Living with PD and enlarged prostate.

[ccr69]

I wonder if other PWP and Prostate problems have been advised how risky it is for us to have a TURP ( the operation to reduce the size of the prostate)?

[lingfield222]

My husband with PD has an enlarged prostate but there has been no suggestion from his doc that he has this procedure, though it was described as a possible option at some point.

[Millbrook]

Why is it risky to have TURP? I am given to understand that this is the supposed gold standard.

Lately I have also read about the green laser for enlarged median lobe that has less side effects than TURP.

[ccr69 in reply to Millbrook]

I have been advised by my urologist and neurologist that PWP can end up with permanent urinary incontinence after a TURP because of damage to the nerve endings caused by Parkinson's. Obviously this doesn't effect everyone but there is no way of knowing before the operation who will be affected.

[Despe in reply to ccr69]

healthunlocked.com/cure-par...

Ask about HoLEP. My husband is scheduled to have this procedure and he has had a Foley catheter since last July.

[taxidermy1944]

I have had 2 TURPS over the past 5-6 years and I am still having problems with urinating on my own. I have been using self catheter for over a year and now I am being advised to have laser surgery to remove scar tissue. I suspect this is all related to PD.

[JimmmyGo]

Many options for treating BPH besides TURP and I'd try them all before undergoing a TURP. Urgency to urinate is an issue with PD and a TURP could lead to urgency incontinence.

[Millbrook]

Thank you for your reply. My husband had TURP to remove a cancerous tumour in the bladder. The BCG immunotherapy that followed was difficult. 3.5 years later bladder is finally able to retain more urine and he has less frequency after taking lots of prostate supplements and no incontinence.

Now urologist says that median lobe is enlarged causing the bladder to be trabeculated and muscular which is not good for the bladder. He is suggesting another TURP to shave the prostate during his routine cystoscopy.

We are looking at green light laser which is supposed to hv less side effects.

[Despe in reply to Millbrook]

healthunlocked.com/cure-par...

Please read my post. HoLEP is the procedure my husband is scheduled for in 2-3 months.

[Millbrook in reply to Despe]

Despe what about this

ncbi.nlm.nih.gov/pmc/articl...

It’s Rezum and supposed to be non invasive.

My husband just had PFA - pulse field ablation- for his afib and also fixed his a flutter 2 weeks ago. So far other than the initial headaches and jaw ache it’s been good.

As such he has to let his heart recover for 3 months before doing any other procedure. His friend just had Rezum about 3 weeks ago so we will monitor his progress and see. Ask your doctor about Rezum

[Despe in reply to Millbrook]

He had a cystoscope before the doctor decided on this procedure. I will ask, however, about Rezum, although I remember it's not as effective in my husband's case.

Hubby had cardiac ablation back in 2010-11 and was the best procedure he has ever had. No problems with arrhythmia, gone!

[JohnPepper]

I have prostate cancer. I am 88 years old and chopse to have my testicles removed, rather than having a dangerous operation.

I am now in menopause, which is not pleasant, but it beatsdying. Without the testosterone, the cancer will never kill me. I get the hot flushes every now and again and you wife and lady friendss will have a laugh at your experience, they deserve it.

Good luck!

[kaypeeoh]

Years ago I had growths in my liver. I had embolization of the arteries feeding the growths and no problems since. I asked if the procedure could be done to my prostate. The answer was YES but I would have to be a lot larger before they would do it. So for now I monitor my PSA. My dad had prostate cancer surgery and afterwards the doctors said he would have died of natural causes rather than prostate cancer if he'd never had the surgery. He ultimately died of stroke but without prostate surgery he might have lived for years.

BTW, my wife gets acupuncture for relief of her hot flashes.

[kaypeeoh in reply to kaypeeoh]

Two years later nothing has changed. I still take Rytary for the PD, Myrbetriq for the bladder control and Motegrity for the constipation. I still use a treadmill for HIIT exercise. I've put on about 30# since the PD diagnosis. I USED to be a long-distance runner. My white-whale was the Leadville 100 mile trail race. I attempted and failed to complete it six times. For decades I ran 50 miles per week. After PD I lost interest in racing. But I continued to eat as much as I did pre-PD. So the pounds crept up on me.