER BEING ON THE FULL DOSE OF 7.5 GRAMS I WAS NAUSEATED SO I HAVE CUT BACK. I HAVE GONE BACK TO 1/2 TSP FOR A WHILE AND AM DOING OK SO FAR. I STILL TAKE SIMINET BUT HOPE EVENTUALLY TO COME OF THE SIMINET. DR. NISHALL HS A WEBSITE AND WILL WORK WITH YOU . THE INITIAL COST IS LOW AND HE WILL CALL YOU AND DISCUSS WHAT YOU NEED. I RAN INTO THE SAME PROBLEM AND FOUND THAT WORKING WITH A DOCTOR FAMILIAR WITH ZANDOPA IS BEST. DO START OUT LOW. HOPE THIS HELPS.

[kittygirl17 in reply to cshamb]

what is the website please?

[Hidden]

Thiamine hcl stops progression, wheras Zandopa does not. Yes it is advisable to combine carbadopa levodopa with your high dose thiamine hcl.

[bibsie]

Thanks Roy.

We went to another neurologist yesterday who, like my husband's movement disorder specialist) was quite dismissive about the potential of Thiamine to affect PD. I guess this is our own journey. And Dr. Constantini is not enthusiastic about MP.

However, my husband is reluctant to start any regular drugs but I think he needs a source of dopamine. We will start again with small amounts of Zandopa. We just don't know how much. And I am hopeful that he will start with Azilect or Sinemet in a couple of months because I think there's ample evidence that the disease causes the ever-evolving problems, not necessarily the drugs. (Though they definitely have some ugly side effects.)

At least he is taking 4g Thiamine daily (2 in the morning, 2 in the evening). We inquired about injections and the cost is truly prohibitive. We are going to Mexico and we will check on availability there.

Thanks for all your work on this site.

[cshamb]

I work with a Doctor who is certified in that type of medicine. I started out with a low dose of about 1/4tsp and after several months I am up to 1/2 tablespoon. I preferred to try it slowly. I also still take siminet but hope to reduce that eventually. The Doctors name i work with is Dr.Nishal and he will treat you with online appointments. I was diagnosed about 8 yrs ago and doing well. Hope this is helpful.

[cshamb]

doctornishal.com

[twitness in reply to cshamb]

Thanks for the web site.