An article just popped up on my face book about a woman who can detect PD by smell. She diagnosed her husband 10 years before he was diagnosed. Her skill is being taken seriously and tests are being carried out by some medical researcher to see if they can use this in diagnosis.
She describes the smell as a musty sort of smell, similar to how my husband describes my aroma and has for years. This I have put down to thrush which I have essentially had my whole life.
I am now wondering if this could be a factor especially as both thrush and diabetes are sugar related and diabetics have a higher chance of PD.
So my question is, do any of you have recurring thrush or a musty sort of smell? I’m not sure how thrush manifests itself in men, but I’m sure all the females will know if they’ve had it!
Thanks.
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Astra7
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I eat Greek yoghurt every day and take pro biotics. Sometimes I take a canesten pill or paint some oral thrush medication on my tongue when it flares up. I try to avoid sugar but I crave it! Especially chocolate.
I had a terrible candida overgrowth in my gut and restricting diet and going to physicians did nothing to get rid of the problem. I finally heard about Kombucha and starting making my own and within 2 months I no longer had the problem. I continue making and drinking it.
They have trained dogs that supposedly can sniff out PD also!
Seems like every neurologist should have one of these dogs in order to expedite the diagnosis process or at least a testing facility where doctors can send their patients for a quick doggie diagnosis!
Thrush is a common symptom of candida overgrowth, so if you have the white coated tongue often seen in thrush, oral antibiotics alone may not be adequate for complete eradication of thrush. For the tongue whiteness, some have found benefit from gargling and swishing with magnesium hydroxide typically found in Original Milk of Magnesia, not the fruit flavored versions but this will do nothing for the systemic issue which can require multiple modalities in order to treat effectively.
My husband has the smell. It has haunted our bedroom for the last 10 years! Makes pillows smell and clothes don’t seem to lose the smell even after washing repeatedly and it gets on other clothes washed with them. It is sort of oily and musty.
He has fungal toenail and roseacea too with bad acne.
He has been taking berberine and Allimed (garlic) alternating week about with a strong probiotic and it controls the acne and roseacea. It might work on thrush.
I have just bought mimosa putica, and formula one which contains neem oil, Vedanta, fulvic acid, triphala, clove, and holarrhena which are antiparasite and bacteria. microbeformulas.com/collect....
I’m about to give that a go on myself first then treat him with it. Mimosa putica sounds like amazing stuff for getting rid of all manner of nasties!x
For your husband's toenail try bicarb soda. Rub it around and under the nail before getting in the shower or just have a footbath. Repeat this for a while. The fungus doesn't like this environment. A Podiatrist put me onto this.
I just googled bicarb soda. It is beneficial to drink some each day, I know I have added some to my bath to relieve aches and pains over the years. Maybe try these out and see if it helps. Good luck.
Explain to me how an excess dose of oral sodium is going to LOWER blood pressure? Can't be, that is the opposite of how sodium works in the bloodstream. Though it is perhaps what you are after, raising blood pressure because of some treatment effect of lowering blood pressure, that is common enough in PD. But sodium is going to raise blood pressure, sodium adds to your weight by capturing water and hanging onto it. Weight goes up, so does your blood pressure to push all that thickened blood through all the excess tissue filled with water. Any doctor can tell you that. Also, I don't get what science you are using with the garlic idea. Is there some strategy behind it?
The woman you refer to is a Nurse. She detects the odour to be "a woody, musty" (or was that musky?)
type of smell.
This is depressing for me. I can no longer smell so i will not be able to detect the smell on myself. I hate to think i stink and everyone knows but me.
I have shared this with my family and told them how i feel. Their comment, " what can you do about if we tell you, so maybe its best not to know."
Hi Astra. I am a man and don't have Thrush, but Dr Laurie Mischley - of the North West University in Seattle, where she is a professor of Neurology - has a dog which has been trained to smell out Pd. That dog came and sat on my feet after smelling me and several other people. That is the way she tells Laurie that I have Pd.
People should read the account. It is amazing. The only person the dog "false positived" on developed PD later. Amazing stuff. There is now a scientist getting support to isolate the mechanism and substances involved.
I was dygnosed November 16, wife says I have a particular odour, I had a camaras down my throat, because I was suffering from retching, they found I had thrush in my throat?
I had a bad candida infection in my groin (aka "jock itch") for at least 10 years before my PD diagnosis. Canestan cream helped but could not clear it. A couple of years before my diagnosis I noticed this oily/musty smell about myself and in the year before I had terrible cravings for sweet foods (unusually for me). I have often wondered about a connection and know that candida in the gut thrives on a sugary diet that can lead to overgrowth and an unbalanced gut biome.
On the day of my diagnosis I cut all foods with added sugar from my diet and a year later to an ultra low carbohydrate diet (carbs, especially refined ones, are converted to sugars very quickly). I am no longer troubled by jock itch nor notice this oily/musty smell (although this could be due to PD) although I can smell sweat etc. I have cut back on Sinimet by about 2/3rds since. Apart from this I have lost around 50lbs, my blood pressure dropped from borderline needing medication to 120/68 (i.e. healthy) and anxiety and sleep disturbances are no longer a problem. Both diabetes and gut health have been linked to PD so eliminating sugar and refined carbs seems like a no brainer. Going to an ultra low carbohydrate diet (such as Ketogenic) needs more consideration but, personally, I feel better for it
Tell you what, I have had "atopic skin" (itchy, rashes, hay-fever type of chronic skin itching, "pruritis" they called it, going on 55 years now, only decent treatment was antihistamines, and I mean as a chronic diet, for years and years and years. Since then, at some point I also noticed that the itching and fire ratcheted up whenever I would eat sugar, which I already was raised on and craved my whole life...and aspartame sent me into orbit. Found quite some relief from backing off of sugars, staying way the hell away from aspartame, and instead eating proteins. Now, when you get into the chemistry of aspartame, guess what, it is full of phenylalanine, the precursor molecule of brain-produced dopamine, epinephrine, and norepinephrine!!! Finally it all began to make sense. You see, chemically, Dopamine must be produced IN A RANGE. Too much is as bad as too little.
Diagnosed Jan 2017 but had symptoms for a few years. Neurologists kept upping my dose but I experienced severe side effects that were consistent with excess dopamine so, unilaterally, decided to cut my meds to 2 x 12.5/50 mg Sinimet a day and feel better for it. My change of diet had a significant effect on me and, seemingly, on my need for exogenous dopamine. Of course, everyone is different so my experience may be unique (as my neurologist likes to claim).
The first few years after my husband was diagnosed he would leave this smell on bedding. I did not smell it on him. No matter how much I washed the bedding it stayed on it. I retired the sheets and pillow cases and use them to wrap holiday breakables that I store in the attic. Everytime I open up one of these the smell is still there and I wash them each time.
Hi I have had problems with Candida most of my adult life. In the second edition of The Yeast Connection by Dr Crook Md . He had a guest Md., Dr Leo Galland Md . Who said that taking Grapefruit Seed Extract is as effective as taking Niastatin. Which was the drug of choice in the 1980's
I have been having pain in my side most mornings for the past year and 3 months. And if it's bad I have a throw up symptom and metallic taste in my throat.
I have to lay on the floor to stop the pain and the retching.
I've finally realized it's a yeast problem that has been keeping two inflamed places in
My stomach from healing. Grapefruit Seed Extract by Nutribiotic works for me, and Gas And Bloating tea by Gia Herbs sooths my stomach.
I
The grapefruit Seed Extract, I learned about in 1992. If you think you have a yeast overgrowth you are advised to start with 5 drops stirred into a glass of water, once a day for a few days, then increase it to twice a day or later go to 10 drops 4 or 5 times per day. In the morning on an empty stomach don't go over 6 drops or you may become nauseous. If you get flue like symptoms back off for a while. You can get die-out.
The advantage of Nutribiotic is it has a very good dropper., that allows you to count drops precisely. A good book is The Missing Diagnosis II by Dr Orion Truss Md . He has 47 years of experience mostly treating women with yeast problems , but he has plenty of experience treating men and children too. Another book is The Yeast Syndrome by Trowbridge Md.
You can rub GSEon you skin if you have a cut or sore that is not healing . I also mix in coconut oil when I'm giving a massage if if I get a yes that it will be helpful for my client with a pendulum.
I'll rub it in my scalp for itching scalp which I sometimes get after eating sweets. I wet my ginger tips in water then put one drop on each finger, then massage it in.
Yes, I used that a long time ago, My stomach would have gut wrenching gas pain when I ate cheese, pasta and sweets. I used Grapefruit drops and problems went away. I'll order some today. Thank you, Maria
I've been wondering if "the smell" had ever been discussed on here. Back in May of last year when the smell became so strong that I left the room when my husband walked in, I researched it and figured out that he must have some kind of PD. He could not notice the smell himself, but then his sense of smell has been deficient for years. However, after some of his treatment, not only did "the smell" go away but now his sense of smell is getting better.
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Coco Dr. Laurie Mischley's PD sniffing dog.
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