Raw tongue and madapor?: I have started... - Cure Parkinson's

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Raw tongue and madapor?

Astra7 profile image
16 Replies

I have started taking madapor 4 weeks ago and it was going ok apart from feeling fairly tired at first. Now however my tongue is red and raw looking and really sore. Is this a side effect? I can't find any other reason for it as I havnt changed anything else.

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Astra7 profile image
Astra7
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16 Replies
parkie13 profile image
parkie13

Start supplementing with a good multivitamin and a multiple B vitamin. Sounds like a deficiency of B vitamins.

Astra7 profile image
Astra7 in reply toparkie13

Thanks. I'll do that. It is so uncomfortable!

parkie13 profile image
parkie13 in reply toparkie13

You could try one more thing, I don't know if that will help or not. It might help to soothe take a tablespoon of coconut oil and put it in your mouth and let it dissolve and keep on swishing it between 5 and 20 minutes and then spit it out rinse your mouth out with water.

Astra7 profile image
Astra7 in reply toparkie13

I tried this yesterday and it has helped. Much better today. However, it was pretty hard not to gag and I couldn't do it for very long!

Thanks for the tip!

parkie13 profile image
parkie13 in reply toAstra7

I can do it with coconut oil but nothing else. You might have heard of it it's called oil pulling an ancient Indian technique

Astra7 profile image
Astra7 in reply toparkie13

My integrative GP, who I am seeing to investigate the gut bacteria/PD connection had told me to do it to get rid of strep. which apparently I have. (Also to sip bone broth throughout the day). I hadn't done it though as I was overwhelmed with everything she told me to do and take! Now I've started it though I'll press on - it's getting a little less gag worthy and my tongue is better!

How are you taking the madapor?

youtu.be/TtEPkRK1tlo

Astra7 profile image
Astra7 in reply toSerenity_finaly-1

Have you seen 'The castle'? I think you'd enjoy it!

Serenity_finaly-1 profile image
Serenity_finaly-1 in reply toAstra7

I am afraid of being let down. I think Firefly is one of the best TV shows ever.

Astra7 profile image
Astra7 in reply toSerenity_finaly-1

Havnt seen that one. Will have a look - plot looks interesting.

Serenity Now!!

Have a nice day/night.

Serenity_finaly-1 profile image
Serenity_finaly-1 in reply toAstra7

My apologies Astra7 , when you said The castle I thought you meant Castle, staring Nathan Fillion. Nathan Fillion was also the star of a cult classic Firefly. It is more popular today than when it first came out. The castle looks like a combination of Faulty Towers and Hitch Hikers Guide to the Galaxy, if so I know I well love it. Thank you!

Astra7 profile image
Astra7 in reply toSerenity_finaly-1

Feel the serenity!!

Hikoi profile image
Hikoi

That will be most uncomfortable for you :(. I have never heard a connection with madopar but pd drugs tend to give us a dry mouth and that could be contributing to your problem.

Astra7 profile image
Astra7 in reply toHikoi

Thanks. It is unpleasant. I am wondering if it's the NAC although I've been taking that for a year without this problem although I have had a dry mouth. I've stopped it for the time being.

Hikoi profile image
Hikoi

Astra, you may find some info in this thread. I see i found some info but I entirely forgot - ho hum 🤗

healthunlocked.com/parkinso...

Bea6 profile image
Bea6

Good morning

I'm on sinemet now after very bad response to madapar. I too have very sore mouth and after reading much about it I have found teatree toothpaste organic if poss and teatree mouthwash really good. After just three days it's looking feeling a lot better.

Hope this helps much love Bea

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