Let me introduce myself.

[floatplan]

I have been lurking on this board since my husband's Parkinson's diagnosis in July 2018. The knowledge, openness and support exhibited in the postings have been a great help. Thank you!

His main symptoms are; tremors in both hands, stiff gait and a slight softening of his voice. He also has fallen out of bed 4 times in the last 7 months. He has undergone a brain and brain stem MRI which revealed nothing out of the ordinary. His next appointment with the neurologist is in November (I assume he will be prescribed drugs at this time).

Besides the Parkinson's he has:

Prostate Cancer since 2011. Currently on Lupron depot every 4 months.

Heart Attack in 2014. Stent implanted and is on blood pressure meds. Partial blockage in 2 other arteries but not enough to warrant surgery.

Restless Leg Syndrome which is being controlled by gabapentin. He had a total hip replacement in October 2017 and it was after this surgery and difficult recovery, the RLS worsened and hand tremors began (any connection?). For years, he had a slight head tremor, but since the hip replacement, that has disappeared and his hand tremor started.

As you can see, he has several medical issues and they greatly effect his ability to exercise effectively.

He started on the B1 protocol September 1 (without consulting Dr. C) 1500 mg twice a day.

In hindsight, this was probably too high a dosage because his tremors worsened and he developed diarrhea (which may or may not be B1 related). As of September 20th he is off B1 and we are awaiting a response from Dr. C about the correct dosage.

I emailed Dr. C on September 13 and got an immediate reply requesting 3 videos (pull test, walking and speaking). I sent the videos September 16 and received notice they were successfully transmitted and he would be reviewing them. Have not yet heard back.

Thank you for allowing me to ramble on. It is most cathartic.

[Hidden]

Yes your friends and supporters are here for you

[park_bear]

Folate supplementation accelerates cancer growth and should be avoided. Most multivitamins and B complexes contain folate. There is a B complex without folate, brand-name "Freeda".

Symmetrical tremor and non-response to B1, at least so far, raises the question of diagnosis. You say he has stiff gait. Does he limp or drag his foot on one side? Have his symptoms been steady since the surgery or has there been progression? I am suspicious he suffered brain damage as a result of some adverse event during surgery, possibly low oxygenation.

Vitamins D and K have better cardiovascular results than statins and reduce fracture risk better than bisphosphonates. Vitamin K is probably contraindicated due to his stent, but he can take the vitamin D and the minerals. See my writings here:

Vitamins and Minerals for Bone Health and Reduced Risk of Cancer

tinyurl.com/hya5dwd

Vitamin K: Unsung and Essential

tinyurl.com/yd9l4j3q

Details of the vitamins and minerals that improve bone strength, reduce fracture risk, prevent hardening of the arteries, improve cardiovascular outcomes, and reduce cancer risk.

What You Need to Know to Reduce Risk of Hip Fracture and Cardiovascular Disease

tinyurl.com/y8o9jy8u

A review of the foregoing + calcium deposits on teeth as a sign of trouble.

When Good Doctors Prescribe Bad Medicine:

tinyurl.com/zvgcu79

How Big Pharma pollutes the scientific record and propagandizes doctors.

Bisphosphonates (Fosamax, etc.) increase fracture risk and should not be on the market.

Statins are effective but dangerous.

Vitamins D and K and a couple of minerals improve bone strength, reduce fracture risk and prevent hardening of the arteries. In so doing they result in better outcomes than both bisphosphonates and statins.

Other hazardous meds and how you can protect yourself.

[floatplan in reply to park_bear]

Wow! There is a lot to absorb in your reply. Thank you for taking the time to give me such a detailed response.