B1 Journey

[Erniediaz1018]

Starting tonight 7/6/2018 thanks to Dr Costantini, RoyProp, Gio, Kia, Art (who's here for his friends) and many others I will start using B1 (Thiamine). I will let you all know how its going.

[Hidden]

Good luck, Ernie!

Art

[Erniediaz1018 in reply to Hidden]

Thanks Art

[Xenos]

Welcome, Ernie

Be very precise with the dose. It is essential.

[Erniediaz1018 in reply to Xenos]

Thank you for the advice. I'm going to get a scale first before I start.

[sleezy]

How is it taken - by an injection or by mouth? [e-mail]

[Hidden in reply to sleezy]

IM injection preferred but oral is option

[Hidden]

I pray it brings you all that you would want of it.

[Erniediaz1018 in reply to Hidden]

Thank you

[Erniediaz1018]

Thanks to Xenos advice, I did some research and going to get a scale before I start. For those considering taking B1 in powdered form as I am check out this short video.

youtu.be/nc7vVnHseOs(Not working as expected?)

[Juliegrace in reply to Erniediaz1018]

Very good idea. I use a jeweler's scale that I bought on Amazon for under $20.

[Erniediaz1018 in reply to Juliegrace]

Thank you ordered a scale. Waiting for arrival on Friday.

[MarciAC4]

I also started B1 on July 6th. I am taking oral in pill form.

[Babowen898]

Good luck! Excited to see if it helps you!

[SELFMeder]

Please keep us informed.

There is also potentially good news in an adjacent post today re B3 as a neuron protector.

Good luck!

[Despe]

Good luck! My husband has had three B1 IM injections, so far so good. I will give an update in a month.

Ordered B1 vials from Germany. Didn't clear customs as FDA prohibits import from Europe. Fortunately, I was able to get them from a compounding pharmacy (thanks Julie) in California.

[Hidden]

Just a thought about the use of powder thiamine. Initially, it may be easier to use the capsules or pills during this period where you are trying to establish the correct dose of thiamine for you. The pills or capsules will keep it simple and make adjustments easy. Once you have found your correct dose and perform the pull test satisfactorily, then you can experiment with the pure powder form. I think if the powder form is doable for you, then it may be useful to use both capsules and the powder form. The powder form when you are home and it is convenient to mix it up and the capsules for when you are out and about or traveling, both for the sake of convenience.

Art

[Patrice4012 in reply to Hidden]

Can anyone suggest where is a reliable source in Oz please.

I’ve been buying an off the shelf product but not sure of dosage.

[Erniediaz1018 in reply to Patrice4012]

What's that a scale or by the oz (ounce)

[Hidden in reply to Erniediaz1018]

Australia/the land down under/oz

[Erniediaz1018 in reply to Hidden]

😁👍 Is that where you are, Art?

[Hidden in reply to Erniediaz1018]

No, I'm in the states.

[Kia17]

Erniediaz

Good luck. Please let us know how you get on with Thiamine.

Kia

[AmyLindy]

Powder is the way to go unless , like me, u have so many other powders already! Like Easilly /Art says, maybe a) powder for standardizing and b) pills for routine or travel. My smoothies have lots of different powders already —this would be easy and cost effective to add. What’s your status on this Protocol so far, Ernie?

[Erniediaz1018 in reply to AmyLindy]

Yes I do all powder so far about 15 herbs + MP, magnesium all powder. Although I went away for two weeks recently and I decided to use sinemet and gabapentin which worked really well, but my fear is long term use side effects.

[AmyLindy in reply to Erniediaz1018]

Curious to see ur herb list - I’m competitive that way.lol I’m sure the basic anti- inflammatory and superfoods... and then some?

[Erniediaz1018 in reply to AmyLindy]

Go on my page and find a post titled the natural way the link is there to the website where I got that list of herbs that I take + some 😃

[Erniediaz1018]

UPDATE

healthunlocked.com/parkinso...

[Erniediaz1018]

Here's the update. After taking 4 grams of B1 for three weeks now on day sixteen I ate eggs and pancakes for lunch and my dyskinesia was through the roof. But yesterday on day 17, my on time seems to have been extended by an hour and change and barely noticeable dyskinesia and today day 18 has been an even better day. I can actually sense the positive effects the B1 is having on keeping the dyskinesia at bay and extending my on time and relief of fatigue and increase of energy. I've actually felt like increasing the dosage in hope of getting even better results, but I'll wait to see what Dr C says, I'll write him tomorrow.