Living with PD and enlarged prostate. - Cure Parkinson's

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Living with PD and enlarged prostate.

ccr69 profile image
12 Replies

I wonder if other PWP and Prostate problems have been advised how risky it is for us to have a TURP ( the operation to reduce the size of the prostate)?

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ccr69 profile image
ccr69
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12 Replies
lingfield222 profile image
lingfield222

My husband with PD has an enlarged prostate but there has been no suggestion from his doc that he has this procedure, though it was described as a possible option at some point.

Millbrook profile image
Millbrook

Why is it risky to have TURP? I am given to understand that this is the supposed gold standard.

Lately I have also read about the green laser for enlarged median lobe that has less side effects than TURP.

ccr69 profile image
ccr69 in reply to Millbrook

I have been advised by my urologist and neurologist that PWP can end up with permanent urinary incontinence after a TURP because of damage to the nerve endings caused by Parkinson's. Obviously this doesn't effect everyone but there is no way of knowing before the operation who will be affected.

Despe profile image
Despe in reply to ccr69

healthunlocked.com/cure-par...

Ask about HoLEP. My husband is scheduled to have this procedure and he has had a Foley catheter since last July.

taxidermy1944 profile image
taxidermy1944

I have had 2 TURPS over the past 5-6 years and I am still having problems with urinating on my own. I have been using self catheter for over a year and now I am being advised to have laser surgery to remove scar tissue. I suspect this is all related to PD.

JimmmyGo profile image
JimmmyGo

Many options for treating BPH besides TURP and I'd try them all before undergoing a TURP. Urgency to urinate is an issue with PD and a TURP could lead to urgency incontinence.

Millbrook profile image
Millbrook

Thank you for your reply. My husband had TURP to remove a cancerous tumour in the bladder. The BCG immunotherapy that followed was difficult. 3.5 years later bladder is finally able to retain more urine and he has less frequency after taking lots of prostate supplements and no incontinence.

Now urologist says that median lobe is enlarged causing the bladder to be trabeculated and muscular which is not good for the bladder. He is suggesting another TURP to shave the prostate during his routine cystoscopy.

We are looking at green light laser which is supposed to hv less side effects.

Despe profile image
Despe in reply to Millbrook

healthunlocked.com/cure-par...

Please read my post. HoLEP is the procedure my husband is scheduled for in 2-3 months.

Millbrook profile image
Millbrook in reply to Despe

Despe what about this

ncbi.nlm.nih.gov/pmc/articl...

It’s Rezum and supposed to be non invasive.

My husband just had PFA - pulse field ablation- for his afib and also fixed his a flutter 2 weeks ago. So far other than the initial headaches and jaw ache it’s been good.

As such he has to let his heart recover for 3 months before doing any other procedure. His friend just had Rezum about 3 weeks ago so we will monitor his progress and see. Ask your doctor about Rezum

Despe profile image
Despe in reply to Millbrook

He had a cystoscope before the doctor decided on this procedure. I will ask, however, about Rezum, although I remember it's not as effective in my husband's case.

Hubby had cardiac ablation back in 2010-11 and was the best procedure he has ever had. No problems with arrhythmia, gone! :)

JohnPepper profile image
JohnPepper

I have prostate cancer. I am 88 years old and chopse to have my testicles removed, rather than having a dangerous operation.

I am now in menopause, which is not pleasant, but it beatsdying. Without the testosterone, the cancer will never kill me. I get the hot flushes every now and again and you wife and lady friendss will have a laugh at your experience, they deserve it.

Good luck!

kaypeeoh profile image
kaypeeoh

Years ago I had growths in my liver. I had embolization of the arteries feeding the growths and no problems since. I asked if the procedure could be done to my prostate. The answer was YES but I would have to be a lot larger before they would do it. So for now I monitor my PSA. My dad had prostate cancer surgery and afterwards the doctors said he would have died of natural causes rather than prostate cancer if he'd never had the surgery. He ultimately died of stroke but without prostate surgery he might have lived for years.

BTW, my wife gets acupuncture for relief of her hot flashes.

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